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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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Hi, I've written this article before and wondering if anyone else has had the same experience. My EP came on 28 years ago and have tried most med's but no joy. I now have afternoon naps which I've...
Cheshire

My name is Ella and I'm 17 years old. I'm a chronic illness advocate, fundraiser and motivational speaker.

I started having absence seizures when I was a toddler, which caused me to miss a...

Kent

When I was born I was breach and suffered brain damage due to forceps delivery. My parents were told I would not live due to suffering Sub-Dural Brain Haemorrage or would be mentally handicapped...

York

When I was 12 I was on holiday with my family in Turkey.

On the first day I went back to the room to get some more sun cream and I went to sit on the end of the bed then the next thing I...

Wirral

When I was 14 I was constantly having seizures I was so confused at the time because so many doctors were telling me so many different things when the doctors finally told me I have epilepsy I...

London

I was diagnosed with juvenile myoclonic epilepsy (JME) when I was about 20 years old. Since then, I have been prescribed several anti-epilepsy drugs to help control my seizures. The first drug I...

Soooo ... 11 years ago, I woke up late for work and I was tired and was ironing my uniform when suddenly my tummy felt weird and all of a sudden I had De-Ja-Vu.

These continued every 3...

Watford

Life is what happens when you are busy making plans.. (or cancelling plans it seems at the moment)
Christmas and New Year is often a time most come to reflect and that doesn't exclude me....

I’m Amy, I’m 18, and I’m from Southampton. My epilepsy journey has been a roller coaster, I will tell you that!

At 14, one day out of nowhere my eyes went into the back of my head. I was...

Southampton

I have had epilepsy since I was 11 for grand mal seizures and after being on Sodium Valproate most of my life, I was having trouble conceiving . I was very naive - the obstetrician advised me to...

Just like anyone else during these challenging times, I’ve been worried about getting the dreaded coronavirus.

Although epilepsy hasn’t been officially classed as making people more ‘at...

I am the youngest in my family. I am registered epileptic despite I have not had a fit for over a year now.

I used to attend to a local group for people that are epileptic once every first...

REDHILL ARNOLD NOTTINGHAM

Fraizer is 7 and was diagnosed with epilepsy in September this year. He has focal onset epilepsy with focal to bilateral tonic clonic seizures. “He had his first seizure in May and it absolutely...

Charlie, my son, was 4 years old when he had his first seizure.

He was eating his breakfast when he dropped to the side, giggled and his right arm extended. I couldn’t believe what I was...

Worthing, West Sussex

I developed epilepsy in my early twenties when I had a small seizure while driving. I went to hospital to get checked out and was diagnosed.

Further tests showed I’d a partial seizure and...

Northern Ireland

Victoria, 30, from Londonderry, had her first seizure when she was 13 years old, and was diagnosed at 14.

She has tonic clonic seizures, absence seizures as well as myoclonic jerks. At the...

Londonderry

Sezuires began with a bang, 8 in 12 hours remember nothing of it ,apart from soiled clothes then waking in A&E, took year to diagnose.

Daily sezuires, gone from Senior Social Worker and...

Pontypridd,wales

As a child at 10 years old I began to have seizures in bed, my first frightened me to death, well almost. I remember coming round in hospital the next day not knowing what had happened but I do...

Middlesbrough

12 year ago I was having unexplained ‘episodes’, following a heart monitor for 1 week, it was found my heart was stopping for up to 15 seconds. Therefore I was given a dual chambered pacemaker for...

Co Durham

Paul, 52, from Greenisland, Northern Ireland, was diagnosed with epilepsy ten years ago. His wife found him when he was having his first tonic-clonic seizure and had to call emergency services as...

Greenisland, Northern Ireland

I had my first seizure while in front of a computer screen, then nothing till two years later on the hottest day of 2019 which I think was caused by stress.

In my seizures I have to go to...

Norfolk

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