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of everyone affected by epilepsy

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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Susan was 16 when she was diagnosed with epilepsy after a seizure at school. She was prescribed valproate, which proved effective in controlling her seizures. But she was never told at any point...

Belfast

Living new life with Epilepsy.

When I last saw my Epilepsy specialist many months ago at a hospital, she suggested I change one of the medications I've been taking for many years to a more...

Tunbridge Wells, Kent

I have a very unpredictable kind of epilepsy, no aura and clonic tonic seizures every couple of months without meds. Thankfully it’s been under control for 8 years now. I am on a lot of meds...

London

My son was born August 2000. At the time I was on 3500mg Sodium Valporate and 1000mg Pregabalin.

He was born with Secondary Spina-Bifida, Hydrocephalus, 2 cysts on the brain, vision...

Manchester

My name is Olivia, I am 21 years old and I was diagnosed with tonic- clonic epilepsy when I was 6 months old. My condition is rather sporadic, and I have no idea when my episodes will come and the...

Hi I’m Joe.

I was first diagnosed with refractory multifocal epilepsy at the age of 15. I really struggled to accept my diagnosis the first few years. I felt like I had been robbed of being...

Hertfordshire

Seizure Talk - Hi all, there is a link below to my YouTube channel to talk about my journey to get to 1-year seizure free! More than that, to talk about epilepsy and living it with it in everyday...

Kent

Hey I’m Katie

I have suffered with epilepsy since I was 8 years old, I was diagnosed with Nocturnal epilepsy. I had seizures while sleeping which were grandmal seizures.
I was put...

Warrington Cheshire

For #VolunteerWeek2020, Sara has shared her story of volunteering with Epilepsy Action.

“I have been a volunteer with Epilepsy Action for around twelve years and in 2015 became an...

Hi, my name is Lee, living in England with my own property at Great Barr of Birmingham, now being 49 there are many things seen but plenty more of which wanting for seeing in large hopes having so...

Birmingham

This is Robyn, she is 4 1/2 yrs old. She is still under investigation for epilepsy after almost 2yrs of having the episodes.

It is a bit difficult with her as the specialists strongly...

Llandovery, Wales

Hi my name is Holly McCallum, this is my story.

I was first diagnosed back in 2015 with epliepsy, and to be honest I did not how to feel or how I was going to get though it all.

The...

Birmingham

My name is Barbara and I am Italian.

I am on the autistic spectrum, and due to violent traumas during my childhood, I am epileptic.

The episodes started in my teenage years and up to...

Italy

My name is Molly, I was diagnosed with right temporal lobe Epilepsy when I was 14. After having a seizure in a swimming pool and nearly drowning I became really scared of having Epilepsy and how...

South Wales

My name is Cristyn, I first started with Epilepsy when I was 3 years old until I was 7.

I had tonic clonic seizures but as I was so young I can’t remember it ever affecting me. However, at...

North Wales

Hi my names Sharon I’ve had epilepsy since the age of 18 months old. As a child I didn’t have it easy as I was bullied at school, it continued for ages and I struggled with school as I missed out...

Southport

MY EPILEPSY JOURNEY BLOG

This blog is when I got first diagnosed with childhood juvenile absence epilepsy. When I turned 5 years old the start of it was when I was just ignoring my...

Waterlooville

I was in the army for 12 years then costruction industry for 45 years. One night I had a memory loss, I couldn't speak or answer my wife, I had slid off a chair.

My wife phoned the hospital...

Lossiemouth moray Scotland

Hi All. I had my first seizure aged 45 it came totally out of the blue and totally changed my life.

I had a Tonic seizure which lasted about five minutes and put me in hospital for two...

West Mids

Hello my name is Natasha, I am 31 years old.

I randomly began having seizures aged 21, ten years ago, I was put on Keppra and diagnosed with Generalised Epilepsy.

I really need and...

Bradford

Hi my name is Gemma and I suffer from myclonic and tonic-clonic sezuires.

I was in year 7, aged 11 when I had my first seizure, I was in a French lesson writing something on a interactive...

Hertfordshire

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