Epilepsy Action’s research strategy
Epilepsy Action strategic research plan 2014 - 2018
Our strategic research plan explains how Epilepsy Action will “promote and undertake non-laboratory social and medical research into epilepsy” during the period 2014 to the end of 2018.
Our research strategy will ensure that research has not been considered or developed in isolation. All research related activity will support Epilepsy Action’s strategic aims, campaigning and services.
The strategy ensures that resources are allocated to carrying out studies and surveys which directly link to our core business activities and further our ten year goals.
To deliver Epilepsy Action’s ten year goals, we will focus our research activity on what we aim to see by 2022. This is:
- Fewer epilepsy related deaths
- Rates of epilepsy misdiagnosis going down
- More people achieving seizure control
- Fewer people having harmful side effects from anti-epileptic drugs
- People with epilepsy informed about their condition and their views influencing their care and treatment
- A reduction in the indicators of stigma
- Evidence of positive changes in public attitudes
- Evidence of greater social inclusion of people with epilepsy
Our research aims
Epilepsy Action has six research aims. These are:
1. To carry out research studies and surveys which support Epilepsy Action’s strategic aims, campaigning and services.
We will do this by carrying out a maximum of two agreed internally funded research projects each year
2. Support external research into epilepsy
We will support UK and, where appropriate, international research into epilepsy, to accelerate discovery and maximise outcomes by:
- Publicising research studies
- Recruiting participants for studies through the Research Resources scheme
- Enabling user involvement in the design of studies
- Promoting active user involvement in epilepsy research
- Dissemination (sharing the results of research)
3. Maximise research resources through partnerships and collaborations
We will work with external academics and research teams on bids for funding that fit with our aims.
4. Make the case for EU and UK government funding for epilepsy research
We will work in partnerships to address the need for increased funding for epilepsy research to address: treatment gaps, standards of care and the social and economic challenges faced by people with epilepsy.
5. Establish a small fund to award travel bursaries
Each year we will support four students to present their research where this relates to Epilepsy Action’s agreed priorities: Epilepsy Action travel busaries
6. Establish a small fund to award student bursaries
We will seek to support postgraduate students and early researchers to develop careers in epilepsy research when they have no sponsorship. In 2015 and 2016 we will offer three bursaries of £3000: Epilepsy Action postgraduate research bursaries.
Delivering our research plan
The operational delivery of Epilepsy Action’s research is the responsibility of the Epilepsy Services Manager supported by the Research Officer. The Research Committee is responsible for overseeing the delivery of the research strategy, monitoring performance against milestones, targets and plans. The Research Committee reports to the Council of Management.
Epilepsy Action’s research strategy is to focus on non-laboratory research into epilepsy and so we do not fund research using animals. However, as a member of the Association of Medical Research Charities (AMRC), we support the principle of using animals in research only when it is absolutely necessary to advance understanding of health and disease or to develop new treatments. This research should only take place where there are no other viable techniques available.
All AMRC member charities support this principle, as outlined in this statement.
- Updated November 2014To be reviewed November 2017