My Epilepsy began when I was 16 years old. Everything I said I wanted to do career wise was no you can't do that. I have tried a few medications but I am not suitable for surgery, so have to put up with the seizures turning up with no warning, but I am lucky enough to be well looked after by my husband & children who are now all grown up.
We taught them how to look after me & they have been wonderful & also look after others . My sons last year received a Young Carers Award for looking after me, & one looked after a homeless man having a seizure on the street! They along with my daughters & husband have moved me from the middle of the road, on the floor in shops, cafes.
Almost 7 years ago we went through every families worst nightmare, our eldest daughter aged 17 passed away from S.U.D.E.P. (Sudden Unexpected Death in Epilepsy). Hazel was 7 weeks from turning 18, she was in Year 13 at 6TH Form College. Her sister Kim was 16 also at college, her brothers Zack age 13, Jake age 10. Because it was a Sudden Death,there had to be an Inquest. I found her when I went to wake her up on Monday 5TH November, after Half Term.
The support the family had from friends, neighbours, the children's schools was wonderful. The family received many cards from friends of mine on Epilepsy forums. One lovely man from U.S.A. even had trees planted in Hazel's name in memory of her for the family. Hazel has friends who still support the family, they place flowers, Easter eggs, Christmas Trees, pine cones, sweet jars on her headstone & send messages to the family very often. These are ones who you call real friends & we can't thank these enough.