We exist to improve the lives
of everyone affected by epilepsy

National Epilepsy Week 2016 #epilepsyweek (15-21 May)

Children being presented with an Edwards award

What's happened during National Epilepsy Week?

As in previous years, we wanted to telling as many people as possible about epilepsy, to help improve the lives of everyone affected by the condition.

In our recent poll, we found that many people don’t feel comfortable talking about their epilepsy with others for fear of discrimination.

We used National Epilepsy Week to help to change that!

Learn epilepsy first aid
Get local epilepsy support

National Epilepsy Week 2016 posterWhat can I do to promote and support National Epilepsy Week?

We want everybody to know about epilepsy and what to do when someone has a seizure:

1 in 5 people with epilepsy are uncomfortable talking to their friends about their condition

Let's talk about epilepsy

Stacey and Leanne

Former S Club Juniors star Stacey McClean spoke about her mum Leanne’s epilepsy on radio stations across the UK.

Read an interview with Stacey

Read Stacey's blog post about her mum

Epilepsy in the media during National Epilepsy Week

Is your school an award-winner?

Thank you to everyone who nominated a local nursery, school, college or university for an award.  Our Edwards awards celebrate the great work being done to support students with epilepsy.

We'll presented awards to 11 places across the UK during National Epilepsy Week.

Fundraise for epilepsy

Group of fundraisers

National Epilepsy Week is a great opportunity to get involved and fundraise for Epilepsy Action! Whether you choose to take on a marathon or organise a tea and cake sale, we would love to hear your ideas and events you have planned.

Your support will ensure that everyone living with epilepsy has access to specialist advice, quality healthcare and can live free of stigma, prejudice and discrimination. 

Get involved

Comments: read the 6 comments or add yours


I have had epilepsy since 1985 and have always wanted to save lives of those that need it, I would love to donate something that I am able to but have epilepsy so I can't , this makes me very very sad, wanting to help but can't don't seem fair especially to someone that could die.

Submitted by jane yeomans on

Hi Jane

Thanks for your comment. It’s great that you want to help people.

There are many ways to help people living with epilepsy. Volunteers play a critical part of our work here at Epilepsy Action. If you would like to become involved, please see the volunteering section of our website.

Although in the UK you’re not permitted to donate blood currently, you can still donate organs. For more information you could ask at your GP practice, or visit www.organdonation.nhs.uk.


Advice & Information Team

Submitted by Sacha-Epilepsy ... on

I hope that this week your organisation will also be publicising the courageous JUSTICE FOR LB campaign, drawing attention to the death in care of a young man with epilepsy and fighting to assert the rights of people with learning disabilities and their families


Submitted by JK on

You are to be congratulated on your establishing this site.

Submitted by Douglass Collins on

I would love to be a volunteer do anything I can to help yous I lost my son at 3 year old from grand mal epilepsy I found him in bed they say times a great healer which it is but it never goes away

Submitted by Laura walker on

Dear Laura
So very sorry for your loss. Please feel free to ring the Epilepsy Action helpline on 0808 800 5050 if you would like to talk. You might also consider also contacting SUDEP Action, which helps people bereaved by epilepsy related deaths to get initial support and information. Their support team can be reached on 01235 772852.

Thank you for your interest in becoming involved. Please see epilepsy.org.uk/involved for information about the many ways you could do this. You can also email volunteering@epilepsy.org.uk to request information directly.

I hope that helps.

Kind regards
Epilepsy Action

Submitted by Sacha, Epilepsy... on