We exist to improve the lives
of everyone affected by epilepsy

 

My Story

Add your own

Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

Most recent | Most read

I have been taking Epilim 500mg twice daily since the age of 13. I have 4 sons. My eldest is 28 and the doctor believes that he has 'Marfans Syndrome ' but he didn't complete the tests, hence a...

Wickford Essex

What I wish I could still say...

I've written here many times throughout the last 6 years but not so much recently because I'm fine and seizure free but actually today I realised there are...

Halifax

Today is the day I can no longer say ‘…but it’s okay, I’m seizure free’ when explaining my condition.

I have been diagnosed with epilepsy for over 7 years. I am the first one to make light...

Bournemouth

I had a difficult birth and I was born with on shorter leg to one foreign parent and one not .
When I was three I was struck by a speeding tow truck in a ghetto in anchorage alaska off...

Juneau ,Alaska

I had my first seizure about 7 years ago, when I was 21. I was in my last year of university, and it scared my flatmates and me. None of them had seen a seizure before, but luckily they did the...

Chessington

My name is Elle and on the 18th November 2010 at 9:23PM I had my first tonic clonic seizure . Fast forward to September 16th , after an MRI and 2 EEGs and around 50 more seizures , I got my...

Wallington

I've always wanted a normal life. To pursue my passion, to write stories, to create music, to finish my college and to have my dream work. I want to be a normal person. I was 15 years old when I...

Laguna, Philippines

I was only young teachers always gave me a hard time not all of them but some I was only 6 and already felt isolated. Mum kept getting told "something isn't right" to us I was healthy. But...

Newquay

In May of this year, I was diagnosed with Juvenile Myeclonic Epilepsy. For at least 8 months before I was diagnosed, I had suffered with multiple Absent Seizures. After two EEG's, and multiple...

Staffordshire

Hello everyone

My name is Emma. I had my first epilepsy experience in 2011. Between then and 2013 it was debated on a number of occasions and I kept blacking out.

January 31st I...

Leyton

I have a form of Epilepsy called JME (Juvenile Myoclonic jerk Epilepsy) which I was diagnosed with in my late teens.
I had my first full blown seizure at 12 and my second at 15.
My...

Abergavenny

My life story
I was an extremely active child, walking and talking at a very young age, never sleeping a full night until I started school. When I was 7 I started to have tonsillitis which...

Bedford

In 1996 I was diagnosed with epilepsy. I didn't know much about epilepsy Butler quickly I tried many tablets to try and control my seizures eventually it was under control and by 1999 I was back...

Maldon Essex

Even though there is an American with Disabilities Act (ADA) protecting people with disabilities including epilepsy, there is still a lot of people in this developing world who still treat a lot...

san francisco sunset district

I have decided i want to take part in Tough mudder this year to help raise money and awareness for epilepsy. Last year i met the love of my life and we have been on an incredible journey and are...

Eagle

I had a few very seriously knocks to my head growing up from leading a active life. From age 18 I would get intense episodes of knowing what was going to happen in the immediate future. I was...

Wellington , New Zealand
Change a life
...

At the age of 24 I gave up my masters degree for a job I thought I had always wanted, however within a few weeks I started going dizzy and absent.

After being diagnosed with stress I...

Bridgnorth, Shropshire

Oliver's first seizures appeared when he was around 18 months old and his mother, Moira, was pregnant with our daughter.  A few months later, he was admitted to hospital having had a sequence of...

Comber

My name is Rachel Skaug, formerly Rachel Kaalberg, and I used to have epileptic seizures as a child. My seizures started at four months old, which was in 1988, and lasted until I was 10 years old...

Bemidji, Minnesota

Jon shared his story with us for Volunteers' Week 2017. Find out more about volunteering for epilepsy Action.

Jon volunteers for Epilepsy Action because his son,...

Pages

e-action newsletter

Subscribe to our e-action newsletter and stay informed

Subscribe to e-action newsletter feed