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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I have shaved my hair off for epilepsy. I did it for charity to help other people who has epilepsy as well. I did this on the 4th of November, I haved suffered with it since i was 13yrs old. I...

Derby

How the first positive word spoken to me in 18 years of dementia, started during 12 years of epilepsy and 50 years of diabetes has freed me from the effects of my brain disabilities, so that I can...

Cambridge

Everyone knows my daughter has epilepsy as I try to advocate on her behalf as often as possible, mainly because short of giving her medicine and attending doctors...

UK

This is my brother, Laurence. Laurence has suffered from severe epilepsy since he was born. His condition was only discovered at age 4.

On a typical day, Laurence enjoys Disney films,...

Leicester

My name is Enat Yewnetu and I have had epilepsy for 30 years. I have generalized tonic-clonic seizures that involve my entire body. I am on anti-epileptic medication and live with both the side...

London

I was diagnosed with Temporal Lobe Epilepsy 10thFebruary 2016. I am finally starting to come to terms with the condition and having to take medication everyday. I have not yet gained control over...

Tough Mudder, Yorkshire 2016

I've had Epilepsy and a damaged memory since 1982 and tried many medications. None gave me the self control I now have. I'm becoming more aware of warnings since using a VNS device. Doing a few...

Tunbridge Wells

I first had a generalised seizure when I was around 14/15 and I remember it so well.

It was, quite obviously, one of the scariest moments of my life. I fell because I was experiencing Deja...

Manchester

Jane writes about her son Matt:

Matt is a strapping 24 year old, 6 foot man with a zest for life. Matt is very sporty and has always liked to keep himself fit. He is a natural sportsman and...

I've had complex partial seizures since my early 20s.

Now I find myself with three beautiful teenage daughters. They've grown up only ever knowing that mummy has seizures. Not ideal but...

Leeds

I have had juvenile myoclonic epilepsy for nearly 15 years and to be honest it does bring me down every time I get that feeling that im going to fall into a seizure.

im now at the age where...

Morden

I had my first witnessed seizure in 2002 however it was diagnosed as dissociative disorder because the neurologist didn't think someone of my age( 40 in 2002) could develop epilepsy. The next...

Dublin

Diagnosed age 10. In those days (1960s) schools wrapped you in cotton wool as far as physical activities were concerned - no swimming - & playing football, cricket & tennis became...

Penzance

I have not always suffered from epilepsy and I left school, started work, learned to drive etc as most people. I was then affected by epilepsy and the inability to drive plus the feeling of "being...

Derby

I was first diagnosed at 16 & my epilepsy was unremarkable - medication gave me good control. I worked & went about my life without a second thought. Suddenly it all changed. When I was 21...

Rainham

I was diagnosed with stress-induced epilepsy aged 37 following an assault at work. After a few years to get it under control and a few hiccups along the way I have finally come to terms with the...

Peak District

At 28 I had a successful career in Finance and could go or do anything I wanted. Then things changed, I woke to see an ambulance man kneeling by my pillow telling me I had to go to hospital. I had...

Oxford

I was diagnosed with epilepsy at age 11, the cause of which was never discovered, I spent 11 years of my life with almost daily seizures, "partial absences" and from age 16 chronic migraine.

...
Inverness

I have always had epilepsy so have never known anything else. It was caused by a stroke at birth so It's just part of my life. Having seizures growing up was tough, whenever an aura started I knew...

Pontypool

Epilepsy is a rotten neurological condition but never let it stop you living life to the full.

Sadly we lost our elder daughter, Carla at 27 when she didnt recover from a seizure ... She...

Macclesfield

My amazing epilepsy specialist nurse is Helen Hodgson, at Southmead Hospital in Bristol, England.

For only 20 minutes every week, a patient of Helen Hodgson's would reveal the most...

Bristol

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