My Story: Live

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I’ve had epilepsy 30 years and it still catches me off-guard. I may have had the condition for a long time, but until the end of 2017, I didn’t really accept it.

I ran to Australia and...


In May of this year, I was diagnosed with Juvenile Myeclonic Epilepsy. For at least 8 months before I was diagnosed, I had suffered with multiple Absent Seizures. After two EEG's, and multiple...