Medication access could worsen: 4 tips to avoid running out

Problems with medication access could get worse again in England, according to recent news reports.

Issues accessing medication became widespread in 2024, when they were called ‘the new normal’ by the Nuffield Trust.

People with epilepsy are one of the groups particularly affected by these shortages, as many are on long-term medication. Changes or disruptions to their prescribed medication can result in worsened or breakthrough seizures, which, in some instances, can be life-threatening.

There have been multiple reports over the last two years of people failing to access their medications from pharmacies and experiencing fatal seizures.

News reports say the Iran war is disrupting global supplies, and rising prices and a convoluted system around funding medicines in England is causing additional pressures.

Epilepsy Action has been calling for a review of the supply chain, highlighting that problems with it place people with epilepsy at “risk of sudden, sometimes fatal seizures”.

In a letter to MPs last year, Epilepsy Action, Epilepsy Society and SUDEP Action wrote: “If action is not taken to properly understand the crisis we face and explore potential solutions, it will worsen. A review into the shortage of vital medications is urgently needed.”

In October last year, the government said that “most issues” with medication supplies had been resolved, but recent research found that this issue was still widespread in the last year.

What can I do so I don’t run out of medication?

• Try to get your prescription earlier so if there is a problem you can try a different pharmacy or ask them to contact a different wholesaler. Independent pharmacies are more likely to be able to do this.
• Use our Don’t Sub My Drug guide (available on our website) for more top tips and advice on discussing options with your pharmacist.
• You can also request a Charlie card from SUDEP Action which allows you to request a minimum emergency supply from any chemist if you find yourself without your regular medication.
• If you have any concerns and have been experiencing any issues getting your medication, get in touch with our Epilepsy Action helpline.