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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I was diagnosed when I was 19 and in the middle of University. The sudden unexpected diagnosis changed my life massively with the seizures was having daily. I suffered for a year, where all I can...

Years and years I have suffered with the condition of epilepsy, it took for my own mum to track down the medication called melatonin and make doctors listen and it worked for the rest of my teens...

I was diagnosed with epilepsy when I was 4 years old. However when I was a baby there was several incidents where my mum and dad suspected I had epilepsy. When I was first diagnosed I could have...

My name is Katie, this is my story of my Epilepsy Journey and how running has changed my life i want to share my story to try to raise as much awareness as possible and to also show what can be...

My whole life I have been through some hard times. But learning to live with epilepsy was definitely the hardest. I suffer from tonic clonic seizures and mine are life threatening. Which caused me...

I was diagnosed with epilepsy when i was 31years of age. Although it has been controlled for many years my conditions have worsened regardless of the fact that i am prescribed a phenomenal amount...

My story starts when I was 11, my first night in Disney world , every girls dream. I woke up, shouting ' I've got a nose bleed ' , didnt know what was going on! Running into the bathroom, starting...

I was halfway through my first year of medical school when I had my first seizure. Eight months later I was diagnosed with Temporal Lobe Epilepsy – the day after my 20th birthday.
I went...

My epilepsy is something I’ve always tried to avoid talking about but recently I am embracing being more open about it. I had my first seizure at 14 when repairing my bike, it was a harrowing...

My son Kai was born with Tuberous Sclerosis Complex and epilepsy due to his tsc. Kai had his first seizure at 4 months old. He had 3 brain operations and went onto a drug trial to help reduce his...

Hello,

My name is Lauren and I am 25 years old. I was suddenly diagnosed when I was 24 out of the blue. I hope my video uploaded onto youtube will help to inspire people suffering with the...

My name is Laura and I am 22 years of age. I first got diagnosed with epilepsy at the age of 12. It's a long story from being diagnosed; different medications; tests etc I'll try and keep it short...

The first thing I remember is waking up, surrounded by my mum and a paramedic. I didn’t know what had happened. I couldn’t recognise my mum and I was scared. I looked at the paramedic hugged her...

Hi,
i am a 15 year old girl who has had epilepsy since age 3. It has effected my schoolwork so much since i was diagnosed. I would always have daily seizures at school in grade 9. I just got...

I’ve had epilepsy 30 years and it still catches me off-guard. I may have had the condition for a long time, but until the end of 2017, I didn’t really accept it.

I ran to Australia and...

Ventnor

I am epileptic, amongst other things, and my health is far from brilliant. But that does not define me. I am Ruth. I am a fighter. I am a warrior.

I was diagnosed with epilepsy at aged...

Hull

hi everyone
I like to tell you more about myself I started having fits when I was 5 which then led to me having them for a few years was on medication for but the specialist I seen when I...

abergavenny

My name is Rob, I was diagnosed with epilepsy in 2001 when I was 15 and I continued to struggle with the condition right up to around the age of 23 when my brain decided to calm down. Although,...

Ely

I was diagnosed at 18 with epilepsy, I had just passed my driving test and started University. I had Tonic-Clonic seizures having no idea when they were going to happen, I thought it was quite...

Durham

Hello everyone
around 3am yesterday morning when my warning for my epileptic seizure fizzed my brain i knew for a few minutes i was going to into that other world - into a kind of central...

Atherton M46 0LJ

I had a grand marl fit about 15 years ago. At the time I worked night's as a staff nurse and suffered more and more migraines but out it down to the work. . Anyway the MIR scan showed a benign...

Rhondda Cynon Taff

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