My son Kai was born with Tuberous Sclerosis Complex and epilepsy due to his tsc. Kai had his first seizure at 4 months old. He had 3 brain operations and went onto a drug trial to help reduce his seizures. In 2017 his seizures became even worse, and more intense. After numerous appointments no one seemed concerned apart from us close to him. We put our funny loving kind boy to bed as usual, and I found him forever sleeping on 20th January 2018, one day short of his 16th birthday. My world ended that day, I had never even heard of sudep or been told that Kai was even at risk. After Kai died I realised he was most at risk from sudep, the silent killer. Kai didn't have a seizure that day or night, he went to bed happy and laughing. I have wrote 3 books about Kai and our journey with all proceeds going to sudep action. Whenever I fall, after the fall, and then the snow fell. I take comfort that Kai's name will live on and he will never be forgotten. My heart aches every minute of every day without him by my side.