My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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Hey I’m Katie

I have suffered with epilepsy since I was 8 years old, I was diagnosed with Nocturnal epilepsy. I had seizures while sleeping which were grandmal seizures.
I was put...

Warrington Cheshire

For #VolunteerWeek2020, Sara has shared her story of volunteering with Epilepsy Action.

“I have been a volunteer with Epilepsy Action for around twelve years and in 2015 became an...

Hi, my name is Lee, living in England with my own property at Great Barr of Birmingham, now being 49 there are many things seen but plenty more of which wanting for seeing in large hopes having so...

Birmingham

This is Robyn, she is 4 1/2 yrs old. She is still under investigation for epilepsy after almost 2yrs of having the episodes.

It is a bit difficult with her as the specialists strongly...

Llandovery, Wales

Hi my name is Holly McCallum, this is my story.

I was first diagnosed back in 2015 with epliepsy, and to be honest I did not how to feel or how I was going to get though it all.

The...

Birmingham

My name is Barbara and I am Italian.

I am on the autistic spectrum, and due to violent traumas during my childhood, I am epileptic.

The episodes started in my teenage years and up to...

Italy

My name is Molly, I was diagnosed with right temporal lobe Epilepsy when I was 14. After having a seizure in a swimming pool and nearly drowning I became really scared of having Epilepsy and how...

South Wales

My name is Cristyn, I first started with Epilepsy when I was 3 years old until I was 7.

I had tonic clonic seizures but as I was so young I can’t remember it ever affecting me. However, at...

North Wales

Hi my names Sharon I’ve had epilepsy since the age of 18 months old. As a child I didn’t have it easy as I was bullied at school, it continued for ages and I struggled with school as I missed out...

Southport

MY EPILEPSY JOURNEY BLOG

This blog is when I got first diagnosed with childhood juvenile absence epilepsy. When I turned 5 years old the start of it was when I was just ignoring my...

Waterlooville

I was in the army for 12 years then costruction industry for 45 years. One night I had a memory loss, I couldn't speak or answer my wife, I had slid off a chair.

My wife phoned the hospital...

Lossiemouth moray Scotland

Hi All. I had my first seizure aged 45 it came totally out of the blue and totally changed my life.

I had a Tonic seizure which lasted about five minutes and put me in hospital for two...

West Mids

Hello my name is Natasha, I am 31 years old.

I randomly began having seizures aged 21, ten years ago, I was put on Keppra and diagnosed with Generalised Epilepsy.

I really need and...

Bradford

Hi my name is Gemma and I suffer from myclonic and tonic-clonic sezuires.

I was in year 7, aged 11 when I had my first seizure, I was in a French lesson writing something on a interactive...

Hertfordshire

I was diagnosed with epilepsy when i was 6months old. I recovered at the age of 11 but it came back at my final year in high school, back in 2015. It was a bad year for me in that I lost my...

Nairobi - Kenya

I was in year 5, on holiday, in Egypt. My family and I slept in the same room and during the night they would hear things from my side of the room.

It was in fact me having little seizures...

Danbury

Erin was diagnosed with absence epilepsy at age 8 when her teachers noticed her friends tapping her head to ‘wake her up’ in lessons. At high school, she was regularly told off for not...

As a child, Anky would regularly have generalised, focal and tonic clonic seizures. Growing up in India also made life difficult, due to the stigma and lack of knowledge surrounding epilepsy....

Surrey

Patience was diagnosed with epilepsy five years ago, when she was 14. She has both tonic clonic and focal seizures, sometimes two or three a week.

She’s speaking up this Purple Day to let...

Harry was diagnosed with epilepsy in 2018, when he was 17. “I have focal seizures where my arm and hand locks up and is unable to move. I'm still conscious but unable to speak or anything. This...

In 2016 I was arguably at the top of my game in terms my chosen career. I had served 26 years in the police service predominantly working within the world of tackling serious and organised crime....

Kidderminster

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