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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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hello my name is Sophie
when I was a baby i had a febrile seizures i stopped breathing and turned blue my mom gave me mouth to mouth and by the time the EMTS arrived i stopped seizing ....

Saugerties

Having had absence seizures since the age of 5, I had my first clonic tonic seizure in school when I was 13, without any warning and I have continued to have them since, although they are well...

Maidstone, Kent

I had my first seizure at the age of 13 in Disneyland Paris. Nothing happened again until 17, at which point I was having tonic clonic seizures every day, without any warning, whilst trying to...

South Wales

This story is about my brother.

He started having seizure not long after he was born, which obviously was very scary to see a baby go through such a thing. At first the doctors said it was...

Essex

been diagonised when was 9 have been diagonosed with photosensative flashing lights stress can triger my fits when i wake feel like sleeping for 3 days i have no energy after been put on alot of...

birmingham

I was diagnosed with temporal lobe epilepsy 11 years ago after a head injury and I am now petitioning for strobe light warnings to be made a legal requirement - please click the link and sign...

London

I was 10 (now 23) when I was diagnosed with absence epilepsy. I was a day dreamy child which made it hard to spot until I was having so many it was impossible to have a conversation with me. I...

Lincoln

When I was 16 years old (I'm 21 now) just a week or so after my nana died I had my first seizure. I came home from college absolutely fine, didn't feel any different at all. Once I fell asleep I...

Mirfield

My names Jack and I've had epilepsy since i was 13 years old (I'm 19 now). When i was 13 i was sat on my computer just chilling on Facebook and woke up with a terrible headache and my mum...

Birmingham

I am a male 39 year old. My story I was 10 and a hot day. I came home had my first seizure. Went to the hospital. Diagnosis was it was the heat. 3 seizure later it was diagnosed that I had...

I've had Epilepsy since I was about 6 years old, and I've had varied seizures and been on numerous medications. I'm now 29. One major change in my epilepsy was my seizures moving from day time to...

London

My name is Krystal Johnson
And after my motorbike accident 2014, when a women thought she was Lewis Hamilton pulled out on me and my 1000cc motorcycle...I saw white and told the universe to...

Bromley

It’s not a particularly long story but its one I want to share. My whole life has been spent active doing sports and competing and generally living a healthy lifestyle, Ive always been one who...

Buckinghamshire

So.... my story... well it’s not very interesting or special but has had a large effect in my life not just physically but mainly emotionally.

When I was about 13 years old (I’m 18 now) I...

Birmingham

You have so many plans for the future and when they gradually start to fall apart you wonder if you can carry on.

I had my first seizure when I was 27. I'd started temping as an...

Andover

A mother's wish

At the age of 2 years and 7 months my daughter, who has quadripledgic spastic cerebral palsy had her first seizure. I honestly thought we had escaped the epilespy with her...

Colchester

After being diagnosed at 16 years old, 8+ seizures a day - never could i thought I'd have the life i do now!

Since fantastic treatment at NNUH im approx 8 months between seizures which i...

Lowestoft

Hi, my name is Rebecka and I have grand mal seizures.
My epilepsy, I suppose journey, started in junior high school. I just remember one day when I was 14, alone at home, everything went...

My first seizure was on my 9th birthday! (Fabulous timing) I had a few more grand mall seizures but my epilepsy was mainly under control until I hit my teen years.

By the time I was 15 I...

Merthyr Tydfil

I was diagnosed with epilepsy at age 12 in 2011. I've had epilepsy for 6 years. When I was first diagnosed I began having Tonic Clonic Seizures (which is a type of generalised seizure which...

Lisburn

I was diagnosed with a epilepsy at the age of 7, a normal day I was sitting watching TV eating a baby bell and it happened. Full blown seizure. Never have in ever touched a baby bell since, even...

Surrey

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