This month’s Epilepsy Star Award has been scooped by Jenny Edwards from Swansea. Jenny is an epilepsy specialist nurse and has been recognised for her above-and-beyond care for her patients.
Jenny was nominated by Epilepsy Action’s Wales manager, Jan Paterson. The pair worked closely during the recent Epilepsy Action Cymru report, that revealed poor standards of care across Wales. Jan says that Jenny was her ‘rock’ during this time and is a role model for what real, compassionate and extraordinary care looks like.
She said: “Jenny is one of those rare people who makes an extraordinary difference, not just through her expertise, but through her kindness, compassion, and unwavering support for everyone she cares for.
“For people living with epilepsy, life can be filled with uncertainty, fear and frustration, but Jenny has a remarkable way of making those difficult days feel a little lighter. She listens without judgement, explains things in a way that makes sense, and is always there when she’s needed most.
“It’s not just what she does, but how she makes people feel – safe, supported and never alone. She ensures people feel seen, valued and reminds them that they are so much more than a diagnosis.
“Jenny often uses Epilepsy Action’s resources, from information, to training and even awareness campaigns, to help support her patients and their families as much as she can.
“Jenny goes above and beyond every single day. She advocates fiercely for her patients, gently challenges stigma.”
“The heart of our community”
Jan continues: “Families trust her. Colleagues admire her. And countless people are living better, braver lives because of her.
“She’s the kind of nurse you hope you’ll have by your side in life’s hardest moments — and the one you’ll always remember for the comfort and hope she gave.
“Jenny truly deserves to be recognised for the incredible difference she makes. She is the heart of our community.
“Thank you for being the person people can turn to when things feel overwhelming, and for standing up for those whose voices often go unheard. Your kindness, wisdom, and courage inspire all of us. We are so lucky to have you and are delighted to celebrate you.”
Rebekah Smith, Chief Executive at Epilepsy Action said “We’re delighted to give Jenny this award, to recognise her extraordinary care for her patients. Jenny is an incredible role model to healthcare professionals, and shows the difference compassionate care can make.
“After the recent Epilepsy Action Cymru report showed failings across Wales in resourcing epilepsy care, it’s lovely to be able to celebrate Jenny’s work and show the amazing care that is out there.
“Jenny is a true inspiration, and we will continue to advocate and campaign for better epilepsy treatment across Wales, until excellence is the standard.”
Star Awards
Do you know someone who has done something inspiring to help improve the lives of people with epilepsy?