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My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I am now the person I was always supposed to be. I am whole and my brain is running on oil. My ones call me slick. My neurotransmitters are protected and i can look at the stars without being...

Newry Co Down

Back in 2010 I was unfortunately diagnosed with epilepsy totally out of the blue. This came after suffering a seizure at night and prior to that suffering from absences/petit mal seizures over...

Southampton

Ena Bingham is a retired epilepsy specialist nurse. She was the first Sapphire Nurse in Northern Ireland. Stacie Sheeran was diagnosed with epilepsy in 2007. Together they volunteer at the Belfast...

Belfast

Ann lives in Leeds and volunteers at Epilepsy Action’s head office. She had worked for 9 years in Epilepsy Action’s membership team, which combined her experience in the NHS, as well as accounting...

Leeds

Sue Wild is an Accredited Volunteer for Epilepsy Action in Northern Ireland. Sue had been a university lecturer in Manchester, teaching business strategy and marketing for service industries....

Northern Ireland

Volunteering is not always about spending a day helping out in an office or at a charity fundraising event. It can also be about giving your time to speak out about an issue and make positive...

Lincoln

For Volunteers' Week 2018 we are celebrating the fantastic people that help us make a difference every day. Katie is from Leeds. She has been volunteering for Epilepsy Action for 2 years in the...

Leeds

I am going to take the plunge (literally) and do a skydive in memory of my brother. He died from SUDEP 7 years ago now and I felt it was time I gave fundraising a go. My brother Nathan was only 21...

Telford

I mainly have focal seizures but used to tonic clonic seizures too. However, they seem to have gone away now. The difficult thing for me is that my seizures happen with no aura, so I have no...

Guildford, Surrey

I’m Raphael and I’m a normal happy 6 year old rebel. At times, when I'm asleep, I suffer from nocturnal seizures.

My 8 year old sister annoys me on a daily basis but are truly the bes of...

London

My epilepsy started when I was 40 year old. I had a professional job supporting pupils with behaviour and attachment issues in both Mainstream schools and Pupil, Referral, Units. The epilepsy...

Bradford

I had my first seizure when I was 18 months old. I then had a seizure aged 8 and one a year later. I was diagnosed with epilepsy and, later on, it transpired that I had photosensitive epilepsy too...

Manchester

As it is National Epilepsy Week 14th - 20th May I have been asked to write a few words about Epilepsy by my friend Louisa. More because she is fascinated by it,but also bcause of what Sky is doing...

Sheffield

My son had seizures for about 6 years. He lost his licence twice. He never got it back. He would not admit to still having seizures. I do believe most were at night. He would often look tired and...

suffolk

I began having absence seizures when I was 16. I didn’t know that’s what they were until I started driving. When I have a seizure I become very disorientated, I stare and they make me drool. I get...

I was 18, at the time, and working in Llanelli, but living in Swansea. I had not passed my driving test, so the only way I could get to work, was by motorbike. Anyway, this night, I had a terrible...

Swansea

I was diagnosed in 1986 with what was then called petit mal seizures. I was put on valproate. At 19 I had 3 tonic clonic seizures and had my medication changed to the then new drug Lamotrigine. A...

Verwood

Hi, my name is Darren and I am 56 years years of age. I became epileptic after a head injury during my military service with the Parachute Regiment a career that I loved but was sadly cut short...

Tamworth

I had my 1st seizure back in 2012 at the time i was getting ready to start my last semester in college. The class i needed was in a city 30 minutes away and was unable to drive for 6 months....

Louisiana

Hi there
My 28 year old daughter who is mentally many years younger than her actual years was diagnosed when she was four years old.

She takes various seizures such as Myoclonic Jerks...

Glasgow

I was diagnosed with absence epilepsy (then known as petit-mal) when I was 11 years old.

My parents thought I was going to be a difficult teenager as I would look like I was bored when they...

Manchester

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