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My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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The first thing I remember is waking up being surrounded by my mum and a paramedic and I didn’t know what had happened and I couldn’t recognise my mum I was so scared I looked at the paramedic...

Hi,
i am a 15 year old girl who has had epilepsy since age 3. It has effected my schoolwork so much since i was diagnosed. I would always have daily seizures at school in grade 9. I just got...

I’ve had epilepsy 30 years and it still catches me off-guard. I may have had the condition for a long time, but until the end of 2017, I didn’t really accept it.

I ran to Australia and...

Ventnor

I am epileptic, amongst other things, and my health is far from brilliant. But that does not define me. I am Ruth. I am a fighter. I am a warrior.

I was diagnosed with epilepsy at aged...

Hull

hi everyone
I like to tell you more about myself I started having fits when I was 5 which then led to me having them for a few years was on medication for but the specialist I seen when I...

abergavenny

My name is Rob, I was diagnosed with epilepsy in 2001 when I was 15 and I continued to struggle with the condition right up to around the age of 23 when my brain decided to calm down. Although,...

Ely

I was diagnosed at 18 with epilepsy, I had just passed my driving test and started University. I had Tonic-Clonic seizures having no idea when they were going to happen, I thought it was quite...

Durham

Hello everyone
around 3am yesterday morning when my warning for my epileptic seizure fizzed my brain i knew for a few minutes i was going to into that other world - into a kind of central...

Atherton M46 0LJ

I had a grand marl fit about 15 years ago. At the time I worked night's as a staff nurse and suffered more and more migraines but out it down to the work. . Anyway the MIR scan showed a benign...

Rhondda Cynon Taff

I had my first seizure aged 36. I was at work at the time, in a very busy kitchen. I had just pulled a check from the printer, and I was going to read this out to the rest of the kitchen, but...

Edinburgh

I was diagnosed at age 14 with adolescent onset epilepsy. Right away, the conversations in my immediate circle were all focused around how to help me feel "normal." My parents raised me to not...

Kansas

Experienced my first seizure at 9 years old as I was leaving an assembly. It was the most bizaar experience that I still struggle to describe, like every sensation you could imagine all happening...

Penrith, Cumbria

Hi all, Had epilepsy from young age. Have partial seizures/ absence about twice a month.am working .i am sporty playing squash /gym 2-3 times a week. Have had a couple of worse seizures when I...

Birmingham

I am a 37 yr female who at the age of 14 whilst carrying out a weekend job in a clothing store started to get jerks in my arms whilst serving customers.

This was particularly bad when I was...

Exeter

In January this year, I was admitted to hospital after suffering two seizures. It turns out I had CVST (a blood clot in the vein of the brain that caused a stroke).

At the time my...

Bristol

Pet Shop Boys

I'm writing because I've had a fantastic weekend however it's made me acutely aware of the...

So here's my story of my epilepsy.

Through childhood I had a few partial seizures that my parents were told I had epileptic tendencies but they didn't know if they would develop or not....

Newport

I love creating my graphic design pieces because it enables me to express both my passion for design and also my thoughts and emotions when I created my designs. When I create my graphic design...

London

I was once an active young woman; I loved my job as a care assistant, and I enjoyed walking, swimming and cycling. Slowly and surely, though, epilepsy robbed me of my balance; it became too...

Chelmsford

My name is laura I have always had epilepsy since birth when I was younger I never used to be able to do much apart from stay in the house then in my late teens I aloud myself to go out with...

Kidwelly

Sioned’s life became difficult when her son Elis was diagnosed with epilepsy at a young age. She was close to a break down, not sleeping and not allowing her son out of her sight. With the help of...

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