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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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Oscar is 11 and getting ready to climb Ben Lomond on 20 August. He is determined to reach the 3,200 ft summit to raise money and help people just like him.

“When I was 8, I had a series of...

Want to be able to know more people with JME diagnose. I have a 13year old daughter that was diagnosed a year ago.

California

“My son was born with a brain tumour and associated hydrocephalus, a build-up of fluid on his brain. He’s had eight brain surgeries, the first being when he was less than a day old, and countless...

Strobe lighting.

At 17 years of age I was diagnosed with photosensitivity which could lead to seizures. As a result my whole life has been affected by this. Theatre visits usually a no as...

Bolton

I was a breach baby & suffered severe Brain Damage due to forceps delivery plus suffered a sub-dural Brain Haemorrage. I had my first seizure at 6 & was told I had Temporal Lobe Epilepsy....

York

Alex is taking on our Jog 30 Miles in June challenge for his friend Luke.

“I had known Luke O'Donnell (or Luke-O as I liked to call him) as a work colleague for 4 years at...

Lincolnshire

Hi, my name is Jessica Hall and I was 16 when I was diagnosed with idiopathic generalised epilepsy, after my first seizure on holiday. The first few days after the diagnosis, I felt very scared...

Derby

Around the end October 2019 at the age of 27, I started experiencing absence seizures and issues with memory, I went to my doctor's at the beginning of November 2019, who suspected some form of...

Coventry

Hi, I was 13 when I had my first tonic clinic seizure, Christmas day. We don't know why or how I got them. A few years ago I started getting absences and after a few questions realised I was...

Hampshire

I have had epilepsy for 65 years. During my thirties and forties my seizures were very frequent and dominated my life.  As I got older, my epilepsy improved, so I wanted to help others by...

Maureen is one of our Talk and Support Volunteers.

“I started having temporal lobe focal impaired seizures when I was 40 years old. It was a bewildering, frustrating and...

I was motivated to be a media volunteer as I am passionate about sharing my story and being a voice for people with epilepsy. Not everyone is in a position where they can speak about their...

I was told nothing about epilepsy when I was diagnosed as a child. This had an impact on me and I grew up feeling insignificant to the medical profession....

Hi my daughter was having a lot of siezures I looked online at vitamins she could take to help prevent siezures. One of her triggers can be certain foods she eats. Like fast food McDonald's...

Barrow in Furness

My story starts with me being lead to an ambulance at 3am.

I'd gone to bed a couple of hours before, and the next thing I remember, is a voice behind me saying, he's coming around. It was...

Hull

My younger brother Seb has only recently been diagnosed with epilepsy, but he has had cerebral palsy his whole life. He’s an extremely active young adult, playing tennis for Cornwall and football...

All my friends were turning 17 and like everyone else we all talked about driving tests, theories and cars. That was me until March 2017. Months I’d been having these episodes where I would miss...

County Durham

“Sam was an utterly dream little boy and I feel incredibly blessed to have been chosen as his mummy” – the words of Rachel as she remembers her son who passed away a year...

Well at nearly 60 yrs old I have stopped having seizures and I was seizure free for about 4 years. When I moved, I was having non epileptic attacks in my sleep. My father has not really understood...

Oxfordshire

It all started back at Christmas 1959, when I was diagnosed with diabetes Type1, soon after a tonsil operation that didn't go to plan. I was only 9 years old, and the social and mental...

Newent

I am a long time epileptic. What l find upsetting the most is when people think I am drunk. I've had to have carers to care for me but if l've had a seizure before they arrive l must of been...

Redcar

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