When I was a teenager, I was given the medication sodium valproate and suffered the symptoms of polycystic ovary syndrome – acne, weight gain, irregular periods, and...
My Story
Add your own
Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.
These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.
I have suffered from epilepsy since the age of 18 months when I fell and hit my head on a table leg. I was at the toddler age and into everything!  Rochford | I first had a generalised seizure when I was around 14/15 and I remember it so well. It was, quite obviously, one of the scariest moments of my life. I fell because I was experiencing Deja...  Manchester | I was diagnosed with a epilepsy at the age of 7, a normal day I was sitting watching TV eating a baby bell and it happened. Full blown seizure. Never have in ever touched a baby bell since, even...  Surrey |
I was diagnosed with absence epilepsy (then known as petit-mal) when I was 11 years old. My parents thought I was going to be a difficult teenager as I would look like I was bored when they...  Manchester | I was 12 when I was first diagnosed with Epilepsy. I am not 18 almost 19 and we still have not been able to find out why I have Epilepsy. It is hard for me because I have lost some memory do to my...  | MY EPILEPSY JOURNEY BLOG This blog is when I got first diagnosed with childhood juvenile absence epilepsy. When I turned 5 years old the start of it was when I was just ignoring my... Waterlooville |
When exactly is an appropriate time to tell people that you are gay? Why is it necessary? When is it a good time to tell them about your epilepsy? Is it any of their business? Neither are...  | Having Epilepsy for sixty five years I went to writing school after early retirement BRAMPTON CUMBRIA | This poem was an entry in Epilepsy Today's first-... |
I was diagnosed with epilepsy when I was two. My memories of being epilepsy-free are basically non-existent, so I when people ask me "What's it like to have epilepsy?" and "What if you didn't have...  Hyderabad | been diagonised when was 9 have been diagonosed with photosensative flashing lights stress can triger my fits when i wake feel like sleeping for 3 days i have no energy after been put on alot of...  birmingham | |
Sue Wild is an Accredited Volunteer for Epilepsy Action in Northern Ireland. Sue had been a university lecturer in Manchester, teaching business strategy and marketing for service industries.... Northern Ireland | How I find it to fight epilepsy When I was just 15 I was diagnosed with epilepsy - it took 4 years to diagnose me with it. I'm now 17. When I was 11 I had my first seizure, which... Cwmbran | Nansi Thomas is five and has temporal lobe epilepsy, having several seizures day and night. She was finally diagnosed at the age of three after a long time of suspected epilepsy. Nansi’s... |
I was born with epilepsy in 1957 and I was reciving liquid phinobarbitone as a baby till I was the age to swallow pills. I was taking really bad seizures which were grand mal seizures. I... Tullibody, Alloa, Scotland | I wanted to write about my experiences of epilepsy and pregnancy to challenge the misconception that women with epilepsy should not or cannot have healthy children or look after them. ...  | …being a “stay-at-home Dad”. I stay at home to look after both of my small girls because of my epilepsy. There is no way that I would have been brave enough to have given up work to take... Mark is a 'stay-at-home Dad'! |
8 years ago next month my family lost my sister aged 29 leaving her 9 year old daughter to be brought up by my Mum. My sister had severe seizures on a daily basis which meant her quality of life...  London | I am coming up to 30 years old next March and have been living with epilepsy since I was first diagnosed when I was 15. I have experienced simple and complex partial seizures as well as tonic...  Exeter | I had my first seizure in 2016 but I thought nothing of it. Then 2 weeks ago (10/2/18), I had a tonic-clonic seizure on the bus home from Dublin. Luckily I had three great friends who stayed with...  Belfast |