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of everyone affected by epilepsy


My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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Despite having 50-60 attacks a day I have worked in full time employment since I was 22 in managerial and executive PA roles, gaining the respect of my colleagues who see me for my skills not my...


Made it down the aisle without my walking stick, raised £90 plus Gift Aid at my wedding reception and began a blog advocating autism and epilepsy awareness and education - while still proving that...


Passing my driving test after having to wait years to have my epilepsy controlled!


Swimming Coniston Water in the Lake District. Although i swam this just over 20 years ago it was a great achievement for me at that time. My epilepsy never stopped me from doing Long Distance...


In my professional life my greatest achievement would be working to and obtaining my PhD in neuroscience. This allowed me to work in an Brain research institute specialising in epilepsy research,...


To be seizure free for 7 years and bring up two daughters on my own for 6 of those years.


Four London Marathons and Qualified as a Physiotherapist


Passing my cache level 2 in pre school practice and having my two lovely boys


This is my daughter she has severe epilepsy and also suffers from panic attacks. She couldn't do any children's activity clubs because of the panic attacks and epilepsy. Untill we found majorettes...


I have beaten the majority of my NEAD (non epileptic attack disorder) , and despite my minor fits being frequent since December, I have gotten through my first year at A level, in comparison to my...


Recovering from the brain surgery 12yrs ago and becoming a social worker as a result


Qualifying as a nurse


Becoming a mummy & also having a short film made about myself to raise awareness of epilepsy.
I have had uncontrolled epilepsy since the age of 10 (both Tonic Clonic, once a week or...


Is that i have not had a seizure for 3 years .

whitley bay

One of my achievements as well as recieving my blackbelt which is currently featured on the epilepsy action National Epilepsy Week is starting up the Horncastle Epilepsy Support Group as i will...


I got accepted to be a model in a London modelling studio, I was told I was very model material and had the facial bone structure of a model, I'm am travelling down to London of the 29th of May. I...


Proudly designing, creating and making beaded and chainmaille jewellery. The creativity came along with the epilepsy.... the proverbial silver lining


Raising money for Epilepsy Action last year. I made up a 24 hour Creative Write-a-thon, where I asked friends and family to sponsor me to write as many short stories as I could in 24 hours. I...


My greatest achievement is winning the Challenge Cup in 2005, when Hull FC beat Leeds Rhinos at the final in Cardiff. I’m a professional rugby player for Hull FC. I’m 28 and live in Hull. I’m...

Challenge cup winner

My greatest ever achievement was taking part in an indoor sky dive.

I'm 10 years old I have had epilepsy since I was 6 years old, and thats when i had to go on medicine. I've now been told...

Indoor Skydive

...changing national policy, so Buccal Midazolam can be administered by social carers.

Our son Aaron was diagnosed with refractorial epilepsy on 2 June 2004. Aaron was on three AEDs and...

Campaigned and saved lives


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