We exist to improve the lives
of everyone affected by epilepsy

What research we do

Current research

Epilepsy Action has started a project to look more closely at epilepsy related deaths and do other funded research.

Epilepsy Action’s research strategy

Epilepsy Action strategic research plan 2014 - 2018

Our strategic research plan explains how Epilepsy Action will “promote and undertake non-laboratory social and medical research into epilepsy” during the period 2014 to the end of 2018.

Our focus

Our research strategy will ensure that research has not been considered or developed in isolation. All research related activity will support Epilepsy Action’s strategic aims, campaigning and services.

The strategy ensures that resources are allocated to carrying out studies and surveys which directly link to our core business activities and further our ten year goals.

To deliver Epilepsy Action’s ten year goals, we will focus our research activity on what we aim to see by 2022. This is:

  • Fewer epilepsy related deaths
  • Rates of epilepsy misdiagnosis going down
  • More people achieving seizure control
  • Fewer people having harmful side effects from anti-epileptic drugs
  • People with epilepsy informed about their condition and their views influencing their care and treatment
  • A reduction in the indicators of stigma
  • Evidence of positive changes in public attitudes
  • Evidence of greater social inclusion of people with epilepsy

Our research aims

Epilepsy Action has six research aims. These are:

1. To carry out research studies and surveys which support Epilepsy Action’s strategic aims, campaigning and services.

We will do this by carrying out a maximum of two agreed internally funded research projects each year

2. Support external research into epilepsy

We will support UK and, where appropriate,  international research into epilepsy, to accelerate discovery and maximise outcomes by:

  • Publicising research studies
  • Recruiting participants for studies through the Research Resources scheme
  • Enabling user involvement in the design of studies
  • Promoting active user involvement in epilepsy research
  • Dissemination (sharing the results of research)

3. Maximise research resources through partnerships and collaborations

We will work with external academics and research teams on bids for funding that fit with our aims.

4. Make the case for EU and UK government funding for epilepsy research

We will work in partnerships to address the need for increased funding for epilepsy research to address: treatment gaps, standards of care and the social and economic challenges faced by people with epilepsy.

5. Establish a small fund to award travel bursaries

Each year we will support four students to present their research where this relates to Epilepsy Action’s agreed priorities: Epilepsy Action travel busaries

6. Establish a small fund to award student bursaries

We will seek to support postgraduate students and early researchers to develop careers in epilepsy research when they have no sponsorship. In 2015 and 2016 we will offer three bursaries of £3000: Epilepsy Action postgraduate research bursaries.

Download more information about the strategic research plan

Delivering our research plan

The operational delivery of Epilepsy Action’s research is the responsibility of the Epilepsy Services Manager supported by the Research Officer. The Research Committee is responsible for overseeing the delivery of the research strategy, monitoring performance against milestones, targets and plans. The Research Committee reports to the Council of Management.

Epilepsy Action’s research strategy is to focus on non-laboratory research into epilepsy and so we do not fund research using animals. However, as a member of the Association of Medical Research Charities (AMRC), we support the principle of using animals in research only when it is absolutely necessary to advance understanding of health and disease or to develop new treatments. This research should only take place where there are no other viable techniques available.

All AMRC member charities support this principle, as outlined in this statement.

  • Updated November 2014
    To be reviewed November 2017

Comments: read the 2 comments or add yours

Comments

I am Moses Kerry from Papua New Guinea. I am thankful for the information and help provided here in this website. My family has a history of epilepsy, i believe we inherited. its very sad to see those of my family, uncle, aunty and sister who has suffer the physical, social and mental consequences of epilepsy. In PNG many people are also suffering from epilepsy, leaving many of the patient medically untreated and physically susceptible to many harm, injuries and early dead. In reality, the research and knowledge into epilepsy in PNG is limited and many people are unaware of epilepsy. Majority of the epilepsy patient in PNG are silently suffering physically and socially. It is my dream to address the health and social issue of epilepsy in my country and established better care and support centre for people with epilepsy.More research and awareness is needed for epilepsy in PNG which will lead to better health and social support for people suffering from epilepsy.
Finally my appeal is, as a postgraduate student and very interested in epilepsy research, i like to be part of the Epilepsy Action through its external research support, partnership and collaboration into epilepsy cases in PNG. I wil be very gratefull if given the opportunity and support to pursur my studies into epilipesy.

Thank you.

Moses Kerry

Submitted by Moses Kerry on

Hi Moses
Thank you for your message. We are so lucky in the UK to have good services for people with epilepsy. It must be really hard in your country.

I have been looking for any organisation which may help you. I have found the International Bureau for Epilepsy’s Western Pacific Regional Committee.

I do hope that’s useful for you.

And I look forward to the day when people with epilepsy all over the world have equal access to treatment.

Cherry
Epilepsy Action
Advice and Information Team

Submitted by Cherry, Epileps... on

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