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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I keep all my friends and family in the loop when it comes to epilepsy because I am with one or other of them all the time, and they need to know because they understand.

I have however had...

London

I've had epilepsy since I was 5 and struggled until I was 13 to fully control it with meds.

At 13 I was put on adult medication which although controlled my seizures put me in hospital for...

I was 10 years old when I was first diagnosed with my epilepsy and I am now nearly 17.

It first started at my parents friends wedding I had my first seizure there and my parents first...

Bracknell, Berkshire

I have had epilepsy since the age of 15, now i am 20 i have fully understood how epilepsy can affect a lot of people.

Having Epilepsy was hard to take in considering that I rarely got ill,...

Colchester

Hello. I am British & of Indian ethnicity. I was diagnosed with Epilepsy since childhood, i was about 7 years old and i am now 33.

When i was younger i did not have any knowledge about...

Sandwell, UK

I have had epilepsy for 37 years since the age of 3 years. I never try to let epilepsy hold me back.

Due to being bullied at school from having epilepsy and a lack of confidence, when I...

Horncastle

I was diagnosed with junior myclonic epilepsy aged 11. For purple day 2016 I created an epilepsy awareness pack and delivered it to my entire call centre. This has now been shared across all sites...

Dalgety Bay

Leanne hopes to raise £2,500 for Epilepsy Action in this year's London Marathon.

Her son, Morgan, six, has severe and difficult to treat epilepsy. Morgan started having...

Jonny’s girlfriend, Sara, was diagnosed with epilepsy in 2014 after having a tonic-clonic seizure at V Festival. Over the last 18 months, she has tried a number of epilepsy medicines but they have...

"2016 will be 10 years (+1 day!) since I ran my first marathon, a lot has happened since then."

Lizzie has epilepsy. She had her first tonic-clonic seizure in 2010 while...

When I was a teenager in the city of Norwich, UK, my parents struggled to understand what my mother could only term my "trouble". I remember being highly disturbed sitting upon the red leather...

Coventry, UK

My name is Naho Tamura. I am an ex epilepsy patient who had recently published my patient story on American Epilepsy Journal, Epilepsia.

I suffered Childhood Absence Epilepsy (CAE), onset...

Tokyo

Thanks to a story line now running on Eastenders, I now have a name for the type of epilepsy I developed 55+ years ago. I started to develop morning jerking when I was about 13. My grandmother was...

I was first diagnosed with epilepsy when I was 11years old. Basically my epilepsy started when I hit puberty. I am now 50 years old and since then my life has been a rollercoaster re epilepsy I...

Rochdale

It started as any normal day,
You had to change it, turn it grey
Pessimistically wanting it your way
And making sure that I had no say.

Quietly I was sitting, then a pain...

Newcastle Upon Tyne

Hi my name Kaitlin,

I had my first ever epileptic seizure on January 2013. I was at a friend's house and started randomly having a grand mal. After this stopped my friends phoned emergency...

Llanelli

I was first diagnosed with epilepsy 36 years ago, at the age of 9.  This is my story. (Names of sisters have been changed)

It was the morning of February 2, 1980, and I was in 4th...

I was diagnosed with Epilepsy (Petit-Mal) at the age of 3 years old.

And then in 1979-1980 i had four generalise seizures (Grand Mal)

And since 1984 i have been driving.

Stanmore

I have epilepsy and sometimes I can have up to 4 a day I feel depressed and I hope tomorrow will be better.

The seizures sometimes make me hurt myself I have fallen down the stairs and had...

Samantha (21) is an opera singer. She has been registered as blind since her premature birth, and was diagnosed with epilepsy when she was 18. Samantha describes the memory and sounds associated...

Isle of Man

After recently celebrating her 40th birthday, Vicky takes us on a whirl-wind tour of her life with epilepsy. Her journey has involved Shrek, an elephant, an amazing amount of hair and make-up, and...

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