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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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“Sam was an utterly dream little boy and I feel incredibly blessed to have been chosen as his mummy” – the words of Rachel as she remembers her son who passed away a year...

Well at nearly 60 yrs old I have stopped having seizures and I was seizure free for about 4 years. When I moved, I was having non epileptic attacks in my sleep. My father has not really understood...

Oxfordshire

It all started back at Christmas 1959, when I was diagnosed with diabetes Type1, soon after a tonsil operation that didn't go to plan. I was only 9 years old, and the social and mental...

Newent

I am a long time epileptic. What l find upsetting the most is when people think I am drunk. I've had to have carers to care for me but if l've had a seizure before they arrive l must of been...

Redcar

Hi, my names Shara-Rose and I was born with epilepsy. When I was born, I was stuck in hospital with my mum. The hospital kept me under their surveillance and after a week I was fine to go back...

Colwyn Bay

I had my first seizure when I was 19 and in the months to follow I suffered 2-3 daily. The seizures left me wheelchair bound due to the severe weakness from constant seizures. I moved abroad to...

Bridgend

I don't have epilepsy myself but my partner do.

I didnt realise how much it impacts on your life, from not wanting to go to certain shows because of the flashing lights to body temperature...

South Wales

I've experienced epilepsy since the age of 10. I suffered severe physical side effects but the biggest challenge for me was overcoming epilepsy mentally. Once I was able to conquer that mountain I...

Coventry

My life changed when i was 6 years old 1975 when I fell off a climing frame at school and came round with staff and schoolchildren and 4 of my dear friends all staring, I was picked up and taken...

Market Harborough

It all started back in 1987 when I was 2 years old I got diagnosed with epilepsy. My gran (my mums mum) was looking after me while my mum was working. I got hit on the head with a breakfast bar...

Torquay

My life is still the same but still have the odd one or two but not serious ones. I would like to talk to people you and old about how serious Epilepsy is. We need to get people to understand more...

Carterton

Sophie remembers her son Felix, who died from SUDEP five years ago.

March is a time of hope. Spring is on its way, the daffodils and primroses are out, and new growth is everywhere. But for...

In March 2020, right at the start of a global pandemic, I had my first seizure. I had absence seizures all spring. It was very difficult as the NHS were understandably very busy dealing with the...

I developed epilepsy in the summer of 2018 at the age of 15. I have tonic-clonic seizures every few months. I felt very alone when I was diagnosed. I knew that epilepsy existed but I did not know...

Laila is 13 and was first diagnosed with epilepsy four years ago. Her mum Saima tells her story.

“Laila kept having what I thought were daydreams. The doctor looked over at her and...

Epilepsy Baller – Epilepsy will not stop me (wordpress.com)

@epilepsyballer

I was just 16 when I was diagnosed.

I headed a...

I was 15 years old when my teacher noticed I was having blank episodes which after going to London hospital to have tests I was diagnosed with petit mal this later grew into grand mal.

It...

Surrey

I was diagnosed 5 years ago. I firstly had a serious, unexplained car crash. After the crash, I suffered with PTSD. I couldn’t work out what had caused it. Then there was a frightening incident at...

Purple Day holds a special place in my heart. On March 26th 2014, I passed my driving test. I was 18 and ready to start conquering all and striving to achieve. I was a young man who...

Max is 12 and was first diagnosed with epilepsy when he was 7. It took a long time to get a diagnosis, as his doctor first thought he had a sleep disorder. He kept on asking for seizure videos,...

I believe I got hit on the side of my head while playing baseball with my brothers, and that changed my life since on. After that hit the seizures started. My dad was in the service..air force,...

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