Purple Day #purpleday

How does epilepsy make you feel?

Purple Day – on 26 March – is the one day of the year where people across the globe truly work together to bring epilepsy out of the shadows.

Purple day logo

For Purple Day 2017 we have been asking you about how your feelings are affected by epilepsy and, other than seizures, how the condition affects your daily life. Thanks to everyone who completed our Purple Poll – we had over 1,000 responses!

We’ll share what you told us on Purple Day. We hope this will help the general public to understand more about epilepsy and the impact it can have on people’s lives. 

If you want to hold a Purple Day fundraising event you can order our brand new pack.

We have a brand new design of wristband for 2017, and you can still grab one of our 2016 designs.

As we get closer to the big day we will be sharing more information and ways you can get involved. For the latest purple info sign up to our newsletter or follow us on twitter now!

Event Date: 
Wednesday 26 March 2014 (All day)

Comments: read the 6 comments or add yours

Comments

I've joined Epilepsy Ireland. They'd the International Epilepsy Day 9 Feb, run by the International Bureau of Epilepsy. Is that different from the Purple Day

Submitted by Gail Barry (not verified) on

Hi Gail,

International Epilepsy Day (the second Monday in February) is a new awareness day organised by the International Bureau for Epilepsy and International League Against Epilepsy. The day is still in its infancy, with this year’s the second of its kind.  Purple Day (26 March every year) is a grassroots movement started by schoolgirl Cassidy Megan in Canada in 2008. It has since grown in popularity to become the global awareness day for epilepsy, celebrated by people with the condition across the world.

Hope that helps.

Submitted by Vikki@Epilepsy ... (not verified) on

Had petite mals all my life and grand mals for almost 20 years.I recently had 3 seizures in one day resulting in a broken ankle, a night in hospital and as I'm a lone parent, my son who turned 8 yesterday, has to stay with friends and occasionally in temporary foster care. The worst thing about my epilepsy is not the seizures so much but it's the effect on my son who has had to call 999 for me since he was 5. It's my job to look after him and worry about him, not the other way around

Submitted by dawn (not verified) on

Hi my name is jen and I have had Eplilepsy all my life since the age of 11months of age to present day and over the years it has been up and down but the last couple of years have really been a few tough ones with the epilepsy as I have a few grand mal a couple of months part and then last September I started having drop seizures and I had 3 in space of a week one after another so I am just hoping now on more meds I will be ok again

Submitted by Jennifer 740373 (not verified) on

My husband who was the person who actually had epilepsy passed away on April 5th 2016. But I know that his diagnosis of epilepsy following a stroke four years ago was a source of great anxiety and stress for him.He had his first heart attack at age 36 and went onto have 33rd. But it was the epilepsy that really knocked him for six' he felt out of control and not being able to drive meant he was trapped virtually in the house since walking distances was a problem because of the heart problems. I feel that he gave up a little and was quite depressed. Then developing Parkinsonism and Lewy Body Dementia. Happily his med helped with the epilepsy and he was seizure free for his last year. But he suffered a lot. Carry on the good work it certainly helped me to understand the condition and helped me to help him.

Submitted by jo Boorman (not verified) on