We fight to improve the lives
of everyone affected by epilepsy

Joe Irving

Hi I’m Joe.

I was first diagnosed with refractory multifocal epilepsy at the age of 15. I really struggled to accept my diagnosis the first few years. I felt like I had been robbed of being able to experience being a normal teenager. As the years went on, I learned to become resilient and try my best to come to peace with my diagnosis.

I am currently 28 years old and have tried various medications with very little luck. I have gone through many years of video telemetry in order for my doctors to understand the areas of my brain which are affected when I have seizures. Back in 2018 I underwent an intercranial EEG procedure in the hopes of being an eligible candidate for resection surgery, but was unfortunately not a candidate as my seizures came from different areas of the brain and could not be pinpointed.

I have love and support from my wife, family and friends and try my best to lead a normal life. I also have an amazing team of doctors that have and continue to help me along my journey. My hope is to continue to persevere in my career and build the kind of life I want despite my circumstances. I don’t ever want others to treat me differently because of my condition. I have often felt misunderstood and sometimes struggle to articulate my thoughts verbally due to my condition. I, like I’m sure many others that live with epilepsy would agree, just want to feel normal.

As frustrating as it is that my seizures are not yet under control, I have high hopes for the future and look forward to the possibilities that advancements in technology and medication have to offer. I want to spread awareness and help others that are like me. My message for anyone who has recently been diagnosed: Keep fighting and never give up! I refuse to allow my health to limit my potential and achievements.

Joe Irving
Add your story

Comments: read the 3 comments or add yours

Comments

Great article Joe!!

Submitted by Tom on

Thank you for sharing!2020

Submitted by Brenda on

Great article make the most life you as can similar experience
Wait for technology to improve as doctors said attacks triggered by eeg one side, ct other technology improved confimed

Submitted by Graham on
Question about your epilepsy?

Your question will be sent to our helpline advisors.

Have a comment about this page?

All comments are reviewed by a moderator before publishing. Comments will be edited or deleted if they are offensive, libellous, slanderous, abusive, commercial or irrelevant.

We ask for your email when you make a comment through this website. This means that we can let you know directly that we have replied to you. By making a comment through the website, you allow us to use the comment in our publicity without using your name. If we would like to use your name, we will email you to get your permission.

CAPTCHA
This question is for testing whether you are a human visitor and to prevent automated spam submissions.
2 + 6 =
Solve this simple math problem and enter the result. E.g. for 1+3, enter 4.