My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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"2016 will be 10 years (+1 day!) since I ran my first marathon, a lot has happened since then."

Lizzie has epilepsy. She had her first tonic-clonic seizure in 2010 while...

Becky’s first seizure happened in February 2018 when her son found her on the bedroom floor. Medical tests came back inconclusive and she was told it was a one- off. Six months later, Becky was...

Hi All. I had my first seizure aged 45 it came totally out of the blue and totally changed my life.

I had a Tonic seizure which lasted about five minutes and put me in hospital for two...

West Mids

At the age of just seven years old I was diagnosed with chronic epilepsy.

Throughout the years it progressed and got worse. My right side weakened as I got older, they found a piece of...

Tamworth NSW

We are proud parents of daughter Lucy who is 6 today. She was born with Hemiplegic Cerebral Palsy and developed Epilepsy at 2 yrs old. She is a bubbly, talkative little girl and has such a can do...

Ashford, Kent

I have decided i want to take part in Tough mudder this year to help raise money and awareness for epilepsy. Last year i met the love of my life and we have been on an incredible journey and are...

Eagle

I am 48 and was diagnosed with Partial Seizures 6 weeks ago. This has been an emotional experience and I am still adjusting, sites like this help a lot.

I am a Psychiatric Nurse, I have...

Eglinton, Northern Ireland

I've had seizures since I was 9 months old. Mum was constantly being told they were breath holding attacks or just the temperature during summers. I've had them on and off ever since. I'm now...

Swaffham

My daughter angelica has had seizures since age 2 and now not only in past has many grandma seizures now age 10 absent seizures few times a day.

living with this this epilepsy is such a...

bose

Hello,

My name is Lauren and I am 25 years old. I was suddenly diagnosed when I was 24 out of the blue. I hope my video uploaded onto youtube will help to inspire people suffering with the...

I have always had epilepsy so have never known anything else. It was caused by a stroke at birth so It's just part of my life. Having seizures growing up was tough, whenever an aura started I knew...

Pontypool

The moment I knew I was pregnant

Surely this can’t be right!! What were the instructions again? Does that blue line really mean…?

I was expecting it to take at least...

“Theo started to have what we could only describe at the time as ‘funny turns’. He would often describe a tingling sensation in his teeth, before losing control of his speech and muscle movements...

Although now cured by neurosurgery, Tristan suffered from uncontrollable seizures for much of his life.

Tristan feels that his greatest achievement was his perseverance until he found a job...

Coventry

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