My Story

Add your own

Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

Most recent | Most read

Hi my name is Nick and I am a 37 year old record producer from Bristol, South West UK, and I have epilepsy.

My seizures are what they call focal seizures which mean the left side of my...

Bristol

Diagnosed this week (two days before my 67th birthday) with epilepsy following two recent events at home. Huge relief to find out what’s been happening; after extensive tests and scans the...

Rylstone

I had a few very seriously knocks to my head growing up from leading a active life. From age 18 I would get intense episodes of knowing what was going to happen in the immediate future. I was...

Wellington , New Zealand

I started having seizures in 2015, when I was at uni studying marine biology. At the time it put a downer on things, as it stopped me from being able to dive. I thought I was never going to become...

My epilepsy history in 200 words will be challenging! I could write 200 words on my first seizure!
I had my first seizure at the age of 13. To this day we have no idea why! My seizures have...

Maureen runs the successful Epilepsy Action Coffee and Chat group in Norwich. Under her care, the group has grown in size and now has a wide range of people attending. Maureen is also an Epilepsy...

Jane Riley currently volunteers as a member of Epilepsy Action’s Council of Management, but her volunteering story goes back much further than that. Jane has been an Epilepsy Action Information...

I was diagnosed with Epilepsy in May 2016, at the age of 20 years old. I was in my second year of University, I remember walking to a friends house, and the next thing I knew I was lying in the...

Redruth

You have so many plans for the future and when they gradually start to fall apart you wonder if you can carry on.

I had my first seizure when I was 27. I'd started temping as an...

Andover

Fraizer is 7 and was diagnosed with epilepsy in September this year. He has focal onset epilepsy with focal to bilateral tonic clonic seizures. “He had his first seizure in May and it absolutely...

Following a 10 hours of life saving Craniotomy surgery in Sept 2001, and a follow up op in Dec 2001, I'd spent the next 5 or so years rehabbing, living as normal life as i could with an 11 inch...

I had my first seizure in 2016 but I thought nothing of it. Then 2 weeks ago (10/2/18), I had a tonic-clonic seizure on the bus home from Dublin. Luckily I had three great friends who stayed with...

Belfast

I developed epilepsy in my early twenties when I had a small seizure while driving. I went to hospital to get checked out and was diagnosed.

Further tests showed I’d a partial seizure and...

Northern Ireland

I was diagnosed when I was about 4 years old, it took doctors four years to diagnose me with Epilepsy.

I was having seizures off the bat and my neurologist was trying to figure out...

When I was 2 I had a febrile seizure, I stopped breathing and turned blue. My mom gave me mouth to mouth and by the time the EMTS arrived I stopped seizing. As i grew from baby to toddler, my...

I've had Epilepsy since I was about 6 years old, and I've had varied seizures and been on numerous medications. I'm now 29. One major change in my epilepsy was my seizures moving from day time to...

London

“I had my first tonic clonic seizure in March 2018, when I was asleep in bed. I realised how serious things were when there were two paramedics standing over me in my bedroom putting an oxygen...

Northern Ireland

Having a happy life.

Looking back on life there have been many ups and downs and epilepsy has manifested itself in a number of different ways. However, with good support, despite failing...

I was just diagnosed with Epilepsy on 2/23/17. I have JME. I used to have mini seizures that just looked like jerks of my arm almost every morning and sometimes late at night. I had my first...

jme

I'm 3 years diagnosed and I'm using this as a sort of therapy .....a form of epilepsy may cripple you but I'll never stop promoting our strengths. ...... I live very happily but I deal with my...

After the Fit

The world, cold and silent as my eyes open for the first time,
The sensation of pain creeps slowly across my body,
My eyes flicker as the blood cries out for...

Portsmouth

Pages