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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I was diagnosed with Epilepsy in 2006, at the age of 10 years old. During my last year of primary school, looking forward to my high school years. And from then on all, all that has done has...

Manchester

Epilepsy has made life difficult. I was first diagnosed with Epilepsy when I was 14, I'm 21 now. Being a young girl and hearing that diagnosis is extremely difficult to deal with.

The day...

Walsall

I was diagnosed with Epilepsy in 2006, at the age of 10 years old. During my last year of primary school, looking forward to my high school years. And from then on all, all that has done has...

Barratt

Hi My name is Philip Mclachlan I had meningitis when I was first born which I has to go through loads of tests, scans and x rays such (mri, eeg and ct scans as I then found out by my parents that...

South Shields

Hi everyone I am now 47 developed Epilepsy when I was 21. Between all the MIR scans etc I have got done been in hospital etc. So now theirs scare on one side of my head plus the other side shows...

Enniskillen Northern Ireland

I've had seizures since I was 9 months old. Mum was constantly being told they were breath holding attacks or just the temperature during summers. I've had them on and off ever since. I'm now...

Swaffham

I was diagnosed with Epilepsy at the young age of 12, just going into my first year of secondary school. I remember sleeping in the living room with my mum and the next thing I knew I was in the...

Wellingborough

Imagine you’re sat in a cafe with friends,
Enjoying your coffee, pouring over the latest trends,

Everything is fine, normal is how you feel,
No one would look at you and think...

Bristol

Brain and Tissue Donor
hopefully donate their Brain and Tissue after they pass away. After having epilepsy since 1979 when I was three years old i thought i really would like to look into it...

Lincolnshire

I found out I had epilepsy when I was 9, so I’ve had it for 11 years now.

It all started out when I was just having blackouts, absence seizures, no-one thought anything of it as my dad...

Derby

I'm Ruth and this is my daughter Starla. We both have epilepsy. I was diagnosed at the age of five. But I've found Starla’s diagnosis difficult to deal with.

After living with epilepsy my...

Hi. I'm Kirstin and this is my daughter Esme. She has absence seizures and photosensitive epilepsy. This can sometimes make her extremely tired, lose concentration, or bring on headaches and...

Hello. I’m Barbara. Epilepsy has dominated much of my life and that of my family. I developed the condition aged 10 and I was teased throughout my school years. I was also told I'd never follow my...

North London

I’m Jane. When I was diagnosed with epilepsy in 2012, it was a condition I knew almost nothing about. Because of this I felt very embarrassed by my epilepsy and actually a little ashamed.

I...

Edinburgh

I am 50yrs old & I have had complex partial epilepsy of the right temporal lobe since my very early 20's. Despite my VNS implant (first one fitted in 2006 & replaced in 2013) &...

Woodhall Spa, Lincs

My story about childhood epilepsy,
I remember going up to my new middle school 11 years ago (24 now) at 13 I didn't understand what was happening. I would just go into a daze, spill drinks...

Brandon, Suffolk

Hello everyone my name is Matthew Jackson and I’m 21 years of age and I have had epilepsy since the age 11 I had first ever epilepsy seizure when I was 12 i broken my left foot. At first they didn...

Leeds

My name is Andrew Jackson and i have had epilepsy for 39 years since the age of 3 years old through having measles. Nine years ago i had a very serious and life threatening seizure known as Status...

Lincoln

I've had Epilepsy since the age of two. According to a medical form that's been written by my Adult Epilepsy Nurse, whom, when I looked back recently at some of my old blog posts, introduced me to...

Blackburn, Lancashire, England

I had my first seizure in 2016 but I thought nothing of it. Then 2 weeks ago (10/2/18), I had a tonic-clonic seizure on the bus home from Dublin. Luckily I had three great friends who stayed with...

Belfast

My first seizure starts when i was 13. I was playing on a school field when suddenly i begun to feel dizzy,jerking and my lips moving then feel off the ground. It was very painful. A grand mal...

manila philippines

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