Four people stood at an Epilepsy Action stand at the Senedd. L-R: Chris Pate Epilepsy Action volunteer, Jan Paterson, Epilepsy Action Wales manager, Helen Ross, consulting for Epilepsy Action and Becci Smart, Epilepsy Action volunteer.

Campaigning

We campaign to improve the lives of everyone affected by epilepsy.

We work with healthcare professionals, politicians and the public to fight for the services, care and support that people with epilepsy need – and deserve.

At a glance

Current campaigns

Maternity and epilepsy

While most people with epilepsy have safe and health pregnancies, people with epilepsy face higher risks during pregnancy than people without the condition.

We want reforms to deliver meaningful improvements for people with epilepsy and their babies.

The campaign

Employment and epilepsy

Hidden disabilities, hidden talents – Government statistics show that people with epilepsy have one of the worst rates of employment amongst disabled people, despite the fact that for many there are few jobs that their epilepsy would prevent them from doing.

We are campaigning to change attitudes of employers and improve the employment support available to people with epilepsy.

The campaign
Help us campaign for change

Become a Campaign Volunteer!

Are you passionate about improving the lives of people with epilepsy?

If you have epilepsy, a connection to someone who does, or wish to use your voice to make the world a better place for people with epilepsy, we would welcome your support for our upcoming campaigns

Join the team

Welfare and benefits

Personal Independence Payment (PIP) is a benefit which helps with some of the extra costs of living with a disability or long-term health condition.

However, many people with epilepsy are not getting the help and support they need through PIP. The current PIP assessment process is not working for people with epilepsy.

Welfare and benefits
Don't take the PIP graphic- many people holding up the chancellor's red suit case

Wales

There are around 36,000 people living with epilepsy in Wales, but many struggle to access the services they need.

We are campaigning for more funding and resources to help ensure that people with epilepsy in Wales get the help they need to manage their condition.

Campaigning for better services in Wales

Northern Ireland

There are around 20,000 people living with epilepsy in Northern Ireland, but many struggle to access the services they need.

We are campaigning for more funding and resources to help ensure that people with epilepsy in Northern Ireland get the help they need to manage their condition.

Campaigning for better services in Northern Ireland
Volunteers Paul Strain and John Scott

Campaign for better healthcare

Epilepsy Action are campaigning for better epilepsy health services for people with epilepsy.

There are 600,000 people living with epilepsy in the UK, but all too often they struggle to access the necessary health services.

Campaigning for better services Sodium Valproate