My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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My name is Katie, this is my story of my Epilepsy Journey and how running has changed my life i want to share my story to try to raise as much awareness as possible and to also show what can be...

I was diagnosed with Epilepsy in February 2018 at the age of 20. I was in my third year of university. I had suffered a few seizures up to this point, but it wasn't until I experienced my third...

Chester

My son Ian Broad had an accident 13 years ago he fell and hit his head while fooling about with his friends it left him with epilepsy and it was at times quite bad but he wanted his own space and...

Stoke on Trent

Up until 3 years ago, I didn't know much about epilepsy. The only time I had ever encountered anything to do with epilepsy was back in Primary school, where I had a friend whose Dad had epilepsy....

New Milton

Hiya. Sorry I'm very new to this. So I apologize if I mess up a bit. I contracted epilepsy after my car accident when I was 4 months old where I suffered a fractured scull and brain damaged. I...

Riding the Waves of Epilepsy

The storm has passed. My only hope is that it never shows its ugly face again.

On the 24th of June 2020 I have experienced one full year with no...

East Kilbride

What I wish I could still say...

I've written here many times throughout the last 6 years but not so much recently because I'm fine and seizure free but actually today I realised there are...

Halifax

This poem was an entry in Epilepsy Today's first-...

Just like anyone else during these challenging times, I’ve been worried about getting the dreaded coronavirus.

Although epilepsy hasn’t been officially classed as making people more ‘at...

As part of National Epilepsy Week, I wanted to open up about my journey with Epilepsy. It all started a few years back when I woke up and suffered from these 'jerk' like moments, which in August...

Surrey

I was diagnosed with epilepsy from the age of 7 until I reached 35 of age my condition has become worse I would have absent seizures and falls in public and at home and This effected my work and...

London

I was on dla for 19 years then it changed to pip system. Since then we got refused via the assessment as they didn’t apply bye the law that the upper tribunal made in 2017 to do with mobility and...

Leicestershire

I was diagnosed with epilepsy at the age of 14 and am now 22 years old. Naturally there’s been some horrible sides to having this illness, I’ve been admitted to hospital countless times, spent...

Manchester
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I was diagnosed with Juvenile Myoclonic Epilepsy when I was 12. I remember feeling underwhelmed; I didn't really fully grasp how it might impact my future life. When I was transferred to adult...

Hello.

My Epilepsy story began in 2003 when I suffered a serious head injury, although the symptoms didn't start to appear until a couple of years later in 2005.
I can't remember...

Keighley

...never letting my epilepsy stop me. After being seizure free for more than twenty years, I did not have many achievements. Then I suddenly started having seizures again. In that time I have made...

I was diagnosed with epilepsy when I was 3 years old. At the age of ten, I was admitted to hospital with my epilepsy. When I was in hospital it was then I decided I wanted to become a nurse. I...

Became a nurse despite the odds

I had my first seizure after a bump to the head from my bf (accident), a few months later i had a couple more over a period of 24 hours and possibly one in between. In honesty they arent a scary...

Spalding

I was diagnosed with Epilepsy in May 2016, at the age of 20 years old. I was in my second year of University, I remember walking to a friends house, and the next thing I knew I was lying in the...

Redruth

The first thing I remember is waking up, surrounded by my mum and a paramedic. I didn’t know what had happened. I couldn’t recognise my mum and I was scared. I looked at the paramedic hugged her...

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