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My Story: epilepsy

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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Hello everyone. My name is Christina Marshall and I have complex partial seizures. I have 3 different types of seizures and I also have seizures in the night as well. Living with epilepsy for me has...
London

Aislinn Carlile volunteers for Epilepsy Action Northern Ireland’s Ballynahinch coffee and chat group. Located in a rural area, the group gives people affected by epilepsy a much-needed opportunity...

The Norwich Epilepsy Action coffee and chat group has shown an outstanding commitment to the cause of epilepsy. They have been a vital source of support for people living with the condition, their...

Norwich

Maureen Taylor and David Streets have been key in the development of the Sheffield Branch of Epilepsy Action, which was initially set up in 1989. It is now one of the most consistently best...

Sheffield

Tell us more about the day you had a seizure in public while pregnant and what a difference someone helping made to you.

6th March 2015 remains the worst...

“One time I had a seizure on the platform at London Bridge. Luckily, a member of the public was able to catch me as I was about to fall in my tonic clinic seizure. They protected my head,...

West London

Angel was diagnosed with epilepsy when she was 14, nearly four years ago. She has had very mixed experiences in public.

“My seizures are usually once a month and can be triggered by stress...

Becky’s first seizure happened in February 2018 when her son found her on the bedroom floor. Medical tests came back inconclusive and she was told it was a one- off. Six months later, Becky was...

Francesca was 14 when she had her first seizure out of the blue, on a sailing holiday in France.  She has multiple types of seizures, including tonic-clonic, myoclonic and absence seizures....

Ryan started having seizures as a young child, but went for five years without an official diagnosis of photosensitive epilepsy.

“It’s thought I developed my epilepsy as early as 7 but it...

Scotland

I was diagnosed with photosensitive epilepsy when I was 14, which really got me down for some time. I hated having seizures as they always made me feel awful afterwards, and each time I had one it...

London

I had my first seizure when I was around 8, I remember my mum telling me years later that they told my parents that I would grow out of it, as it was just a behaviour and attention seeking...

The first thing I remember is waking up, surrounded by my mum and a paramedic. I didn’t know what had happened. I couldn’t recognise my mum and I was scared. I looked at the paramedic hugged her...

I am epileptic, amongst other things, and my health is far from brilliant. But that does not define me. I am Ruth. I am a fighter. I am a warrior.

I was diagnosed with epilepsy at aged...

Hull

The dedication of the Epilepsy Action Harrogate branch and a team of paediatric nurses has paved the way for a new paediatric epilepsy specialist...

Harrogate

For Volunteers' Week 2018 we are celebrating the fantastic people that help us make a difference every day. Katie is from Leeds. She has been volunteering for Epilepsy Action for 2 years in the...

Leeds

I’m Raphael and I’m a normal happy 6 year old rebel. At times, when I'm asleep, I suffer from nocturnal seizures.

My 8 year old sister annoys me on a daily basis but are truly the bes of...

London

Epilepsy is a weird one for me. I’ve had grand-mail seizures since childhood, but I’m very lucky to only have them a few times a year if I manage my lifestyle. I have fits if I don’t sleep, this...

Leeds

I've had seizures since I was 9 months old. Mum was constantly being told they were breath holding attacks or just the temperature during summers. I've had them on and off ever since. I'm now...

Swaffham

It was August 2001 and I was 11 years old, due to start my first week of high school in 3 weeks.
It all started in the hall.... everything went black and the next thing I remember was waking...

Belfast

I was diagnosed with Epilepsy in May 2016, at the age of 20 years old. I was in my second year of University, I remember walking to a friends house, and the next thing I knew I was lying in the...

Redruth

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