What do you value in your epilepsy appointments?

Study title

Neuro Digital: Outpatient Perspectives on Remote Appointments

What’s it about?

Since the start of the COVID-19 pandemic, remote and digital healthcare has been used to support the care of people living with neurological conditions, such as epilepsy. Researchers want to understand what people with epilepsy and carers value from face-to-face appointments. Equally, they want to understand what people think about remote appointments and digital healthcare. The findings will help to find ways of combining face-to-face appointments with remote or digital technologies. It is hoped that will improve patient care for people with epilepsy and maximise the effectiveness of outpatient appointments.

Am I eligible to take part?

Researchers are looking for people who are:

  • Living with epilepsy, or carers of adults living with epilepsy
  • Over the age of 18 and are resident in England
  • Have attended at least one neurology outpatient appointment

What will I have to do?

You can choose to take part in either:

A 30 minute interview
A 45 minute focus group
or an online discussion board

The amount of time spent on the online discussion board is optional. Interviews and focus groups can be carried out over the phone or online (via Zoom or Teams). All participants will only take part in one of these at once.

In the interview, focus group or online discussion board, you will be asked what you value in outpatient appointments. For example, what makes a good outpatient appointment? Or what makes a bad outpatient appointment? You will also be asked about remote and digital healthcare and if you feel this could be used to support face-to-face outpatient appointments.

How do I get involved?

Anyone who is interested in taking part or would like more information can contact the project’s Senior Research Fellow, Dr Sarah Fearn by emailing S.Fearn@soton.ac.uk or calling 07876818404.

Is there a deadline?

You can take part any time until 30 September 2022

Who is conducting the research?

This research is being carried out by University Hospital Southampton NHS Foundation Trust.

Who has reviewed this study?

This study has been reviewed by the East Midlands - Derby Research Ethics Committee.

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