My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I was in the army for 12 years then costruction industry for 45 years. One night I had a memory loss, I couldn't speak or answer my wife, I had slid off a chair.

My wife phoned the hospital...

Lossiemouth moray Scotland

My name is Nils and I suffer from complex partial epilepsy.

It doesn't stop me from my love of running. I have just completed the Leeds half marathon and came 10th in my category, 63rd...

Skipton

I was 13 years of age when I had my first seizure. I remember waiting to get on the bus after a sleepover at my friends house, full of happiness after a girlie night. When all of a sudden I was...

Manchester

This poem was a shortlisted entry in Epilepsy Today...

Epilepsy is a weird one for me. I’ve had grand-mail seizures since childhood, but I’m very lucky to only have them a few times a year if I manage my lifestyle. I have fits if I don’t sleep, this...

Leeds

I was only nine when I had my first seizure and I’d never heard of epilepsy. My mum insisted I see an epilepsy specialist as my behaviour on the medication I was...

I went from being a normal 17 year old with the odd issue but I was doing okay in college and studying hard to being mistaken one day for someone else and due to that mistake I then started to get...

Hey everyone! I’m Abbey and I’ve wanted to share my story for such a long time, but it needed to feel right for me. And right now there is no time like the present!

My journey started...

London

...writing a play.

I have written a play where the main character has tonic clonic epilepsy and has a major seizure onstage and all the aftermath of confusion, repetition, etc.

A...

Clair has written a play.

Susan was 16 when she was diagnosed with epilepsy after a seizure at school. She was prescribed valproate, which proved effective in controlling her seizures. But she was never told at any point...

Belfast

I'm 22. I was diagnosed with epilepsy at the age of 10. I fell in school and had no lump on the back of my head. A week later I was taken ill into hospital and that's when I had a seizure. During...

Pontypridd

This will be my 3rd London marathon, and this year I am raising money for Epilepsy Action.

I know there are many worthy causes and with so many charities to donate to these days, it makes...

Epilepsy Action Hero - London Marathon 2014

I was diagnosed with temporal lobe epilepsy 11 years ago after a head injury and I am now petitioning for strobe light warnings to be made a legal requirement - please click the link and sign...

London

This is my epilepsy. I have had epilepsy since I was 12 years old suffering from every type of seizure. Now in my 30s I seem to just suffer from grand mal seizures. I have a beautiful and lovely...

Halifax

Volunteering is not always about spending a day helping out in an office or at a charity fundraising event. It can also be about giving your time to speak out about an issue and make positive...

Lincoln

Dr Daniel Hindley works at Bolton Foundation Trust. A paediatric consultant and clinical lead in community paediatrics, he has interests in childhood epilepsy and neurodisability...

Hi my name is Thea for Theodora and my age is 16 and I still have epilepsy.

Everyone calls me Thea at school and I have difficulty speaking and with language. I found out I had epilepsy...

Dorking

To be seizure free for 7 years and bring up two daughters on my own for 6 of those years.

Kent

I had my first seizure when I was 4 years old. Since then it has come and gone, going up to 4 years without one. During my teens and 20's most seizures were caused by being careless. All being...

Norfolk

Most people don't understand what epilepsy is all about, some think you have a 'fit' oh poor you have a cup of tea or a glass of water and you can get on with your day, this is so far from what...

Bracknell Berkshire

I am currently studying HNC Photgraphy and decided having had health issues that led us down the path of investigations for epilepsy. That for My major unit I wanted to try and show what is often...

Livingston

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