AJ’s story

Published: October 25 2023
Last updated: October 25 2023

Hello my name is AJ. I was diagnosed with epilepsy in 2014.  I have tonic clonic seizures.

A few years ago my seizures became more frequent and I had to leave my job.  I also lost my mother and sister and the relationship with my wife broke down resulting in her leaving with our children.  I now live alone.

I once had a seizure whilst on the phone to my doctor and I fell down the stairs.  My doctor called the emergency services and I was helped.  As a result of falling down the stairs I broke my leg.  I had 19 seizures that day and it was a low point for me.  It is not just the seizures that affects me though, it is the recovery afterwards where I have no energy.

Before using the Befriending Service I was feeling very lonely.  I saw an advertisement for Befriending and thought this may be beneficial to me.

"I found having Befriending sessions really helpful, and just by talking to someone about my life has changed my attitude. I now accept that having epilepsy is part of me. "

Befriending has helped me to find myself again and has given me hope back.  I have learnt how to respect myself and how adapt my life to be more epileptic friendly including using safety devices around my home and using my phone which I call my guidebook for reminders with appointments and taking medication which help me live my life.

It has taken me time but I feel like a different person now, I still have seizures but I feel in a much better place and feel like a have my sense of humour back.

If you are thinking about using the Befriending Service I would say definitely give it a shot, because sometimes you might be in a place where you need a hand, especially if you live by yourself and you do not have anyone to give you motivation.

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