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My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I got accepted to be a model in a London modelling studio, I was told I was very model material and had the facial bone structure of a model, I'm am travelling down to London of the 29th of May. I...


Proudly designing, creating and making beaded and chainmaille jewellery. The creativity came along with the epilepsy.... the proverbial silver lining


Raising money for Epilepsy Action last year. I made up a 24 hour Creative Write-a-thon, where I asked friends and family to sponsor me to write as many short stories as I could in 24 hours. I...


My greatest achievement is winning the Challenge Cup in 2005, when Hull FC beat Leeds Rhinos at the final in Cardiff. I’m a professional rugby player for Hull FC. I’m 28 and live in Hull. I’m...

Challenge cup winner

My greatest ever achievement was taking part in an indoor sky dive.

I'm 10 years old I have had epilepsy since I was 6 years old, and thats when i had to go on medicine. I've now been told...

Indoor Skydive

...changing national policy, so Buccal Midazolam can be administered by social carers.

Our son Aaron was diagnosed with refractorial epilepsy on 2 June 2004. Aaron was on three AEDs and...

Campaigned and saved lives

...qualifying as a social worker.

I qualified in 2004 and I now manage a team of social workers.

I was diagnosed with epilepsy at 19 years old.

My epilepsy has driven me to do...

Julie qualified as a social worker.

…being a “stay-at-home Dad”.

I stay at home to look after both of my small girls because of my epilepsy. There is no way that I would have been brave enough to have given up work to take...

Mark is a 'stay-at-home Dad'!

...writing a play.

I have written a play where the main character has tonic clonic epilepsy and has a major seizure onstage and all the aftermath of confusion, repetition, etc.


Clair has written a play.

...completing my Masters degree, despite surgery.

The title of my degree is 'Digital Art and Technology', it’s an MRes. I haven't gained the qualification yet, but I have just about...

Completed his Masters degree, despite surgery.

...climbing Kilimanjaro.

I've been an epileptic since I was 17 following an accident playing rugby. I'm now 45 and in all that time my greatest achievement has to be when I completed a...

Climbed Kilimajaro

...never letting my epilepsy stop me.

After being seizure free for more than twenty years, I did not have many achievements. Then I suddenly started having seizures again. In that time I...

My greatest achievement is a happy family. I was diagnosed with epilepsy after having a foramen magnum decompression surgery for a chiari 1 malformation in March 2010. Tonic Clonic and Absent...

It's twins

...not letting epilepsy get in the way of anything I plan to do.

I'm Lauren, I'm 24 and from Liverpool. I was diagnosed when I was 19, just after I finished my first year of University. I...


Having a happy life.

Looking back on life there have been many ups and downs and epilepsy has manifested itself in a number of different ways. However, with good support, despite failing...

Not letting epilepsy get in my way Although I have epilepsy, I have tried to never let it stop me from following my dreams. One of my main achievements was having a great time at university, both...

University in Germany and Wales

My greatest achievement was being awarded Chartered Legal Executive status on 23 April this year. Chartered Legal Executives can now become Partners and Judges and therefore stand side by side...

Chartered legal executive York

On the 6th of July 2011, at the age of 16, I became the youngest person in history to complete the National 3 Peaks Challenge solo.

This involved climbing the UK's highest 3 mountains, Ben...

Youngest person in history to complete the National 3 Peaks Challenge solo.

My big achievement happened this year, when I completed a Bsc (hons) Health and Social Care, with The Open University.

The degree itself took six years to complete and a lot of hard work....

Degree triumph

...running my own business making and hiring wigs for TV, Film and Theatre.
Since a young age I'd wanted to work doing wigs in musical theatre and travel luckily at around 20yrs old my...

Runs own business called Wigs up North

My six year old son, Samuel has an undiagnosed seizure condition, and has many varying forms of seizures. He also randomly goes into status epilepticus and has to be hospitalised.


Learned to play a note on his keyboard


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