My six year old son, Samuel has an undiagnosed seizure condition, and has many varying forms of seizures. He also randomly goes into status epilepticus and has to be hospitalised.
Samuel also has global developmental delay, partial eyesight, Gatrointestinal Reflux, Double Hip Dysplasia, Dystonia and Scoliosis. This severly effects his movement and mobility.
I gave Samuel a keyboard, and this year he has just learnt to raise his hand to play a note on his keyboard. I never thought I would see the day. I am so proud of him. I filmed him, and find it so humbling to see his effort.
I've shared Samuel's achievement to help highlight epilepsy. Tracey Jones