I was only nine when I had my first seizure and I’d never heard of epilepsy. My mum insisted I see an epilepsy specialist as my behaviour on the medication I was...
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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.
These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.
I was in the army for 12 years then costruction industry for 45 years. One night I had a memory loss, I couldn't speak or answer my wife, I had slid off a chair. My wife phoned the hospital... Lossiemouth moray Scotland | My name is Nils and I suffer from complex partial epilepsy. It doesn't stop me from my love of running. I have just completed the Leeds half marathon and came 10th in my category, 63rd... Skipton | I was 13 years of age when I had my first seizure. I remember waiting to get on the bus after a sleepover at my friends house, full of happiness after a girlie night. When all of a sudden I was... Manchester |
This poem was a shortlisted entry in Epilepsy Today... | Epilepsy is a weird one for me. I’ve had grand-mail seizures since childhood, but I’m very lucky to only have them a few times a year if I manage my lifestyle. I have fits if I don’t sleep, this...  Leeds | |
I went from being a normal 17 year old with the odd issue but I was doing okay in college and studying hard to being mistaken one day for someone else and due to that mistake I then started to get...  | Hey everyone! I’m Abbey and I’ve wanted to share my story for such a long time, but it needed to feel right for me. And right now there is no time like the present! My journey started... London | ...writing a play. I have written a play where the main character has tonic clonic epilepsy and has a major seizure onstage and all the aftermath of confusion, repetition, etc. A... Clair has written a play. |
Susan was 16 when she was diagnosed with epilepsy after a seizure at school. She was prescribed valproate, which proved effective in controlling her seizures. But she was never told at any point...  Belfast | I'm 22. I was diagnosed with epilepsy at the age of 10. I fell in school and had no lump on the back of my head. A week later I was taken ill into hospital and that's when I had a seizure. During...  Pontypridd | This will be my 3rd London marathon, and this year I am raising money for Epilepsy Action. I know there are many worthy causes and with so many charities to donate to these days, it makes...  Epilepsy Action Hero - London Marathon 2014 |
I was diagnosed with temporal lobe epilepsy 11 years ago after a head injury and I am now petitioning for strobe light warnings to be made a legal requirement - please click the link and sign...  London | This is my epilepsy. I have had epilepsy since I was 12 years old suffering from every type of seizure. Now in my 30s I seem to just suffer from grand mal seizures. I have a beautiful and lovely...  Halifax | Volunteering is not always about spending a day helping out in an office or at a charity fundraising event. It can also be about giving your time to speak out about an issue and make positive...  Lincoln |
Dr Daniel Hindley works at Bolton Foundation Trust. A paediatric consultant and clinical lead in community paediatrics, he has interests in childhood epilepsy and neurodisability... | Hi my name is Thea for Theodora and my age is 16 and I still have epilepsy. Everyone calls me Thea at school and I have difficulty speaking and with language. I found out I had epilepsy...  Dorking | To be seizure free for 7 years and bring up two daughters on my own for 6 of those years. Kent |
I had my first seizure when I was 4 years old. Since then it has come and gone, going up to 4 years without one. During my teens and 20's most seizures were caused by being careless. All being... Norfolk | Most people don't understand what epilepsy is all about, some think you have a 'fit' oh poor you have a cup of tea or a glass of water and you can get on with your day, this is so far from what...  Bracknell Berkshire | I am currently studying HNC Photgraphy and decided having had health issues that led us down the path of investigations for epilepsy. That for My major unit I wanted to try and show what is often... Livingston |