A little about me…
After being diagnosed with epilepsy, I quickly realised how little peer support was available in the North East. That experience inspired me to start the Newcastle Epilepsy Support group.
My aim was simple: to create the kind of community I needed when I was first diagnosed—a safe, welcoming, judgement-free space where people can share their experiences, find understanding, build connections, and remember that they never have to face epilepsy alone.
Please be aware that this group is not affiliated with Epilepsy Action and we do not take responsibility for its activities.
This is an independent group and any inquiries should be directed to the group itself. By participating in this group, your personal data may be processed according to the groups own policies and procedures.
Epilepsy Action does not endorse or verify the information shared within the group. If you do need quality checked epilepsy information or support please call the Epilepsy Action helpline on 0808 800 5050