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My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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For about 3 years now I have been having de ja vu episodes which last for a few seconds and fill me with terror when they happen.

If anyone is familiar with the Harry Potter books and...

Sheffield

Our lives completely changed on the 21st December 2007.

I was having breakfast with my 2 year old daughter Eve before we set out to her playgroup Christmas party. As I spoon fed her...

Glenrothes

Im sharing my 1 year old daughter, diagnosed with epilepsy/seizure disorder since she was 6 months old.

She already undergone ultrasound and EEG, and the result is normal.
She's...

Bulacan, Philippines

I have been having seizures for around ten years now, my husband, family and friends are all aware of the procedure should they witness me having a seizure.

My little girl Esme has recently...

Derbyshire

I was first diagnosed with epilepsy when I was 8 - following Encephalitis. I left hospital with a diagnosis of epilepsy and had a paralyzed left leg. After 6 months of treatment I was finally able...

London

Hi Everyone, my is Joseph and i suffer from Epilepsy since birth. My seizure was at the age of 9 months. I am 25 years old now and I have tried all the medicine but non have worked. When I was in...

London

How I find it to fight epilepsy

When I was just 15 I was diagnosed with epilepsy - it took 4 years to diagnose me with it. I'm now 17.

When I was 11 I had my first seizure, which...

Cwmbran

Hey everyone! I’m Abbey and I’ve wanted to share my story for such a long time, but it needed to feel right for me. And right now there is no time like the present!

My journey started...

London
Hello everyone. My name is Christina Marshall and I have complex partial seizures. I have 3 different types of seizures and I also have seizures in the night as well. Living with epilepsy for me has...
London

Hiya. Sorry I'm very new to this. So I apologize if I mess up a bit. I contracted epilepsy after my car accident when I was 4 months old where I suffered a fractured scull and brain damaged. I...

Planning

When I was diagnosed in 2008 my symptoms were quite severe. I wasn't able to work and day-to-day tasks were a struggle. At this point I thought I might never be...

Planning

I did not have any pre-conception counselling before I fell pregnant with my first child. Louie was a surprise!

As soon as I found out that I was pregnant I...

I was diagnosed with temporal lobe epilepsy when I was seven years old. My parents never made an issue out of it and I was always allowed to do things that I was safe to do. Until the age of 21, I...

Looking back, despite our research, we were quite naive when planning to have our first child. No one was overly concerned that I was taking sodium valproate. At 20 weeks, I had the normal scan -...

In 2010 I had brain surgery. This was actually ‘foramen magnum decompression surgery’ for a chiari 1 malformation (a bit of a mouthful).

A short while after the surgery I was diagnosed with...

Planning

When I realised things were getting serious between me and my now husband, I went for preconception counselling. I had been on Epilim (sodium valproate) pretty...

Planning

When we went for preconception counselling (in 2004), I was still at the stage of having about 40-50 petit mal seizures a month. I was on a low dose of lamotrigine...

The moment I knew I was pregnant

Surely this can’t be right!! What were the instructions again? Does that blue line really mean…?

I was expecting it to take at least...

Planning

I was aware that as and when I wanted to have a baby, I should discuss my plans with my GP and (if necessary) a neurologist. I had assumed at least a six month...

Planning

About a year before I became pregnant, I read something about the contraceptive pill interacting with my anti-epileptic drug (AED), lamotrigine. After yet another...

I was diagnosed with epilepsy when I was 14. I’m 25 now and after being on many different medications, it’s still not completely under control.

This past weekend marked 14 weeks without a...

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