We exist to improve the lives
of everyone affected by epilepsy

Become a media volunteer

We get requests each week from the media, often wanting to interview someone with epilepsy who have a story to tell. Talking about your own experience is a good way to raise awareness and educate people about epilepsy. Your story might help other people with epilepsy and their families to realise they are not alone and how to access help and support.

If you're happy to help by sharing your story then please let us know using the form provided. Please remember to give us a daytime contact number or email address if you have one.

Please be aware that, although our press office can provide journalists with information about epilepsy, ultimately, we have no say in whether an article is printed and little control over the final printed version of an article.

We're looking for people willing to talk about any aspect of their life with epilepsy.

Register as a media volunteer

Comments: read the 2 comments or add yours

Comments

I have epilepsy and have had it since I was 12 . I was originally on epilim but when I had kids I had to go on something else and my epilepsy spiralled out of control . Huge seizures hospital admissions . I tried not to give up became a nurse and have 4 children . My last two were twins so epilepsy was awful during pregnancy but as they were my last I went back on epilim 3 years ago.
I have been seizure free for 3 years longest ever and after 20 years at 38 yrs old this was me yesterday

Submitted by Becky Bevan on

Hi I was diagnosed with epilepsy at age 11 I am now 51 .At present I have complex partial seizures,but I have had tonic clinic seizures absences.I used to Bea support worker for people with learning disabilities a job which I did for 18years , but when my epilepsy spiralled out of control I was pushed into early retirement due to ill health.I describe living with epilepsy as like being on a rollercoaster one minute I'm down the next I'm up losing my job was a big thing for me it sent me into depression ijust didn't know what to do I was literally climbing the walls some days and pulling my hair out .Luckily now I've come through that and I've decided to fight back I go to zumba 3 times a week and that gets me out of the house meeting new people I also like to do a bit of gardening and I also did the bunny hop for purple day last year which I was so proud of myself because I've never done anything like that before,but I must say I couldn't of done any of these without the love and support of my family they have all been there for me in my time of need to pull me through the dark days .x

Submitted by Karen Ashton on