Anti-epileptic drugs (AEDs)
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Last updated 03 Jun 2010, review date due 03 Jun 2011
- How do they work?
- Will I have to take anti-epileptic drugs for the rest of my life?
- Why should I take my anti-epileptic drugs?
- Side-effects of anti-epileptic drugs
- Anti-epileptic drugs and contraception
How do they work?
Epilepsy is usually treated with anti-epileptic drugs (AEDs). They act on the brai
n, trying to reduce seizures or stop seizures from happening. Lots of people with epilepsy find that when they take their AEDs properly, they have fewer or no seizures.
If you take AEDs, it’s really important to take them as your doctor tells you. AEDs usually have to be taken at the same time every day, to keep a constant level of the drug in your bloodstream. If you forget to take your AEDs, or suddenly stop taking them altogether, you’re at a higher risk of having a seizure.
Next time you see your doctor or epilepsy specialist, it’s a good idea to ask them what you should do if you ever accidentally forget to take your AEDs on time.
If your AED doesn’t work straight away, don’t give up. Get some advice from your doctor or epilepsy nurse. There are loads of different AEDs available, so it can take time for your doctor to find the best treatment and dose for you.
Will I have to take anti-epileptic drugs for the rest of my life?
The best person to ask is your epilepsy specialist. Some people with certain types of epilepsy may ‘grow-out of it’ in adulthood and no longer need to take anti-epileptic drugs (AEDs). Some people with epilepsy do need to take AEDs for the rest of their lives.
If you’ve been seizure free for a few years, you could talk to your doctor or epilepsy specialist about your AEDs. They can advise you if it would be safe to gradually cut down or stop taking your AEDs altogether. They’ll also tell you the best way to do it.
Why should I take my anti-epileptic drugs?
It’s important to keep taking your AEDs, even if you haven’t had a seizure in a while. If you stop taking your AEDs you may have more seizures. Or you might have worse seizures.
- More information about the risks of having epilepsy
Side-effects of anti-epileptic drugs
Like most drugs, anti-epileptic drugs (AEDs) can cause side-effects. These vary from person to person and depend on which AED you take and any other medicines you take.
Some examples of possible side-effects of AEDs are poor memory, concentration problems, tiredness, weight gain, weight loss or acne (spots). You should always get an information leaflet with your AEDs, that lists any known side-effects of that drug.
If you notice that you are having any side-effects, or are worried about any of the possible side effects, talk to your doctor. They might be able to suggest ways to treat the side-effects, or consider changing your epilepsy treatment.
Anti-epileptic drugs and contraception
Some AEDs make some forms of contraception work less well. This could lead to an unplanned pregnancy. See the information about contraception for more information.
Images courtesy of istockphoto.com/celin
Upfront - for young people with epilepsy
- What is epilepsy?
- Seizure types
- First aid for seizures
- How do I know if I have epilepsy?
- Girl Talk – for young women with epilepsy
- Lad Chat – for young men with epilepsy
- Why me?
- What are the risks of having epilepsy?
- Anti-epileptic drugs (AEDs)
- Moving from children’s to adults’ health services
- Other treatments for epilepsy
- Meeting other people when you have epilepsy
- Telling other people about your epilepsy
- School, college and university
- Careers
- Driving, cycling and transport
- Sport and leisure
- Going out and clubbing
- Alcohol and drugs
- Travelling abroad
- Shout outs (Real Lives)
- Dear Debbie and Dear Danny
- Upfront about epilepsy young people’s drama workshop and family conference, Saturday 2 October 2010, London
Epilepsy Helpline
- UK freephone 0808 800 5050
- International +44 113 210 8850
- Email: helpline@epilepsy.org.uk
- Txt msg: 07797 805 390 info







