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Claire

My name is Claire. I was diagnosed with epilepsy when I was 8 years ago I was only 9 years old. I am now 16 years old. I have had quite an experience with epilepsy. My first seizure happened in March 2009 just when I came home from school and I started staring into my wardrobe my mum knew there was something wrong as I wasn't responding. The next few months were constant check ups, MRI scans and EEG scans to see what was going on. But then I took 2 more seizures within a space of 4 months of my first seizure this therefore confirmed more it was epilepsy. I took both focal seizures and tonic clonic. I was put on to medication which stabilised me a bit. When I hit Christmas I was having focal seizures everyday. This would have went on for spells of 4 weeks then stopped again. So then they considered doing surgery on me but because when they tried the video EEG the seizure spread to fast round the brain they couldn't capture the small area this wasn't possible.

When I started high school it become more nerve-racking with getting the bus etc. In first year I broke my leg due to a seizure which caused me to be off for 6 weeks in cast. This scared me. Thankfully my friends were all very understanding towards me and always kept a close eye out for me. I have had lots of medication changes throughout my time of having epilepsy.

When I was going through the worst spell of seizures I just felt soo down like why me. I felt it was a dark hole I would never get out of, but once they got my medication sorted again I felt more happy. So on the 3rd March 2016 I will be a year seizure free. And on the 3rd April 2016 I am planning to learn to drive if I have no seizures!!

Claire
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