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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I’m Raphael and I’m a normal happy 6 year old rebel. At times, when I'm asleep, I suffer from nocturnal seizures.

My 8 year old sister annoys me on a daily basis but are truly the bes of...


In May of this year, I was diagnosed with Juvenile Myeclonic Epilepsy. For at least 8 months before I was diagnosed, I had suffered with multiple Absent Seizures. After two EEG's, and multiple...


Epilepsy? Seizures? On April 1st in 2015 my life was going to change completely! Gigs, Mallory Knox & lots of travelling is one of my favourite hobbies alongside helping volunteer with adults...


My name is Amy Bassett, I am 22 years old, I live in South Wales, I study Psychology with The Open University and I have had Epilepsy for about 4 and a half years now. In July 2013 I ended up in...


I am delighted to say that we, as TeamMAX have just completed the Epilepsy Action Grand Canyon Trek in memory of my 22 month old son Max. Max tragically died in June last year due to Sudden...

Wimborne, Dorset

I got accepted to be a model in a London modelling studio, I was told I was very model material and had the facial bone structure of a model, I'm am travelling down to London of the 29th of May. I...


Not letting epilepsy get in my way Although I have epilepsy, I have tried to never let it stop me from following my dreams. One of my main achievements was having a great time at university, both...

University in Germany and Wales

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