My Story
Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.
These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.
I was halfway through my first year of medical school when I had my first seizure. Eight months later I was diagnosed with Temporal Lobe Epilepsy – the day after my 20th birthday.  | My epilepsy is something I’ve always tried to avoid talking about but recently I am embracing being more open about it. I had my first seizure at 14 when repairing my bike, it was a harrowing...  | My son Kai was born with Tuberous Sclerosis Complex and epilepsy due to his tsc. Kai had his first seizure at 4 months old. He had 3 brain operations and went onto a drug trial to help reduce his...  |
Hello, My name is Lauren and I am 25 years old. I was suddenly diagnosed when I was 24 out of the blue. I hope my video uploaded onto youtube will help to inspire people suffering with the...  | My name is Laura and I am 22 years of age. I first got diagnosed with epilepsy at the age of 12. It's a long story from being diagnosed; different medications; tests etc I'll try and keep it short... | The first thing I remember is waking up, surrounded by my mum and a paramedic. I didn’t know what had happened. I couldn’t recognise my mum and I was scared. I looked at the paramedic hugged her...  |
Hi, | I’ve had epilepsy 30 years and it still catches me off-guard. I may have had the condition for a long time, but until the end of 2017, I didn’t really accept it. I ran to Australia and...  Ventnor | I am epileptic, amongst other things, and my health is far from brilliant. But that does not define me. I am Ruth. I am a fighter. I am a warrior. I was diagnosed with epilepsy at aged... Hull |
hi everyone  abergavenny | My name is Rob, I was diagnosed with epilepsy in 2001 when I was 15 and I continued to struggle with the condition right up to around the age of 23 when my brain decided to calm down. Although,...  Ely | I was diagnosed at 18 with epilepsy, I had just passed my driving test and started University. I had Tonic-Clonic seizures having no idea when they were going to happen, I thought it was quite...  Durham |
Hello everyone  Atherton M46 0LJ | I had a grand marl fit about 15 years ago. At the time I worked night's as a staff nurse and suffered more and more migraines but out it down to the work. . Anyway the MIR scan showed a benign...  Rhondda Cynon Taff | I had my first seizure aged 36. I was at work at the time, in a very busy kitchen. I had just pulled a check from the printer, and I was going to read this out to the rest of the kitchen, but... Edinburgh |
I was diagnosed at age 14 with adolescent onset epilepsy. Right away, the conversations in my immediate circle were all focused around how to help me feel "normal." My parents raised me to not...  Kansas | Experienced my first seizure at 9 years old as I was leaving an assembly. It was the most bizaar experience that I still struggle to describe, like every sensation you could imagine all happening...  Penrith, Cumbria | Hi all, Had epilepsy from young age. Have partial seizures/ absence about twice a month.am working .i am sporty playing squash /gym 2-3 times a week. Have had a couple of worse seizures when I...  Birmingham |
I am a 37 yr female who at the age of 14 whilst carrying out a weekend job in a clothing store started to get jerks in my arms whilst serving customers. This was particularly bad when I was...  Exeter | In January this year, I was admitted to hospital after suffering two seizures. It turns out I had CVST (a blood clot in the vein of the brain that caused a stroke). At the time my...  Bristol |
I'm writing because I've had a fantastic weekend however it's made me acutely aware of the...  |
