My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I have suffered from epilepsy since the age of 18 months when I fell and hit my head on a table leg. I was at the toddler age and into everything!

Throughout childhood I was in and and of...

Rochford

I first had a generalised seizure when I was around 14/15 and I remember it so well.

It was, quite obviously, one of the scariest moments of my life. I fell because I was experiencing Deja...

Manchester

I was diagnosed with a epilepsy at the age of 7, a normal day I was sitting watching TV eating a baby bell and it happened. Full blown seizure. Never have in ever touched a baby bell since, even...

Surrey

I was diagnosed with absence epilepsy (then known as petit-mal) when I was 11 years old.

My parents thought I was going to be a difficult teenager as I would look like I was bored when they...

Manchester

I was 12 when I was first diagnosed with Epilepsy. I am not 18 almost 19 and we still have not been able to find out why I have Epilepsy. It is hard for me because I have lost some memory do to my...

MY EPILEPSY JOURNEY BLOG

This blog is when I got first diagnosed with childhood juvenile absence epilepsy. When I turned 5 years old the start of it was when I was just ignoring my...

Waterlooville

When exactly is an appropriate time to tell people that you are gay? Why is it necessary? When is it a good time to tell them about your epilepsy? Is it any of their business?

Neither are...

Having Epilepsy for sixty five years I went to writing school after early retirement
learnt like many with disabilities by teachers my main aim in life, that was to
write poetry and...

BRAMPTON CUMBRIA

This poem was an entry in Epilepsy Today's first-...

When I was a teenager, I was given the medication sodium valproate and suffered the symptoms of polycystic ovary syndrome – acne, weight gain, irregular periods, and...

I was diagnosed with epilepsy when I was two. My memories of being epilepsy-free are basically non-existent, so I when people ask me "What's it like to have epilepsy?" and "What if you didn't have...

Hyderabad

been diagonised when was 9 have been diagonosed with photosensative flashing lights stress can triger my fits when i wake feel like sleeping for 3 days i have no energy after been put on alot of...

birmingham

Sue Wild is an Accredited Volunteer for Epilepsy Action in Northern Ireland. Sue had been a university lecturer in Manchester, teaching business strategy and marketing for service industries....

Northern Ireland

How I find it to fight epilepsy

When I was just 15 I was diagnosed with epilepsy - it took 4 years to diagnose me with it. I'm now 17.

When I was 11 I had my first seizure, which...

Cwmbran

Nansi Thomas is five and has temporal lobe epilepsy, having several seizures day and night. She was finally diagnosed at the age of three after a long time of suspected epilepsy.  Nansi’s...

I was born with epilepsy in 1957 and I was reciving liquid phinobarbitone as a baby till I was the age to swallow pills.

I was taking really bad seizures which were grand mal seizures. I...

Tullibody, Alloa, Scotland

I wanted to write about my experiences of epilepsy and pregnancy to challenge the misconception that women with epilepsy should not or cannot have healthy children or look after them. ...

…being a “stay-at-home Dad”.

I stay at home to look after both of my small girls because of my epilepsy. There is no way that I would have been brave enough to have given up work to take...

Mark is a 'stay-at-home Dad'!

8 years ago next month my family lost my sister aged 29 leaving her 9 year old daughter to be brought up by my Mum. My sister had severe seizures on a daily basis which meant her quality of life...

London

I am coming up to 30 years old next March and have been living with epilepsy since I was first diagnosed when I was 15. I have experienced simple and complex partial seizures as well as tonic...

Exeter

I had my first seizure in 2016 but I thought nothing of it. Then 2 weeks ago (10/2/18), I had a tonic-clonic seizure on the bus home from Dublin. Luckily I had three great friends who stayed with...

Belfast

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