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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I have not always suffered from epilepsy and I left school, started work, learned to drive etc as most people. I was then affected by epilepsy and the inability to drive plus the feeling of "being...

Derby

I had my first seizure in the early morning of my 14th birthday. All I remember from that morning was a bright light in my eyes. A few weeks later I went to a sleep over & ended up having...

I had my first seizure after a bump to the head from my bf (accident), a few months later i had a couple more over a period of 24 hours and possibly one in between. In honesty they arent a scary...

Spalding

Hi my name is Kate I'm 34 and I have been off my medication for a year now after being on it 20 years.

I am seizure free for around ten years. I have had the worst time of my life as I lost...

Stafford

So here's my story of my epilepsy.

Through childhood I had a few partial seizures that my parents were told I had epileptic tendencies but they didn't know if they would develop or not....

Newport

Brain and Tissue Donor
hopefully donate their Brain and Tissue after they pass away. After having epilepsy since 1979 when I was three years old i thought i really would like to look into it...

Lincolnshire

Our lives completely changed on the 21st December 2017.

I was having breakfast with my 2 year old daughter Eve before we set out to her playgroup Christmas party. As I spoon fed her...

Glenrothes

I am very proud to say my name is Paris and I am 17 years old, I live with my parents Julee and graham and my younger sister britanny.  I have uncontrolled epilepsy and have had it since I...

Loftus, Cleveland uk

My name is Alexandra, I am nearly 30 years of age and I live near Portsmouth.

At the age of 4 and half I was with my mum, dad and brother Angus staying with my grandparents in Scotland. One...

Portsmouth, Hampshire, England

I was diagnosed with Temporal Lobe Epilepsy 10thFebruary 2016. I am finally starting to come to terms with the condition and having to take medication everyday. I have not yet gained control over...

Tough Mudder, Yorkshire 2016

I was diagnosed at 18 with epilepsy, I had just passed my driving test and started University. I had Tonic-Clonic seizures having no idea when they were going to happen, I thought it was quite...

Durham

Harry was diagnosed with epilepsy in 2018, when he was 17. “I have focal seizures where my arm and hand locks up and is unable to move. I'm still conscious but unable to speak or anything. This...

An epilepsy specialist nurse at the Princess of Wales and Neath Port Talbot hospitals, Lisa says, “I have decided to set myself some challenges for my 50th birthday year. This will be my 14th...

Port Talbot

Becoming a mummy & also having a short film made about myself to raise awareness of epilepsy.
I have had uncontrolled epilepsy since the age of 10 (both Tonic Clonic, once a week or...

Shrewsbury

I was first diagnosed at 16 & my epilepsy was unremarkable - medication gave me good control. I worked & went about my life without a second thought. Suddenly it all changed. When I was 21...

Rainham

I have had juvenile myoclonic epilepsy for nearly 15 years and to be honest it does bring me down every time I get that feeling that im going to fall into a seizure.

im now at the age where...

Morden

Hello I'm Erin and I'm 18 years old.

I’ve had epilepsy since I was 13, I was sitting with my mum, younger brother, my step-dad and my two step-sisters watching X-factor in the dark but the...

Stroud

Planning

I did not have any pre-conception counselling before I fell pregnant with my first child. Louie was a surprise!

As soon as I found out that I was pregnant I...

In 2014 I had my first sezuire. I was 9 at the time. One break I came into the class library area and suddenly fell asleep, 2 other students were there, after break I was still asleep and didn’t...

Planning

I was aware that as and when I wanted to have a baby, I should discuss my plans with my GP and (if necessary) a neurologist. I had assumed at least a six month...

I have been having seizures for around ten years now, my husband, family and friends are all aware of the procedure should they witness me having a seizure.

My little girl Esme has recently...

Derbyshire

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