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of everyone affected by epilepsy

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I have had epilepsy since I was 11 for grand mal seizures and after being on Sodium Valproate most of my life, I was having trouble conceiving . I was very naive - the obstetrician advised me to...

Just like anyone else during these challenging times, I’ve been worried about getting the dreaded coronavirus.

Although epilepsy hasn’t been officially classed as making people more ‘at...

I am the youngest in my family. I am registered epileptic despite I have not had a fit for over a year now.

I used to attend to a local group for people that are epileptic once every first...

REDHILL ARNOLD NOTTINGHAM

Fraizer is 7 and was diagnosed with epilepsy in September this year. He has focal onset epilepsy with focal to bilateral tonic clonic seizures. “He had his first seizure in May and it absolutely...

Charlie, my son, was 4 years old when he had his first seizure.

He was eating his breakfast when he dropped to the side, giggled and his right arm extended. I couldn’t believe what I was...

Worthing, West Sussex

I developed epilepsy in my early twenties when I had a small seizure while driving. I went to hospital to get checked out and was diagnosed.

Further tests showed I’d a partial seizure and...

Northern Ireland

Victoria, 30, from Londonderry, had her first seizure when she was 13 years old, and was diagnosed at 14.

She has tonic clonic seizures, absence seizures as well as myoclonic jerks. At the...

Londonderry

Sezuires began with a bang, 8 in 12 hours remember nothing of it ,apart from soiled clothes then waking in A&E, took year to diagnose.

Daily sezuires, gone from Senior Social Worker and...

Pontypridd,wales

As a child at 10 years old I began to have seizures in bed, my first frightened me to death, well almost. I remember coming round in hospital the next day not knowing what had happened but I do...

Middlesbrough

12 year ago I was having unexplained ‘episodes’, following a heart monitor for 1 week, it was found my heart was stopping for up to 15 seconds. Therefore I was given a dual chambered pacemaker for...

Co Durham

Paul, 52, from Greenisland, Northern Ireland, was diagnosed with epilepsy ten years ago. His wife found him when he was having his first tonic-clonic seizure and had to call emergency services as...

Greenisland, Northern Ireland

I had my first seizure while in front of a computer screen, then nothing till two years later on the hottest day of 2019 which I think was caused by stress.

In my seizures I have to go to...

Norfolk

I'm Ojijo .M. Odhiambo from Kenya.Today , i'm going to talk about how epilepsy has affected my education journey.I'm a 4th year student pursuing Mechanical Engineering at The Technical University...

Nairobi - Kenya

My Epilepsy journey started when my close family and friends and also work colleagues had noticed me having absence/focal seizures (thought it was just anxiety) maybe twice a year since 2016..I...

Bexhill-On-Sea

I am Amy, I’m 23 from Hertfordshire and I have suffered from Epilepsy since November 2016.

I was completely seizure-free until I was 19 and suffered my first ever seizure. I still haven't...

Hertfordshire

“I had my first tonic clonic seizure in March 2018, when I was asleep in bed. I realised how serious things were when there were two paramedics standing over me in my bedroom putting an oxygen...

Northern Ireland

I was diagnosed when I was about 4 years old, it took doctors four years to diagnose me with Epilepsy.

I was having seizures off the bat and my neurologist was trying to figure out...

Roseanna has had epilepsy since she was 21. She has focal seizures that are caused by a scar on the temporal lobe of her brain. Her seizures are mostly controlled by medication now, but she says...

Enniskillen

Diagnosed with epilepsy at the age of nine.. after having nearly died due to the fact that a hit a Load of bricks after that never had a seizure my doctors thought I grew out of it.. but when I...

Cardiff

I had my first seizure when I was 4 years old. Since then it has come and gone, going up to 4 years without one. During my teens and 20's most seizures were caused by being careless. All being...

Norfolk

I was diagnosed with meningo encephalitis at the age of six weeks, and suffered a stroke on my left hand side.

I was prescribed Phenobarbitone for convulsions til I was eight years old. At...

Ipswich

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