We fight to improve the lives
of everyone affected by epilepsy

Information, advice and support

If you would like to talk to someone about epilepsy, our trained advisers are here to help. We offer confidential and personal advice and you can tell us as much or as little as you want. No question is a silly question.

Contact our advisers

Ring us Epilepsy Action Helpline call 0808 800 5050

Helpline opening hours:

Monday-Thursday 8.30am-8pm, Friday 8.30am-4.30pm and Saturday 10am-4pm

It’s free to call from all UK landlines and mobiles.  (International calls are not free.)

Ring us Helpline advice in 150 languages - the Epilepsy Action Helpline offers advice and information in 150 languages.

Email us Email helpline@epilepsy.org.uk - email your question about epilepsy. We aim to reply within 48 hours (on work days).

UK text messages: 0747 963 8071 - we aim to reply to your texts within 24 hours (on work days).

Tweet @epilepsyaction with your question and we will tweet back (on work days). You can also get in touch with us on Facebook and Instagram.

Leaflets, booklets and learning resources

Epilepsy Action shop - we have a wide range of books, booklets and factsheets about epilepsy. Please take a look at what we have available.

Epilepsy and you – our online course gives you the skills and confidence to manage your epilepsy.

Epilepsy Action Learning - has a range of online courses and learning resources to help you understand more about epilepsy. You can work at your own pace and at a time that suits you.

Epilepsy Awareness training - we deliver training to UK-based groups who want to learn more about epilepsy. These include private employers, healthcare and service providers, colleges and schools.

Contact others living with epilepsy

Our virtual groups are a great way of connecting with others who have experiences of epilepsy, in a safe and relaxed environment.  Our virtual groups are open to anyone living with epilepsy in the UK who is over 18 years old. You might be living with epilepsy yourself, or you might be a parent or carer of someone living with epilepsy.

Coffee and chat groups - these give people living with epilepsy the chance to meet each other in ordinary venues like cafes, tea rooms and coffee shops. They offer a relaxed way to meet new people, share experiences and get information on how to learn more about epilepsy.

Local branches – run by volunteers, most local branches hold regular meetings offering a mixture of social events, informative talks and discussions.

forum4e is a free online community for people with epilepsy and carers of people with epilepsy

Epilepsy Action has a very active Facebook page

Comments: read the 3 comments or add yours

Comments

Which sort of seizure do we write for someone who suddenly hugs in a desperate state then cry’s becomes sweaty and grey in colour eyes are blank then becomes giddy. He is my son who is 25 years old also has a severe learning disability. He is on 25mls of Epilepsy and 75mgs of Lamotrigine.

Submitted by Karen Telford

Hi Karen – It could be worth checking this with your son’s epilepsy doctor. In case its helpful I’m linking you to our information about different types of seizures. This explains what someone might experience before and after a seizure as well as during a seizure. I hope you can find an answer to your question.

Regards

Mags

Epilepsy Action Helpline Team.

Submitted by rich

I've been having what feels like a focal aware seizure for the past hour. These only happen in the early part of the year march to april but had one in jan this year. Its like my mind disappears to somewhere for abit then comes back. not sure what to do . I've been tested twice and negative both times mri and electrodes cant think what its called at the moment. please dont reply on my work email. feel like i'm going in and out of another world then i come bqack and feel faintly sick

Submitted by drtof 118

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