Where: We meet in a private space in a central Warrington pub.
When: The first Thursday evening of each month 6.30-8pm.
Who is it for: Anyone 18+ affected by epilepsy.
How to Join: Please email epilepsy.warrington@gmail.com and we’ll be in touch.
The group is coordinated by Alan, here is what he says about the group:
“We are here to listen and share experiences in a confidential, non-judgemental setting. Although we cannot give medical advice, we can share knowledge about available support and often it just helps to chat with others who’ve gone through similar experiences. Whether you have epilepsy yourself or help someone who does, you will be most welcome to join us.”
Alan shares his motivation for setting up the group:
“When I first started having seizures three years ago, like many people I knew very little about epilepsy. A lot seemed to change overnight. Things that I had taken for granted, such as driving, were no longer possible. Having to rely on others. Workplace risk assessments. So many hospital tests and appointments. And once diagnosed, I had many questions: Will the medication stop the seizures? What will the side effects be? What potential triggers should I avoid?
Along this journey, I found the online and face-to-face Epilepsy Action Support Groups to be a great source of information and support, but was surprised to discover that a town the size of Warrington did not have a support group. With an estimated 1 in every 100 people affected by epilepsy, this seemed like a gap that needed to be filled. So now that I understand a little more about epilepsy, I want to help support others on their journey. We may not have chosen epilepsy, but let’s help each other to live our best lives”
