We exist to improve the lives
of everyone affected by epilepsy

 

Al Whyte

I had my first seizure aged 36. I was at work at the time, in a very busy kitchen. I had just pulled a check from the printer, and I was going to read this out to the rest of the kitchen, but while it made sense when I read it, when I tried to say it, it just seemed like nonsense...and then I woke up on the floor of the kitchen with everyone around me. I thought it was a one off: I had been working really hard, without breaks and and not sleeping very well. But then, almost 5 months later, I was on a bus going home form work and I suddenly felt terrible. I couldn't speak, or communicate in any way. Luckily a colleague knew how to deal with someone having a seizure and helped me out, called the ambulance. Two weeks later, I was diagnosed as having tonic/clonic epilepsy (although my neurologist is still unsure which type of epilepsy I have, as my seizure patterns have been shifting a bit). It's not in control, as yet, but I have tried several different drugs and none seem to be working. Some of the side effects are just awful. It's great that there's a platform for sufferers to tell their story, as hearing from others affected by this illness is often inspiring...

Al Whyte
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