Purple Day #purpleday

Purple Day – on 26 March – is the one day of the year where people across the globe become a united force to bring epilepsy out of the shadows.

How does epilepsy make you feel?

Six out of 10 people with epilepsy have experienced feelings of loneliness since being diagnosed with the condition, according to our 2017 Purple Poll.

Epilepsy feels like I have lost myself

The poll asked over 1,000 of you how having epilepsy affected your life, other than seizures. Many of you said you have experienced feelings of stress, anxiety and low mood since you developed epilepsy. Over half of you said you had felt isolated.

It doesn’t have to be this way.

Purple Day is a chance to work together to change this.

Please show your support for people affected by epilepsy on Purple Day; people like Caz, Stacey and her family and Freema’s niece. Wear your purple wristband, talk to people about epilepsy and share stories on social media using the hashtag #purpleday.

Purple Day official logo

If you can, please donate £3 to Epilepsy Action by texting PURPLE to 70300.

For the latest purple info, follow us on Twitter and Facebook now!

If you have epilepsy and have experienced any of these feelings, Epilepsy Action is here to help. Contact the Epilepsy Action helpline or find your nearest support group.

It doesn't have to be this way...

Text PURPLE to 70300 to donate £3 today and help people living with epilepsy.

Text PURPLE to 70300

Text donate now

UK only. Epilepsy Action will receive 100% of your donation, texts will cost £3 plus your standard network rate. T&C apply.

Event Date: 
Wednesday 26 March 2014 (All day)

Comments: read the 10 comments or add yours

Comments

I've joined Epilepsy Ireland. They'd the International Epilepsy Day 9 Feb, run by the International Bureau of Epilepsy. Is that different from the Purple Day

Submitted by Gail Barry (not verified) on

Hi Gail,

International Epilepsy Day (the second Monday in February) is a new awareness day organised by the International Bureau for Epilepsy and International League Against Epilepsy. The day is still in its infancy, with this year’s the second of its kind.  Purple Day (26 March every year) is a grassroots movement started by schoolgirl Cassidy Megan in Canada in 2008. It has since grown in popularity to become the global awareness day for epilepsy, celebrated by people with the condition across the world.

Hope that helps.

Submitted by Vikki@Epilepsy ... (not verified) on

Had petite mals all my life and grand mals for almost 20 years.I recently had 3 seizures in one day resulting in a broken ankle, a night in hospital and as I'm a lone parent, my son who turned 8 yesterday, has to stay with friends and occasionally in temporary foster care. The worst thing about my epilepsy is not the seizures so much but it's the effect on my son who has had to call 999 for me since he was 5. It's my job to look after him and worry about him, not the other way around

Submitted by dawn (not verified) on

Hi my name is jen and I have had Eplilepsy all my life since the age of 11months of age to present day and over the years it has been up and down but the last couple of years have really been a few tough ones with the epilepsy as I have a few grand mal a couple of months part and then last September I started having drop seizures and I had 3 in space of a week one after another so I am just hoping now on more meds I will be ok again

Submitted by Jennifer 740373 (not verified) on

My husband who was the person who actually had epilepsy passed away on April 5th 2016. But I know that his diagnosis of epilepsy following a stroke four years ago was a source of great anxiety and stress for him.He had his first heart attack at age 36 and went onto have 33rd. But it was the epilepsy that really knocked him for six' he felt out of control and not being able to drive meant he was trapped virtually in the house since walking distances was a problem because of the heart problems. I feel that he gave up a little and was quite depressed. Then developing Parkinsonism and Lewy Body Dementia. Happily his med helped with the epilepsy and he was seizure free for his last year. But he suffered a lot. Carry on the good work it certainly helped me to understand the condition and helped me to help him.

Submitted by jo Boorman (not verified) on

Hi I'm 34 and I've had epilepsy since the age of 3. With medication I now only have several grand mals a quarter and numerous petite mals a month. As a teenager and child I didn't really tell anyone I felt it was something to hide, however now I don't. I'm sure like most people it comes up when people ask "why don't you drive?" then I explain them why. I don't feel it has held me back. I still played sports, went to university, went travelling, became a homeowner and work full time. I know I have been very fortunate. I also learnt to listen and understand my own body and recognise signs and triggers. There are certain things that trigger my own grand mals and I try to minimise these when possible. I am also fortunate that most times I get an aura before to give enough time to ensure I don't injure myself. This has helped a great deal. This could not have achieved without the help of the epileptic specialist nurse and neurologist who monitor medications over the years. I've been very lucky.

Submitted by mairead (not verified) on

I have had epilepsy for forty seven years, probably about four hundred seizures. Juvenile myoclonic epilepsy. Through medical research and improvement in medication life has improved somewhat, over the years, now fully retired and now able to get through to fellow sufferers via contact groups relevant epileptic specialist nurses and neurologist doctors and relevant web sites and compare symptoms and worries, some of the side effects of the various medications and graphic descriptions of some of my colorful seizures, life is much easier now, less stress leading to only having four seizures in the last four years, this is now probably the happiest time in my sixty one years.

Submitted by Shaun Cheyne (not verified) on

I've suffered with petit mal and the rare grand mal from childhood until mid 30s. Thankfully I had a doctor when working in Poland who put me on different medicine and saw me regularly instead of in the UK when my consultant's registrars would pick up my file and start from the beginning again. I feel that a more consistent in seeing the same doctor would help people. Now I don't have fits but I have constant headaches as I was prescribed Clonazapam when I was a teenager and I suffered awful withdrawal symptoms when coming off them. It took me 7 years to come off 2 x 2mg tablets. I feel frustrated that I have this pain each day, cannot drive due to my headaches and I wish I could go back to having the petit mal ones as I feel that by now new tablets would have stopped them. I could think clearly with those and I was much more cheerful etc - most people understand absences but they don't understand constant headaches that make you irritable. I wish I'd never been told to come off them.

Submitted by Becky H (not verified) on

Epilespy makes me feel very alone. Family have no patience or time for me. I am alone and it is a unbearable life.

Submitted by Dee Holland (not verified) on