A world without limits for EVERYONE with epilepsy  

We will ensure that we always use coproduction principles to design and deliver services that meet the needs of everyone affected by epilepsy across the UK.

This means recognising differences in culture, language, disability, age, and background, and ensuring our information, support, and services are accessible, relevant, and responsive to the diverse communities we serve.

Despite our efforts, we are still not as diverse as we would like, and we lack representation from key backgrounds and communities. This includes in our staff team, volunteers and Board.

We will improve this this through regular monitoring of demographic information and taking appropriate action to address gaps.

We have clear plans to improve representation in these areas through the launch of our volunteer advisory panels (link to advisory panels), proactive employee recruitment with support from our employee inclusion champions, and the recent change in our constitution, moving from an elected to appointed Board (link to article)

By reflecting the diversity of the UK epilepsy community in our people and our work, we can better understand lived experiences, challenge inequality, and ensure our decisions are informed by a wide range of perspectives.

We will actively seek and listen to people whose voices are often underrepresented, including those facing additional barriers or inequalities.

By creating safe and meaningful opportunities to share experiences, we can ensure lived experience shapes our priorities, services, and campaigns, and helps drive positive change for everyone affected by epilepsy.

We will do this through partnership working and collaborating with local community leaders and groups.

We will use data, insight, and feedback to better understand who we are reaching and what voices and communities are missing.

By analysing trends and listening to lived experience, we can identify inequalities, measure progress, and make informed decisions that improve inclusion, access, and outcomes for people with epilepsy across the UK.

We will work collaboratively with community groups, healthcare professionals, charities, and statutory organisations across the UK.

By building trusted partnerships, we can extend our reach, share expertise, reduce duplication, and better support people affected by epilepsy, particularly those from underserved or marginalised communities.

We will remove practical, financial, digital, and cultural barriers that prevent people from engaging with or supporting Epilepsy Action.

This includes making volunteering, fundraising, and involvement opportunities accessible and flexible, so that everyone who wants to contribute can do so in a way that works for them.

We are committed to fostering an inclusive culture where people feel valued, respected, and supported.

This means supporting our teams to embed equality, diversity, and inclusion into leadership, decision-making, policies, and everyday practice, so inclusion is not an add-on but a core part of how Epilepsy Action works.