We exist to improve the lives
of everyone affected by epilepsy


Epilepsy Action Northern Ireland

The main Epilepsy Action contact for Northern Ireland is Clare Watson.

She can be contacted on 07885 778 585 or email cwatson@epilepsy.org.uk

Clare Watson

In Northern Ireland approximately 20,000 people have epilepsy. Epilepsy can affect anyone at any age and from any walk of life.

Epilepsy Action Northern Ireland...

  • Raises awareness and increases understanding of epilepsy
  • Lobbies and campaigns for a better future for people with epilepsy
  • Supports people through our network of volunteers, branches and groups
  • Organises information events for both people living with epilepsy and health professionals
  • Organises and supports local fundraising events

Epilepsy Action Northern Ireland provides epilepsy awareness training sessions to groups who want to learn more about epilepsy. These include private employers, healthcare and service providers and schools. Find out more about our training.

If you need information or support about epilepsy and would like to talk to someone about epilepsy, our trained advisers are here to help. Contact our helpline advisers by freephone, email, text and Twitterfind out more now

Find out more about groups in your area

Comments: read the 5 comments or add yours


Hi My epilepsy has been uncontrolled for some time and I am wondering is there a disability registrar in Northern Ireland that I can register on.

Submitted by Katrina Brolly on

Hi Katrina 

With the equality laws, it’s no longer necessary to register as disabled as it often was in the past, unless you need additional services from your local authority/council. For this reason, some local authority/council have a disabled register to provide them with additional information on what services they may need to provide for people with a disability in their area. But, this is not always the case. 

You could check with your local authority/council if they have a programme for registering as a disabled person with epilepsy. 

If we can be of any more help, please feel free to contact us again, either by email or the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Friday, 8.30am until 5.30pm. 



Epilepsy Action Helpline Team

Submitted by rich on

My 17 year old daughter has recently been diagnosed with gereralized epilepsy and is talisman
No treatment prescribed by a neurologist, however she does not feel that this doctor is listening to her or answering her questions, is there any doctors in NI specialised in adolescent onset epilepsy?

Submitted by Maire on

Hi, I am currently attending uclh to see if surgery is an option for me. It is but there is so much of the out come of the surgery that will be known only after I have the surgery. Is there anyone in northern Ireland that has under gone surgery in London.

Submitted by Joanne Greer on

As a parent of a young person with life long intractable epilepsy, I am in the first part ever increasingly dismayed about the increasing wait for NHS consultant appointments in Northern Ireland. Now the wait is 18 months to two years between followups. Secondly, what are people view s on lobbying for legal prescription of CBD products. I would like to pursue this, but with no government here, what can be done?

Submitted by Glynis Morrow on

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