This Purple Day…
We’re sharing people’s experiences to break down misunderstanding and stigma.
For many, an epilepsy diagnosis comes out of the blue, turning lives upside down.
Its impact going far beyond seizures.
And yet many still feel misunderstood, with many saying they feel their condition is often invisible to the public.
IN REALITY:
- Eight in ten people in the UK underestimate how many people are diagnosed with epilepsy each day
- In reality, 79 people receive an epilepsy diagnosis daily which is three people every hour, or one person every eight minutes
- There are 630,000 people in the UK living with epilepsy and 50 million worldwide
- Epilepsy can happen to ANYONE – it isn’t necessarily a condition you’re born with
- Epilepsy can happen at ANYTIME in your life – there isn’t always an obvious reason for developing it
- Epilepsy can happen ANYWHERE – people with epilepsy can’t control where they have seizures
YOU can control what happens next.
We spoke to people across the UK to find out more about their epilepsy diagnosis, what they have learned and what they need you to know.
Josh knows first-hand how quickly life can change.
Epilepsy doesn’t discriminate – it can affect anyone, at any time, anywhere in the world.
Yet so many people still don’t recognise it.
Still don’t understand it.
That’s why in the build up to Purple Day, we’re asking you to be part of something bigger.
Watch Josh’s story below
Before her diagnosis, Madeline didn’t know much about epilepsy.
Now, she wishes more people understood just how much it affects everyday life – far beyond seizures.
Because epilepsy isn’t just moments.
It’s the impact in between.
For Purple Day this year, we’re amplifying voices like Madeline’s to break down misunderstanding and stigma.
Take a moment to listen.
Beth never expected epilepsy to be part of her story.
Like so many, her diagnosis came out of the blue – changing her life in ways people don’t always see.
Epilepsy doesn’t always look the way you think it does.
For 89% of people, they feel epilepsy is invisible to the public.
In the lead up to Purple Day, we’re sharing real stories to help more people understand:
Epilepsy can happen to anyone, anytime, anywhere.