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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I was diagnosed with epilepsy when I was 7 years old however my experience with seizures date back to before I was even one year of age. The seizures of the time were discovered to be a symptom of...

Shropshire

I've had Epilepsy and a damaged memory since 1982 and tried many medications. None gave me the self control I now have. I'm becoming more aware of warnings since using a VNS device. Doing a few...

Tunbridge Wells

From the age 14, I'd get ready for school in the morning and have a cup of tea. My arm would jerk slightly. I thought it was normal. I just carried on with my day.

That happened for years...

Chesterfield

Jonny’s girlfriend, Sara, was diagnosed with epilepsy in 2014 after having a tonic-clonic seizure at V Festival. Over the last 18 months, she has tried a number of epilepsy medicines but they have...

I have a form of Epilepsy called JME (Juvenile Myoclonic jerk Epilepsy) which I was diagnosed with in my late teens.
I had my first full blown seizure at 12 and my second at 15.
My...

Abergavenny

I had my first seizure in the early morning of my 14th birthday. All I remember from that morning was a bright light in my eyes. A few weeks later I went to a sleep over & ended up having...

Jimi was diagnosed with epilepsy when he was three years old. In this short video, watch Jimi rush about busily, in the way that children do. His mum talks about the impact that his epilepsy has...

becoming the first ever female professor of astrophysics at University of Warwick at age 39!

Sandra was diagnosed with temporal lobe complex partial seizures in 1980, during her...

First female professor of space & astrophysics at Warwick University

i was diagnosed with absent seizures when i was 4 my teacher as the first one do noticed them, i am now 14 and are still having them and they are getting a lot better i used have them for 15-20...

andover

I am Amy, I’m 23 from Hertfordshire and I have suffered from Epilepsy since November 2016.

I was completely seizure-free until I was 19 and suffered my first ever seizure. I still haven't...

Hertfordshire

During the 2014 Purple Day campaign, Megan (18) shared a photo of her black eye. She received the injury during a seizure – but can’t be sure how it happened. Today, Megan is enrolled at...

* Trying to make the world a safer place for people with photosensitive epilepsy *

Hello, I’m Alex, a computer science student from Greece, the country of deep economic crisis

I...

Hi , I was diagnosed with temple lobe epilepsy when I was quite young and had many seizures at primary school but the meds that I was on helped me to out grow my epilepsy but I would love to help...

Bicester oxfordshire

I was diagnosed with epilepsy when I was 4 years old. However when I was a baby there was several incidents where my mum and dad suspected I had epilepsy. When I was first diagnosed I could have...

“I used to be scared of the seizures, but my worst fear now is the side effects of the meds and condition.”

“I wish people could see what else happens to me outside of the 20 seconds to 2...

Most people don't understand what epilepsy is all about, some think you have a 'fit' oh poor you have a cup of tea or a glass of water and you can get on with your day, this is so far from what...

Bracknell Berkshire

My one wish is for people to realise that even with epilepsy you still have the potential to be a "healthy" human and with the right mindset you can achieve anything. I feel having...

It all began when I was 16, I fell in the washroom and bit my tongue.

This fall was dismissed as iron deficiency at first but when the frequency increased and eeg, CT, MRI were done,...

India

My first seizure happened when I was 17 in 1998. I was up very early to go on my first ever lads holiday abroad, during a shower I remember jerking and then to what I later discovered was my first...

Chesterfield

My six year old son, Samuel has an undiagnosed seizure condition, and has many varying forms of seizures. He also randomly goes into status epilepticus and has to be hospitalised.

Samuel...

Learned to play a note on his keyboard

My epilepsy history in 200 words will be challenging! I could write 200 words on my first seizure!
I had my first seizure at the age of 13. To this day we have no idea why! My seizures have...

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