We fight to improve the lives
of everyone affected by epilepsy


Whistleblowing policy


Epilepsy Action ensures that, if anyone has concerns about things that happen at Epilepsy Action, there is a safe, fair and effective procedure to enable these concerns to be raised. We therefore have a whistleblowing policy for members of the general public, service users and members of Epilepsy Action and anyone involved with Epilepsy Action.  There is also an Epilepsy Action complaints procedure.

Reporting concerns

If you become aware of bad practice, we encourage you to report your concerns to our Chief Executive or Chair of Trustees without fear. Examples could include failure to uphold professional standards, danger to health and safety, possible criminal activity, or concern that a child or vulnerable adult is being put at risk,

Epilepsy Action takes very seriously any form of misconduct and wants to help people to raise concerns at an early stage and in the right way. We would rather the matter was raised when it is just a concern than wait for proof.

As long as people are acting in good faith, it does not matter if they are mistaken. Epilepsy Action will not tolerate the harassment or victimisation of anyone raising a genuine concern.

Epilepsy Action will not tolerate someone raising a matter they know is untrue, in order to create trouble or cause mischief to the organisation or to a particular person or people. If this happens, Epilepsy Action will take appropriate action.

If Epilepsy Action is asked to protect someone’s identity we will not disclose it without their consent (unless required to do so by a court or the law).

Epilepsy Action also has a complaints procedure. You can also call our head office on 0113 210 8800 to ask for a copy of the complaints procedure.

How to make contact and how concerns are dealt with

Anyone wishing to raise a concern under this policy can use any of the following methods: speak to, email or write to the Chief Executive or the Chair of Trustees. Please say if you want to raise the matter privately so that they can make appropriate arrangements.

The Chief Executive (or Chair of Trustees) will provide you with information about the process.

The Chief Executive (or Chair of Trustees) will assess what action should be taken.
Epilepsy Action will confirm its response in writing.

Epilepsy Action may not be able to tell you the precise action we take if this would involve Epilepsy Action breaking the confidentiality of another person.
Epilepsy Action will deal with all matters raised fairly and properly.

Contact details

You can contact Epilepsy Action’s Chief Executive by telephoning Epilepsy Action, telephone number 0113 210 8800. The address is:

Epilepsy Action
New Anstey House
Gate Way Drive
LS19 7XY
Email: whistleblowing@epilepsy.org.uk

You can contact Epilepsy Action’s Chair of Trustees by writing, marking the envelope Private and Confidential, care of the head office address above. You can also email the Chair of Trustees: whistleblowing.chair@epilepsy.org.uk

Who regulates Epilepsy Action’s work and how to contact them?

Epilepsy Action is a charity registered in England (No. 797997) and our work is regulated by the Charity Commission.

If you have any concerns about Epilepsy Action’s work that you would like to bring to the attention of the Charity Commission they can be contacted by telephone on 0300 066 9197. If you would like to email them you can do this through their website:  http://www.charity-commission.gov.uk. Their postal address is:

Charity Commission Direct
PO Box 1227
L69 3UG

Epilepsy Action's fundraising is regulated by the Fundraising Regulator.

If you have any concerns about Epilepsy Action's fundraising that you would like to bring to the attention of the regulator they can be contacted using the details below:

Fundraising Regulator
2nd floor, CAN Mezzanine Building
49-51 East Road
N1 6AH
0300 999 3407

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