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My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I was diagnosed with absence epilepsy (then known as petit-mal) when I was 11 years old.

My parents thought I was going to be a difficult teenager as I would look like I was bored when they...

Manchester

Epilepsy is a weird one for me. I’ve had grand-mail seizures since childhood, but I’m very lucky to only have them a few times a year if I manage my lifestyle. I have fits if I don’t sleep, this...

Leeds

Two weeks...
Two weeks... that is how long I've been diagnosed with epilepsy.
It has been a strange couple of weeks. But nothing has changed; I still needed to hand in my dissertation...

Bristol

In August 2014, when I was 25, I had a tonic-clonic seizure whilst driving on the M62. Luckily noone else was involved and apart from a few bumps and bruises I was fine. My car, however, was...

Selby

I was like most young people, drinking and partying. It was my favourite thing to do, longing for the weekend to come and going clubbing.
Although I was drinking excessively, more than I...

Hove

I’ve read so many inspirational stories from people affected by epilepsy, many in such awful ways. Mine is very different…
I was diagnosed with temporal lobe epilepsy in April 2014. I don’t...

Bourne, Lincolnshire

Living with epilpsey for me is hard.. feeling like you can't acheive certain things. Being back on medication was hard, but I'm managing very well. I'm still able to attend college, see close...

Nottingham

I was diagnosed with temporal lobe epilepsy when I was 18 years old. I live with simple partial seizures and tonic clonic seizures. My tonic clonic seizures have reduced from daily to an average...

Rotherham

When I was diagnosed with epilepsy in the 80s it was a big deal at the time - the unknowns, the driving, the swimming, trying to find work. But really wasn't truly a big deal until I had my...

London

I was diagnosed with Epilepsy in February 2018 at the age of 20. I was in my third year of university. I had suffered a few seizures up to this point, but it wasn't until I experienced my third...

Chester

Hello.

My Epilepsy story began in 2003 when I suffered a serious head injury, although the symptoms didn't start to appear until a couple of years later in 2005.
I can't remember...

Keighley

My name is Christina Marshall, and I was diagnosed with epilepsy at the age of 14. I was heartbroken when I received the news because my life became completely different. I had no support from...

London

Hi I'm Lucy. I first found out about my epilepsy at the age of 15. My firat seizure was when I had a friend stopping over at my house. I didn't know that I had a seizure untill I cane round. I've...

Wolverhampton

Hi, my name is Fraser and first became aware of my epilepsy 24 yrs ago after I was attacked walking home one night. The seizures caused by tiredness and stress changed from nocturnal to daytime...

Epsom

I was diagnosed with epilepsy in my early 20's just weeks after getting engaged. It was a difficult time for both of us, but with an upcoming wedding, I concentrated on that rather that the...

Derby

My epilepsy history in 200 words will be challenging! I could write 200 words on my first seizure!
I had my first seizure at the age of 13. To this day we have no idea why! My seizures have...

Epilepsy has made life difficult. I was first diagnosed with Epilepsy when I was 14, I'm 21 now. Being a young girl and hearing that diagnosis is extremely difficult to deal with.

The day...

Walsall

I was diagnosed with Epilepsy in 2006, at the age of 10 years old. During my last year of primary school, looking forward to my high school years. And from then on all, all that has done has...

Barratt

I've had seizures since I was 9 months old. Mum was constantly being told they were breath holding attacks or just the temperature during summers. I've had them on and off ever since. I'm now...

Swaffham

I was diagnosed with Epilepsy at the young age of 12, just going into my first year of secondary school. I remember sleeping in the living room with my mum and the next thing I knew I was in the...

Wellingborough

Imagine you’re sat in a cafe with friends,
Enjoying your coffee, pouring over the latest trends,

Everything is fine, normal is how you feel,
No one would look at you and think...

Bristol

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