Fraizer is 7 and was diagnosed with epilepsy in September this year. He has focal onset epilepsy with focal to bilateral tonic clonic seizures. “He had his first seizure in May and it absolutely terrified us all,” Kelly says.
The family have had to adjust quickly to his diagnosis. “Fraizer’s lost so much independence this year. He can never be on his own and we have to watch him constantly. But he amazes us with how positive he is about it all. Seeing your child go through something so hard is absolutely heart breaking,” Kelly admits. “His little sister Ella has witnessed most of his seizures too. It was so scary for her at first, being 5 years old, but she helps us and helps him when he’s having one. No child should have to go through this, but they are both so brave and make me so proud.”
This November, as part of epilepsy awareness month, Fraizer and the whole family are giving up their treats, which means no crisps or chocolate until 1 December. Kelly admits “there has been a lot of snacking this year, especially during the last lockdown. In this new lockdown, I thought we could do with a bit of a challenge, to do something positive after his epilepsy diagnosis.” She says. “Frazier himself suggested cutting out all crisps and chocolate, which I think will be a struggle for all of us!”
Kelly and Fraizer wanted to fundraise for Epilepsy Action, especially as they hope more people can learn about seizure first aid.
“Fraizer had a seizure in the Trafford Centre when my sister and her partner were looking after him. One lady told him to put a finger in Fraizer’s mouth and get his tongue out, which was terrible! My sister’s partner was injured as a result. If everyone took 5 minutes to learn how to help someone having a seizure, you could save a life. We’re learning too, as it’s all so new - but I’ve read up a lot on the Epilepsy Action website and have shared their videos. I just want to give back in some way.”