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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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Brain and Tissue Donor
hopefully donate their Brain and Tissue after they pass away. After having epilepsy since 1979 when I was three years old i thought i really would like to look into it...

Lincolnshire

I found out I had epilepsy when I was 9, so I’ve had it for 11 years now.

It all started out when I was just having blackouts, absence seizures, no-one thought anything of it as my dad...

Derby

I'm Ruth and this is my daughter Starla. We both have epilepsy. I was diagnosed at the age of five. But I've found Starla’s diagnosis difficult to deal with.

After living with epilepsy my...

Hi. I'm Kirstin and this is my daughter Esme. She has absence seizures and photosensitive epilepsy. This can sometimes make her extremely tired, lose concentration, or bring on headaches and...

Hello. I’m Barbara. Epilepsy has dominated much of my life and that of my family. I developed the condition aged 10 and I was teased throughout my school years. I was also told I'd never follow my...

North London

I’m Jane. When I was diagnosed with epilepsy in 2012, it was a condition I knew almost nothing about. Because of this I felt very embarrassed by my epilepsy and actually a little ashamed.

I...

Edinburgh

I am 50yrs old & I have had complex partial epilepsy of the right temporal lobe since my very early 20's. Despite my VNS implant (first one fitted in 2006 & replaced in 2013) &...

Woodhall Spa, Lincs

My story about childhood epilepsy,
I remember going up to my new middle school 11 years ago (24 now) at 13 I didn't understand what was happening. I would just go into a daze, spill drinks...

Brandon, Suffolk

Hello everyone my name is Matthew Jackson and I’m 21 years of age and I have had epilepsy since the age 11 I had first ever epilepsy seizure when I was 12 i broken my left foot. At first they didn...

Leeds

My name is Andrew Jackson and i have had epilepsy for 39 years since the age of 3 years old through having measles. Nine years ago i had a very serious and life threatening seizure known as Status...

Lincoln

I've had Epilepsy since the age of two. According to a medical form that's been written by my Adult Epilepsy Nurse, whom, when I looked back recently at some of my old blog posts, introduced me to...

Blackburn, Lancashire, England

I had my first seizure in 2016 but I thought nothing of it. Then 2 weeks ago (10/2/18), I had a tonic-clonic seizure on the bus home from Dublin. Luckily I had three great friends who stayed with...

Belfast

My first seizure starts when i was 13. I was playing on a school field when suddenly i begun to feel dizzy,jerking and my lips moving then feel off the ground. It was very painful. A grand mal...

manila philippines

My story begins when i suffered from swine flu, i became very ill; i couldn't talk or get out of bed. One night i was lying in bed, a few minutes later i woke up with paramedics and my mum...

Stoke on Trent

After the Fit

The world, cold and silent as my eyes open for the first time,
The sensation of pain creeps slowly across my body,
My eyes flicker as the blood cries out for...

Portsmouth

I was recently diagnosed with epilepsy in September, after having 3 seizures, 1 at work, 1 in the car driving home from the hospital and 1 in the hospital. I had previously had 2 seizures in April...

Somerset

Well I'm a newby really I had my first fit at the age of 44 whilst out shopping with my wife and son. I had gone into a separate shop and we were going to meet in 20 mins in the sports shop....

SPALDING

When I was 3 yrs old. I remember waiting for my Dad to come home on leave from the R.A.F. I was standing on a chair looking out the window with my Mum. All off a sudden I saw my Dad walking down...

Carterton Oxfordshire

It was August 2001 and I was 11 years old, due to start my first week of high school in 3 weeks.
It all started in the hall.... everything went black and the next thing I remember was waking...

Belfast

I had my first seizure when I was 14 years old; I'd never learnt what epilepsy was in the secondary school I attended so it scared me a lot when they kept happening on a daily basis and I couldn't...

Stockport

I was diagnosed with Epilepsy at the age of 14. I found school life extremely difficult as I was constantly sent home after having an episode.
At the start of my diagnosis I thought that I...

Milton Keynes

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