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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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after reading one of the stories I was surprised to find out that their story actually mapped mine!

I was diagnosed with Epilepsy in 2013 and it came out of the blue, no warning, no family...

Birmingham

I was diagnosed with epilepsy when I was two. My memories of being epilepsy-free are basically non-existent, so I when people ask me "What's it like to have epilepsy?" and "What if you didn't have...

Hyderabad

I'm 22. I was diagnosed with epilepsy at the age of 10. I fell in school and had no lump on the back of my head. A week later I was taken ill into hospital and that's when I had a seizure. During...

Pontypridd

I would like to share my story to show people not to ever give up hope!

At the age of 12 I noticed these strange feelings. After being referred to the hospital, scans revealed I had scar...

Liverpool

Derrick shares his story for Purple Day

As a mum to three young children, Josephine thought her battle was over when...

London

Ruth is 32 was diagnosed with epilepsy at the age of five. She lives in Stevenage with her 8-year-old daughter Starla, who was recently diagnosed with epilepsy too.

“After suffering with...

Stevenage

I'm 60 years old and I was diagnosed with epilepsy when I was 20. I feel the long-term impact of living with epilepsy, causing a sense of isolation, even though it is now controlled.

Over...

North London

Claire was first diagnosed with epilepsy when she was just nine years old. Her first seizure happened in March 2009 when she came home from school. Her mum immediately knew something was wrong...

County Antrim

Gemma was diagnosed with epilepsy in her twenties after many years of seizures. She is prone to falling and this, together with the fear and reality of generalised seizures, has a huge impact on...

Chelmsford

I was just diagnosed with Epilepsy on 2/23/17. I have JME. I used to have mini seizures that just looked like jerks of my arm almost every morning and sometimes late at night. I had my first...

jme

I have shaved my hair off for epilepsy. I did it for charity to help other people who has epilepsy as well. I did this on the 4th of November, I haved suffered with it since i was 13yrs old. I...

Derby

How the first positive word spoken to me in 18 years of dementia, started during 12 years of epilepsy and 50 years of diabetes has freed me from the effects of my brain disabilities, so that I can...

Cambridge

Everyone knows my daughter has epilepsy as I try to advocate on her behalf as often as possible, mainly because short of giving her medicine and attending doctors...

UK

This is my brother, Laurence. Laurence has suffered from severe epilepsy since he was born. His condition was only discovered at age 4.

On a typical day, Laurence enjoys Disney films,...

Leicester

My name is Enat Yewnetu and I have had epilepsy for 30 years. I have generalized tonic-clonic seizures that involve my entire body. I am on anti-epileptic medication and live with both the side...

London

I was diagnosed with Temporal Lobe Epilepsy 10thFebruary 2016. I am finally starting to come to terms with the condition and having to take medication everyday. I have not yet gained control over...

Tough Mudder, Yorkshire 2016

I've had Epilepsy and a damaged memory since 1982 and tried many medications. None gave me the self control I now have. I'm becoming more aware of warnings since using a VNS device. Doing a few...

Tunbridge Wells

I first had a generalised seizure when I was around 14/15 and I remember it so well.

It was, quite obviously, one of the scariest moments of my life. I fell because I was experiencing Deja...

Manchester

Jane writes about her son Matt:

Matt is a strapping 24 year old, 6 foot man with a zest for life. Matt is very sporty and has always liked to keep himself fit. He is a natural sportsman and...

I've had complex partial seizures since my early 20s.

Now I find myself with three beautiful teenage daughters. They've grown up only ever knowing that mummy has seizures. Not ideal but...

Leeds

I have had juvenile myoclonic epilepsy for nearly 15 years and to be honest it does bring me down every time I get that feeling that im going to fall into a seizure.

im now at the age where...

Morden

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