Health Secretary Wes Streeting has said he will respond to the Hughes Report’s redress recommendations for families affected by the valproate scandal before the next general election.
Speaking to ITV on Thursday 12 February, the Health Secretary acknowledged how long families have been waiting for support, calling the criticisms a “fair and understandable challenge”.
He said: “I am working actively with colleagues right across government to make sure that we respond to the Hughes Report in a way that’s fair to the victims of this scandal.
“Given how long families have campaigned, I can well understand why they are critical, having waited so long, and I’ve got to take that criticism on the chin.
“I’m sorry to families that they have been waiting this long. I’m asking people to bear with me, but we will get there.”
However, Epilepsy Action said families need “more than warm words”.
Alison Fuller, director of health improvement and influencing at Epilepsy Action, said: “For families affected by sodium valproate this is a matter of urgency given the reality they live with every single day.
“Many have waited years while raising children with complex needs, still hoping for the recognition and support they were promised.
“So, while it is encouraging to hear the Health Secretary, Wes Streeting, stating that he will respond to the Hughes Report, families need more than warm words, they need clarity, a timetable and a clear route to delivery.
“Every acknowledgement understandably raises hope, but when detail doesn’t follow that hope quickly turns back to uncertainty and further despair.
“What matters now is not another statement but action – turning this promise into something tangible, fair and transparent and delivered without further delay.”
Clarity and commitment
The government’s response follows a debate in Parliament on Wednesday 11 February about the Hughes Report, with MPs urging for more clarity and commitment.
MP for Chelmsford Marie Goldman called the response from the government on the issue so far “rubbish, useless and uncaring”.
Epilepsy Action is due to hold a roundtable in March with MPs and Peers to speak about redress for those harmed by sodium valproate.
The roundtable will bring together MPs, patient groups and the Patient Safety Commissioner to discuss a way forward and press the government for a timeline, ensuring patient groups are part of the conversation.
To help urge the government to stick to its promise, download our template letter, add your details and send it to your local MP.
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