ThinkNinja for epilepsy
What’s it about?
Epilepsy Action is working with a digital mental health company called Healios, who have developed an app called ThinkNinja for epilepsy. The app has been designed to support the mental health, emotional wellbeing, and quality of life of people with epilepsy. The app is now ready to be trialled by people with epilepsy. There are two videos at the bottom of this page explaining a bit more about the app.
By taking part, you’ll be helping us learn more about the way technology can support mental health and emotional wellbeing in people with epilepsy.
Am I eligible to take part?
You can take part if you:
- Have had a diagnosis of epilepsy for at least 6 months
- Have a smartphone
What will I have to do?
- You will be asked to download the ThinkNinja for epilepsy app for free and use it for a specified amount of time.
- We will ask you to answer some questions online over the next few months. You will complete a questionnaire which will ask you questions about your feelings, mood, and how you interact with others.
- You will complete some short online questionnaires weekly, as well as slightly longer questionnaires three times during an eight-week period. You will also be asked follow-up questions eight weeks after the end of the study.
- You may be randomly assigned to the initial group of participants who will receive access to the app straight away, or you may be asked to start completing questionnaires straight away, but will need to wait for eight weeks to start using the app.
- All participants in the study will complete the eight-week programme and get full access to the content of the app. Participants will be informed of the results after the study.
What are the benefits of taking part?
- Access to mental health support via the Wise Ninja and resources on the app
- Access to information about epilepsy and mental health along with practical advice
- Access to a range of tools to help you manage your condition:
- Epilepsy diary
- CBT-based therapeutic skills such as how to spot and change unhelpful thoughts
- Ability to monitor your stress and anxiety levels
- Stress management strategies
- Ways to manage and prevent low mood
- Personalised wellbeing plan
- Access to text support from a trained wellbeing coach, and potential to access support from a clinical psychologist via video link
How do I get involved?
If you have any questions, you can email firstname.lastname@example.org. The project team will do their best to answer your questions quickly.
Is there a deadline?
Who is conducting the research?
Chief Investigator: Dr. Frank Burbach
Tel: 0800 3688890
Address: Healios Ltd, 4a Tileyard Studios, Tileyard Road, London, England, N7 9AH
Who has reviewed this study?
This project has been reviewed by the Cambridge East Research Ethics Committee and MHRA.