My Story
Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.
These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.
Hello. I’m Barbara. Epilepsy has dominated much of my life and that of my family. I developed the condition aged 10 and I was teased throughout my school years. I was also told I'd never follow my...  North London | I’m Jane. When I was diagnosed with epilepsy in 2012, it was a condition I knew almost nothing about. Because of this I felt very embarrassed by my epilepsy and actually a little ashamed. I...  Edinburgh | I am 50yrs old & I have had complex partial epilepsy of the right temporal lobe since my very early 20's. Despite my VNS implant (first one fitted in 2006 & replaced in 2013) &...  Woodhall Spa, Lincs |
My story about childhood epilepsy,  Brandon, Suffolk | Hello everyone my name is Matthew Jackson and I’m 21 years of age and I have had epilepsy since the age 11 I had first ever epilepsy seizure when I was 12 i broken my left foot. At first they didn... Leeds | My name is Andrew Jackson and i have had epilepsy for 39 years since the age of 3 years old through having measles. Nine years ago i had a very serious and life threatening seizure known as Status...  Lincoln |
I've had Epilepsy since the age of two. According to a medical form that's been written by my Adult Epilepsy Nurse, whom, when I looked back recently at some of my old blog posts, introduced me to...  Blackburn, Lancashire, England | I had my first seizure in 2016 but I thought nothing of it. Then 2 weeks ago (10/2/18), I had a tonic-clonic seizure on the bus home from Dublin. Luckily I had three great friends who stayed with...  Belfast | My first seizure starts when i was 13. I was playing on a school field when suddenly i begun to feel dizzy,jerking and my lips moving then feel off the ground. It was very painful. A grand mal...  manila philippines |
My story begins when i suffered from swine flu, i became very ill; i couldn't talk or get out of bed. One night i was lying in bed, a few minutes later i woke up with paramedics and my mum... Stoke on Trent | After the Fit The world, cold and silent as my eyes open for the first time, Portsmouth | I was recently diagnosed with epilepsy in September, after having 3 seizures, 1 at work, 1 in the car driving home from the hospital and 1 in the hospital. I had previously had 2 seizures in April... Somerset |
Well I'm a newby really I had my first fit at the age of 44 whilst out shopping with my wife and son. I had gone into a separate shop and we were going to meet in 20 mins in the sports shop....  SPALDING | When I was 3 yrs old. I remember waiting for my Dad to come home on leave from the R.A.F. I was standing on a chair looking out the window with my Mum. All off a sudden I saw my Dad walking down...  Carterton Oxfordshire | It was August 2001 and I was 11 years old, due to start my first week of high school in 3 weeks.  Belfast |
I had my first seizure when I was 14 years old; I'd never learnt what epilepsy was in the secondary school I attended so it scared me a lot when they kept happening on a daily basis and I couldn't...  Stockport | I was diagnosed with Epilepsy at the age of 14. I found school life extremely difficult as I was constantly sent home after having an episode.  Milton Keynes | I was diagnosed with Epilepsy in May 2016, at the age of 20 years old. I was in my second year of University, I remember walking to a friends house, and the next thing I knew I was lying in the...  Redruth |
Hello I'm Erin and I'm 18 years old. I’ve had epilepsy since I was 13, I was sitting with my mum, younger brother, my step-dad and my two step-sisters watching X-factor in the dark but the...  Stroud | hello my name is Sophie Saugerties | Having had absence seizures since the age of 5, I had my first clonic tonic seizure in school when I was 13, without any warning and I have continued to have them since, although they are well...  Maidstone, Kent |
