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of everyone affected by epilepsy

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I began having full seizures when I was 27 years old, about 15 years ago, following a bout of flu and resulting sinus infection. The seizures happened in my sleep and lasted for up to a minute,...

My name is Alice Jackson, I am 18 years of age. I have cerebral palsy and suffer from tonic clonic seizures.

I was first diagnosed with epilepsy at 18 months, I had my second seizure...

Southport

Hi, I'm Anja Warneke, from Bremen in Germany, and I want to write about my epilepsy.
When I was seven years old had a brain injury. It happened in a village on the cyclist way beside the...

Ben King nominated his wife Rachael for everything she does to raise awareness about epilepsy. Their three children all live with the condition. Their eldest son Jenson, seven, was diagnosed with...

Aislinn Carlile volunteers for the Epilepsy Action Ballynahinch coffee and chat group in Northern Ireland. Located in a rural area, the group gives people affected by epilepsy a much-needed...

Nansi Thomas is five and has temporal lobe epilepsy, having several seizures day and night. She was finally diagnosed at the age of three after a long time of suspected epilepsy.  Nansi’s...

Dr Daniel Hindley works at Bolton Foundation Trust. A paediatric consultant and clinical lead in community paediatrics, he has interests in childhood epilepsy and neurodisability...

Ladies Circle is a networking organisation for women aged between 18 and 45, founded in 1936. The friendship group runs around 120 different clubs nationwide, and is all about having fun,...

Bartuf is a family owned Yorkshire business founded in 1995 and based in Armley, Leeds. They are one of the UK’s leading designers, manufacturers and suppliers of innovative retail display...

Jenson, aged seven, has absence seizures on a regular basis, as well as tonic clonic, focal and atonic seizures. William, five, not only has absence, partial and tonic clonic seizures but also...

Francesca was 14 when she had her first seizure out of the blue, on a sailing holiday in France.  She has multiple types of seizures, including tonic-clonic, myoclonic and absence seizures....

Amrit’s epilepsy story began when she was just three days old. When she was little doctors said she had myoclonic jerks – this was when her left arm or leg would twitch for no reason. Then she...

I had my first seizure when i turn 16, i didn't know what's going on with me the second seizure change my life! when i was opening door to go ou with my gf i get seizure fold to ground, the fold...

I contracted meningitis back in August and have since acquired epilepsy which at 40 year old has been a difficult thing to come to terms with. I have tonic seizures of which i have had five and...

I was 11 when I was first diagnosed with Epilepsy. I am now 13 and we don't know for sure what triggers cause it. It is hard because sometimes I lose some memory so it is a struggle around tests...

My daughter aged 13 has just been diagnosed with Jeavons syndrome a rare epileptic condition. I would love anyone who has it or knows someone who has it to get in contact with me.
This is...

I was diagnosed with temporal lobe epilepsy when I was 69.
I had several seizures in Aand E and the whole experience was very frightening. I experienced dejavu and hallucinations. When I was...

In 2014 I had my first sezuire. I was 9 at the time. One break I came into the class library area and suddenly fell asleep, 2 other students were there, after break I was still asleep and didn’t...

* Trying to make the world a safer place for people with photosensitive epilepsy *

Hello, I’m Alex, a computer science student from Greece, the country of deep economic crisis

I...

I had my first seizure in the early morning of my 14th birthday. All I remember from that morning was a bright light in my eyes. A few weeks later I went to a sleep over & ended up having...

Ryan started having seizures as a young child, but went for five years without an official diagnosis of photosensitive epilepsy.

“It’s thought I developed my epilepsy as early as 7 but it...

Scotland

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