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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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Hi my name is Emma. Age 23 (24 in July) My first seizure was when I was baby. From then to age 13 no seizures at all, but when my grandad died it started coming back and have been having seizures...

Tell us more about the day you had a seizure in public while pregnant and what a difference someone helping made to you.

6th March 2015 remains the worst...

“One time I had a seizure on the platform at London Bridge. Luckily, a member of the public was able to catch me as I was about to fall in my tonic clinic seizure. They protected my head,...

West London

Angel was diagnosed with epilepsy when she was 14, nearly four years ago. She has had very mixed experiences in public.

“My seizures are usually once a month and can be triggered by stress...

Becky’s first seizure happened in February 2018 when her son found her on the bedroom floor. Medical tests came back inconclusive and she was told it was a one- off. Six months later, Becky was...

Following a 10 hours of life saving Craniotomy surgery in Sept 2001, and a follow up op in Dec 2001, I'd spent the next 5 or so years rehabbing, living as normal life as i could with an 11 inch...

I experienced a traumatic brain injury aged 4 with resultant physical symptoms. I was given barbiturates. Until the age of 20 I continued to experience myclonic and generalised physical symptoms;...

Since around November, it feels like I’ve been suffering from a non stop endless seizures with just the odd two or three day break but it’s killing me. I have seizures that aren’t physical so it’s...

I was first diagnosed with epilepsy at the age of 14.
I was terrified when I came round in the ambulance, convinced I was going to die.
The first anti-convulsant I was put on was...

"I was at the gym a few weeks ago doing an early morning spin class with my manager from work. At some point during the workout I realised I had no idea of how I got to the gym and couldn't recall...

Flintshire

Hi I’m Hannah,

I had my first seizure at 11 years old, and after a few more episodes and an EEG was diagnosed with photosensitive epilepsy.

Since then I’ve been on medication,...

Hi, my name is Nicole, I am 17 years old. I have suffer from photosensitive epilepsy for almost 12 years now.

I had my first seizure when I was 6 to 7 years old in elementary school. I kept...

Hi, my name is Lauren. I have a wonderful little boy named Albie who was diagnosed with Dravet Syndrome in September 2018 (Just before his 1st birthday). Albie was having lots of prolonged...

I began having full seizures when I was 27 years old, about 15 years ago, following a bout of flu and resulting sinus infection. The seizures happened in my sleep and lasted for up to a minute,...

My name is Alice Jackson, I am 18 years of age. I have cerebral palsy and suffer from tonic clonic seizures.

I was first diagnosed with epilepsy at 18 months, I had my second seizure...

Hi, I'm Anja Warneke, from Bremen in Germany, and I want to write about my epilepsy.
When I was seven years old had a brain injury. It happened in a village on the cyclist way beside the...

Ben King nominated his wife Rachael for everything she does to raise awareness about epilepsy. Their three children all live with the condition. Their eldest son Jenson, seven, was diagnosed with...

Aislinn Carlile volunteers for the Epilepsy Action Ballynahinch coffee and chat group in Northern Ireland. Located in a rural area, the group gives people affected by epilepsy a much-needed...

Nansi Thomas is five and has temporal lobe epilepsy, having several seizures day and night. She was finally diagnosed at the age of three after a long time of suspected epilepsy.  Nansi’s...

Dr Daniel Hindley works at Bolton Foundation Trust. A paediatric consultant and clinical lead in community paediatrics, he has interests in childhood epilepsy and neurodisability...

Ladies Circle is a networking organisation for women aged between 18 and 45, founded in 1936. The friendship group runs around 120 different clubs nationwide, and is all about having fun,...

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