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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I had just graduated from university in 2005, I was hoping to move on to a teacher qualification when my had my first tonic clonic seizure. It didn't stop me and went back to university in the...

Croydon

Just like anyone else during these challenging times, I’ve been worried about getting the dreaded coronavirus.

Although epilepsy hasn’t been officially classed as making people more ‘at...

How the first positive word spoken to me in 18 years of dementia, started during 12 years of epilepsy and 50 years of diabetes has freed me from the effects of my brain disabilities, so that I can...

Cambridge

I am Amy, I’m 23 from Hertfordshire and I have suffered from Epilepsy since November 2016.

I was completely seizure-free until I was 19 and suffered my first ever seizure. I still haven't...

Hertfordshire

Hi, I'm Keiran

Photosensitive Epilepsy is a small part of who I am, it's part of my day-to-day life. It's something that, for a long time, I felt had a huge, negative impact on almost every...

Merseyside

I was diagnosed with temporal lobe epilepsy a couple of weeks after my 40th birthday in 2011 when, completely out of the blue, I experienced a huge seizure at my desk at work.

Following two...

Croydon

My name is Naho Tamura. I am an ex epilepsy patient who had recently published my patient story on American Epilepsy Journal, Epilepsia.

I suffered Childhood Absence Epilepsy (CAE), onset...

Tokyo

"2016 will be 10 years (+1 day!) since I ran my first marathon, a lot has happened since then."

Lizzie has epilepsy. She had her first tonic-clonic seizure in 2010 while...

I would just like to say to anyone who is looking at information about Aicardi Syndrome, that the information on this site is very informative and gives a clear, true overview of the syndrome....

Sheffield

I grew up with Epilepsy.
Some people laughed; some people had no idea what it was or what to do; only a few people helped when I fitted - but not enough people know what it is.
I can...

Milton Keynes

I was diagnosed with photosensitive epilepsy when I was 14, which really got me down for some time. I hated having seizures as they always made me feel awful afterwards, and each time I had one it...

London

Passing my cache level 2 in pre school practice and having my two lovely boys

Northampton

I was diagnosed with epilepsy when I was 4 years old. However when I was a baby there was several incidents where my mum and dad suspected I had epilepsy. When I was first diagnosed I could have...

Francesca was 14 when she had her first seizure out of the blue, on a sailing holiday in France.  She has multiple types of seizures, including tonic-clonic, myoclonic and absence seizures....

Hey I’m Katie

I have suffered with epilepsy since I was 8 years old, I was diagnosed with Nocturnal epilepsy. I had seizures while sleeping which were grandmal seizures.
I was put...

Warrington Cheshire

As an Epilepsy Action Accredited Volunteer, Kenny Borland is trained to deliver epilepsy awareness presentations. He has been volunteering his time since 2013.

Kenny first considered...

I was born with epilepsy and always was having seizures, and as I've grew up my seizures got worse, and after being on more than 3 different types of medicine for my type of epilepsy to try and...

Epilepsy is a rotten neurological condition but never let it stop you living life to the full.

Sadly we lost our elder daughter, Carla at 27 when she didnt recover from a seizure ... She...

Macclesfield

I never thought I would have a medical condition which made such an impact on my life. You see, to the naked eye, I am your normal 22 year old girl. The thing is, I have to take 6 tablets a day to...

Woking, Surrey

I first had a seizure about 10 years ago ( I am a young 52). It was a real shock.

I had two more seizures within 3 months. All at home. Then I was seizure free for five years.

After...

Cuerden

I am 48 and was diagnosed with Partial Seizures 6 weeks ago. This has been an emotional experience and I am still adjusting, sites like this help a lot.

I am a Psychiatric Nurse, I have...

Eglinton, Northern Ireland

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