If you would like to talk to someone about epilepsy, our trained advisers are here to help.
I was told nothing about epilepsy when I was diagnosed as a child. This had an impact on me and I grew up feeling insignificant to the medical profession.
Things were different back then, but I wish I had known about this charity and the support they offered.
I have since received really helpful advice and support from Epilepsy Action. So, I became a volunteer to help them support other people and to raise awareness of the condition.
I’m an Epilepsy Action Information Reviewer, which means that I review web content. I check to see if they explain the topic properly, in an accessible way without unexplained jargon.
I enjoy volunteering to help people find information they need, especially anyone newly diagnosed. I know from my own experiences how worrying and confusing this time can be. Having the right information can be a huge help in adjusting to epilepsy.
Volunteering has been quite a learning curve. I’ve realised that epilepsy might affect me more than I thought. I am physically disabled, so some of the problems I have experienced I used to put down to my disability. But now I realise that epilepsy may also be a key factor. That in itself is eye-opening and makes me feel frustrated.
Volunteering with Epilepsy Action means we can keep up hugely helpful advice and information to help improve people’s lives.