We exist to improve the lives
of everyone affected by epilepsy

National Epilepsy Week 2016 #epilepsyweek (15-21 May)

Children being presented with an Edwards award

What's happening during National Epilepsy Week?

As in previous years, we’ll be telling as many people as possible about epilepsy, to help improve the lives of everyone affected by the condition.

In our recent poll, we found that many people don’t feel comfortable talking about their epilepsy with others for fear of discrimination.

We want to use National Epilepsy Week to help to change that.

What can I do the support National Epilepsy Week?

We'll update this page regularly. But here are a few things you can do right now...

How can I talk about my epilepsy?

1 in 5 people with epilepsy are uncomfortable talking to their friends about their condition

If you're in the UK and have a story to tell about living with epilepsy, we’d love to hear from you. Your stories will be used to help us raise awareness of epilepsy in the media during National Epilepsy Week.

  • Maybe you struggle with talking about your epilepsy and are now ready to speak out.
  • Or perhaps you’ve always been open about your epilepsy and would like to encourage others to do the same.

Whatever your story, we’d love to hear from you. 

Sign up as a media volunteer

Walk for epilepsy

Three people in Epilepsy Action T-shirts

Organising a Walk for Epilepsy is one of the simplest fundraising activities you can do. Whether it's a canal side stroll, a jaunt through the local countryside or a tour around your local town or city, all you need to do is plan your route and invite your friends and family to join you.

Sign up to lead a walk

Is your school an award-winner?

Thank you to everyone who nominated a local nursery, school, college or university for an award.  Our Edwards awards celebrate the great work being done to support students with epilepsy.

We'll be presenting awards to 11 places across the UK during National Epilepsy Week.

Do you live near Bridgend?

We're holding an event on Thursday 19 May where you can find out more about the different options for treating epilepsy.

How can I keep up-to-date with National Epilepsy Week?

Follow us on Facebook or Twitter or sign up to our e-newsletter.

Comments: read the 6 comments or add yours


I have had epilepsy since 1985 and have always wanted to save lives of those that need it, I would love to donate something that I am able to but have epilepsy so I can't , this makes me very very sad, wanting to help but can't don't seem fair especially to someone that could die.

Submitted by jane yeomans on

Hi Jane

Thanks for your comment. It’s great that you want to help people.

There are many ways to help people living with epilepsy. Volunteers play a critical part of our work here at Epilepsy Action. If you would like to become involved, please see the volunteering section of our website.

Although in the UK you’re not permitted to donate blood currently, you can still donate organs. For more information you could ask at your GP practice, or visit www.organdonation.nhs.uk.


Advice & Information Team

Submitted by Sacha-Epilepsy ... on

I hope that this week your organisation will also be publicising the courageous JUSTICE FOR LB campaign, drawing attention to the death in care of a young man with epilepsy and fighting to assert the rights of people with learning disabilities and their families


Submitted by JK on

You are to be congratulated on your establishing this site.

Submitted by Douglass Collins on

I would love to be a volunteer do anything I can to help yous I lost my son at 3 year old from grand mal epilepsy I found him in bed they say times a great healer which it is but it never goes away

Submitted by Laura walker on

Dear Laura
So very sorry for your loss. Please feel free to ring the Epilepsy Action helpline on 0808 800 5050 if you would like to talk. You might also consider also contacting SUDEP Action, which helps people bereaved by epilepsy related deaths to get initial support and information. Their support team can be reached on 01235 772852.

Thank you for your interest in becoming involved. Please see epilepsy.org.uk/involved for information about the many ways you could do this. You can also email volunteering@epilepsy.org.uk to request information directly.

I hope that helps.

Kind regards
Epilepsy Action

Submitted by Sacha, Epilepsy... on