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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I started having seizures in 2015, when I was at uni studying marine biology. At the time it put a downer on things, as it stopped me from being able to dive. I thought I was never going to become...

...being elected the MP for Blackpool and North Cleveleys. I am in a unique position of being able to highlight a variety of disability issues, and I hope this means that groups of people whose...

Paul is a Member of Parliament

I've had Epilepsy since I was about 6 years old, and I've had varied seizures and been on numerous medications. I'm now 29. One major change in my epilepsy was my seizures moving from day time to...

London

Maureen Taylor and David Streets have been key in the development of the Sheffield Branch of Epilepsy Action, which was initially set up in 1989. It is now one of the most consistently best...

Sheffield

I'm Ojijo from Kenya. My attacks came back at the age of 18 after 9 good years of being stopped from using my first drugs "phenobabyton" - I was sent for an EEG and results showed that I had...

Kenya

Hello my name is Jessica, I have jme epilepsy.

I have had it since I was a child, although I got diagnosed at aged 13. When I first got diagonised I was confused, angry and felt completely...

South Shields

To begin, I must go back to my early teenage years, when I started having unexplained accidents that I couldn’t remember the cause of.

At the time I had my ears checked for any inner ear...

I was born with epilepsy and always was having seizures, and as I've grew up my seizures got worse, and after being on more than 3 different types of medicine for my type of epilepsy to try and...

When I was diagnosed with epilepsy in the 80s it was a big deal at the time - the unknowns, the driving, the swimming, trying to find work. But really wasn't truly a big deal until I had my...

London

Living new life with Epilepsy.

When I last saw my Epilepsy specialist many months ago at a hospital, she suggested I change one of the medications I've been taking for many years to a more...

Tunbridge Wells, Kent

This poem was the winning entry in Epilepsy Today...

This poem was an entry in Epilepsy Today's first-...

This will be my 3rd London marathon, and this year I am raising money for Epilepsy Action.

I know there are many worthy causes and with so many charities to donate to these days, it makes...

Epilepsy Action Hero - London Marathon 2014

My name is Naho Tamura. I am an ex epilepsy patient who had recently published my patient story on American Epilepsy Journal, Epilepsia.

I suffered Childhood Absence Epilepsy (CAE), onset...

Tokyo

I was diagnosed with stress-induced epilepsy aged 37 following an assault at work. After a few years to get it under control and a few hiccups along the way I have finally come to terms with the...

Peak District

My name's Emily Sian Donoghue, I'm a 22-year-old living in England, turning 23 this year. 

I am working hard to keep up a growing community of people who wish to...

Derbyshire

I was diagnosed with temporary lobe epilepsy 2 years ago and thank goodness I haven't had a seizure since I left hospital.

I am on vimpat medication twice daily, 100mg morning and night....

Ireland

I had my first seizure at the age of 13 in Disneyland Paris. Nothing happened again until 17, at which point I was having tonic clonic seizures every day, without any warning, whilst trying to...

South Wales

My name is Amy Bassett, I am 22 years old, I live in South Wales, I study Psychology with The Open University and I have had Epilepsy for about 4 and a half years now. In July 2013 I ended up in...

Pontypridd

I have been living with epilepsy for 11 years now, it's been a struggle at times and finding the strength to talk about epilepsy to people who don't understand the condition is heartbreaking...

Suffolk

My first seizure came completely out of the blue in February 2019. Since then, I’ve gone on to have over 170 more. But EEG tests showed no seizure activity linking to epilepsy. A letter initially...

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