Epilepsy Action has updated its ‘My mum has epilepsy’ and ‘My dad has epilepsy’ books designed to help parents and carers explain their condition to children aged six years and above.
The updates to the book include a brand new story developed in close collaboration with families affected by epilepsy and medical experts, including a clinical psychologist, an epilepsy specialist nurse and a paediatrician.
Alongside the new story, written by the Epilepsy Action Health Information team, the update also includes new illustrations by Bethany Evelyn.
The book follows Charlie’s story. Sharing more about the content, Alison Tebbutt, health information and research officer at Epilepsy Action said: “Charlie’s parent has been diagnosed with epilepsy. After some honest chats, Charlie now understands that it’s not something to be afraid of, it’s just something to be aware of.
“When you’re ready, Charlie can help you explain what epilepsy is, how it affects you and what children can do if you have a seizure.
“We have lots of information for parents and carers about looking after a baby or young child when you have epilepsy.”
You can download or order a FREE copy of ‘My mum has epilepsy’ and ‘My dad has epilepsy’ on the Epilepsy Action website.
The project was supported by an unrestricted grant from Desitin, alongside funding support from The Peter Courtauld Charitable Trust, the WO Street Charitable Foundation and the De Brye Charitable Trust.
These organisations had no involvement in the development of the book and Epilepsy Action maintains complete editorial control.