We exist to improve the lives
of everyone affected by epilepsy

 

Paul Simon

I contracted meningitis back in August and have since acquired epilepsy which at 40 year old has been a difficult thing to come to terms with. I have tonic seizures of which i have had five and each time dislocated both my shoulders.

I have taken a lot of possitives in the reaction of organisations such as the DVLA and how they support you during these trying circumcstances. I also have to say that epilepsy action have been my closest rest bite. They are so supportive yet subjective and give such superb advice helping me to come to terms with the issues I have and take away my personal feelings at times (which is important).

I have quickly realised that not enough knowledge is available to support individuals or people that you live with. When I tell people about my illness I always feel like their reaction is “hope you don’t have one in front of me”. It’s such a difficult illness to live with but realised that through self management and medication i can control this. I hope to not let it dominate my life but fear each evening could be the next time I have a seizure.

This isn’t a sorry story as I said I am learning to control epilepsy now but just wished I knew more about as it as it’s life changing most definitely. I suffer hugely with my memory and at times anxiety but have a wonderful partner that makes me feel and reminds me all the time that I am in control.

I hope this helps other people in my position. Stay strong and possitive.

Paul Simon
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