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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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Hi my name is Gemma and I suffer from myclonic and tonic-clonic sezuires.

I was in year 7, aged 11 when I had my first seizure, I was in a French lesson writing something on a interactive...

Hertfordshire

I was diagnosed with epilepsy when i was 6months old. I recovered at the age of 11 but it came back at my final year in high school, back in 2015. It was a bad year for me in that I lost my...

Nairobi - Kenya

I was in year 5, on holiday, in Egypt. My family and I slept in the same room and during the night they would hear things from my side of the room.

It was in fact me having little seizures...

Danbury

Erin was diagnosed with absence epilepsy at age 8 when her teachers noticed her friends tapping her head to ‘wake her up’ in lessons. At high school, she was regularly told off for not...

As a child, Anky would regularly have generalised, focal and tonic clonic seizures. Growing up in India also made life difficult, due to the stigma and lack of knowledge surrounding epilepsy....

Surrey

Patience was diagnosed with epilepsy five years ago, when she was 14. She has both tonic clonic and focal seizures, sometimes two or three a week.

She’s speaking up this Purple Day to let...

Harry was diagnosed with epilepsy in 2018, when he was 17. “I have focal seizures where my arm and hand locks up and is unable to move. I'm still conscious but unable to speak or anything. This...

In 2016 I was arguably at the top of my game in terms my chosen career. I had served 26 years in the police service predominantly working within the world of tackling serious and organised crime....

Kidderminster

I had my first seizure in 2017, a tonic clonic whilst at my hairdressers.

I had to stay in hospital due to the severity of the seizure, we were hoping this was a once off, sadly not and two...

Lurgan

My name is Andrew, I have a daughter called Maddison who was diagnosed with epilepsy at the age of 2 and she still has seizures at the age of 6.

She is currently taking four different types...

Middlesbrough

I hesitate to write my story and so it will be anonymous, but I would like to help others and let them know they are not alone.

Families react in different ways when a person has epilepsy,...

France

I was diagnosed with epilepsy at the age of 11 in 2003, I had first gone into coma for a few days throughout 2003, once recovering and surviving Drs had diagnosed me with encephalitis, a very rare...

Coventry

I've had epilepsy since I was eight years old. I have complex partial seizures and absences.

I've never been allowed to drive and have lost a lot of jobs. My memory affected my education...

Northampton

Hi my name is Theodora and I have epilepsy.

I have the seizures if I get too hot or being stressed out. If I don't tell people what I am feeling inside, I will just have a seizure, if I run...

Dorking

Hello my name is Jessica, I have jme epilepsy.

I have had it since I was a child, although I got diagnosed at aged 13. When I first got diagonised I was confused, angry and felt completely...

South Shields

Diagnosed this week (two days before my 67th birthday) with epilepsy following two recent events at home. Huge relief to find out what’s been happening; after extensive tests and scans the...

Rylstone

At the age of 9 months old, doctors questioned if I was suffering from abscence seizures. I would black-out regularly and become unresponsive.

My nursery also identified the same issue. I...

Kent

I was diagnosed with epilepsy at the age of 17, while a lot of my friends were enjoying themselves drinking and partying, I was struggling trying to get the correct medication for a few tough...

Suffolk

Hi, My name is Aisha I was diagnosed on my 16th birthday, I was diagnosed With juvenile myoclonic epilepsy, and non epileptic seizures, I have been seizure free for 3 months and I have never had a...

Southampton

My name is Fran, I’ve had epilepsy since the age of 15, my first episode was when I sat up suddenly in bed after being asleep and I wasn’t fully aware of what was going on.

I stood up and I...

East Molesey

Hi, I’m Sean I’m 18, dropped out of school after year 10 and currently don’t do anything.

What I’ve just said and what I’m going to say normally causes people to say I’m just looking for...

Shrewsbury

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