We fight to improve the lives
of everyone affected by epilepsy


I had my first seizure on 29th October 2013 when I was 18 years old. When they said they found irregularities in my brain waves from my EEG and that I had Epilepsy my heart sank and I felt very angry and upset. Part of the reason for this was I was severely tested for epilepsy twice, on 2 separate occasions as a child and they never found anything.

When I first got diagnosed my thoughts were why has this happened to me? what am I going to do? Am I going to lose my job? I went a bit mad I went out about 4, 5 times a week and drank a lot because I was so upset and angry and very very afraid and I felt what was the point. I felt like I couldn't talk to anyone because no one would understand, I felt very very alone. Sometimes I still get those feelings but not nearly as much as I did.

Now I feel a lot better I've come to terms with it more now and the people at my job have been amazing and supportive and I wouldn't of been able to get through this if wasn't for the amazing support and understanding of my house mates, other friends and family. I feel as though I can get through this and even though I still find it hard to approach people and open up about it, I feel that I can have a life and there is some sort of light at the end of the tunnel.

Add your story

There are no comments yet. Be the first to comment...

Question about your epilepsy?

Your question will be sent to our helpline advisors.

Have a comment about this page?

All comments are reviewed by a moderator before publishing. Comments will be edited or deleted if they are offensive, libellous, slanderous, abusive, commercial or irrelevant.

We ask for your email when you make a comment through this website. This means that we can let you know directly that we have replied to you. By making a comment through the website, you allow us to use the comment in our publicity without using your name. If we would like to use your name, we will email you to get your permission.

This question is for testing whether you are a human visitor and to prevent automated spam submissions.
14 + 6 =
Solve this simple math problem and enter the result. E.g. for 1+3, enter 4.