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of everyone affected by epilepsy

My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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My name is Laura, I live in Belfast Northern Ireland. Being diagnosed with epilepsy at a young age came with its own challenges, however the numerous other problems I faced coupled with this...

Belfast

My name's Emily Sian Donoghue, I'm a 22-year-old living in England, turning 23 this year. 

I am working hard to keep up a growing community of people who wish to...

Derbyshire

I experienced my first seizure at the age of 15, I was later diagnosed with idiopathic generalised epilepsy with photosensitivity. I was medicated for 18 months then taken off medication. Six...

Yeovil

I think it's important that people can see what happens and understand epilepsy more.

I think alot of people's ignorance isn't down to them being bad people, but a lack of knowledge and...

Winchester

I am 48 and was diagnosed with Partial Seizures 6 weeks ago. This has been an emotional experience and I am still adjusting, sites like this help a lot.

I am a Psychiatric Nurse, I have...

Eglinton, Northern Ireland

My journal: Charcle Fordham Charcle Fordham is from New Jersey, US. As a teenager, she was diagnosed with juvenile myoclonic epilepsy and struggled to...

Atco, NJ

My Epilepsy began when I was 16 years old. Everything I said I wanted to do career wise was no you can't do that. I have tried a few medications but I am not suitable for surgery, so have to put...

Camborne, Cornwall

Successful surgery , been seizure free since and off medication

Manchester

This is a poem that Karen wrote for her daughter Poppy

My little girl has seizures
She has lots of them each day
The only hope I have is
One day they'll go away

She could...

At the age of 21 i had my daughter,own house & a career, little did i know my whole life was turned upside down! I had no idea what these fits were, i had 4 in one week which then i plucked up...

Bradford

I was diagnosed with epilepsy at 18 in 2012. I have tonic-clonic seizures with no aura. I have banged my head during one of them, when falling to the floor. I generally fall slowly, according...

Isle of Man

I was diagnosed with juvenile myoclonic epilepsy when I was 17 years old, and I've been living with it for 3 years now. I was terrified when I had my first seizure, one morning waiting on the...

Lisburn

I have suffered epilepsy for over 22 years after encephalitis. I have memory problems and need 24 hour care, but try to live as independently as possible,. Recently when drying my hair I had a fit...

Manchester

Becoming a mummy & also having a short film made about myself to raise awareness of epilepsy.
I have had uncontrolled epilepsy since the age of 10 (both Tonic Clonic, once a week or more...

Shrewsbury

A culmination of overcoming epilepsy, being a single parent and a personal achievement of winning two awards not only for exceptional service standards but mum of the year!!
A positive...

Shrewsbury

I had my first seizure at 15, and after a few more, was diagnosed last year at 16. Although my epilepsy isn't severe it has had an impact on my education- I missed two gcse exams last year and I'm...

Essex

This is a photo of my 3rd EEG. I was diagnosed at 15, still at boarding school. My roommate noticed my seizures first, and that's when it started. Inbetween revision for my first year of GCSE's I...

Bournemouth

Hello, my name is Joseph & im 14 years old. Doctors found out I was epileptic when I was just 3. Mum does a very good job looking after me, giving me my feed through my tummy tube & all of...

Crayford

I am currently studying HNC Photgraphy and decided having had health issues that led us down the path of investigations for epilepsy. That for My major unit I wanted to try and show what is often...

Livingston

Compared with some on this page, I've had it pretty easy with epilepsy. In fact, I've only had four seizures. Since I was diagnosed at 22, there's been very few times that my epilepsy hasn't been...

Leeds

When I was 7, I was diagnosed with Epilepsy. I had my first seizure without my family even knowing and I guess I didn't really know either, I just kind of woke up in the family study in the...

Lichfield

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