Epilepsy specialist nurses and ongoing epilepsy care lacking in Northern Ireland, study shows
A new 2020 study from Northern Ireland suggests that people with epilepsy are not getting access to vital epilepsy support.
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Epilepsy Action Helping Hands Awards - Rachael and Danielle
Rachael Santos and Danielle Kennet were nominated for the award by their mum, Belinda Abbott who says they have shown her that “life is worth living”.
Children with epilepsy missing out on diagnostic tests and life-changing treatment
More than two-thirds (70%) of children eligible for epilepsy surgery to treat their seizures were not referred, a new report has found.
Epilepsy Action Helping Hands Awards - Reggie
Reggie, 9, was nominated for an award by Rochelle, the mum of his friend Ellis.
Epilepsy Action Helping Hands Awards - IN-FACT
Emma Murphy and Janet Williams are the founders of the Independent Fetal Anti Convulsant Trust (IN-FACT).
Epilepsy Action Helping Hands Awards - Jack McGhee
Eight year old Jack was nominated for a Helping Hand award by his dad Richard.
Epilepsy Action Helping Hands Awards - Sienna Appleby
Sienna has been awarded a Helping Hands award for the fantastic support she gives to her older sister, who has severe epilepsy and complex needs.
Epilepsy Action Helping Hands Awards - Paul Thirkettle
Paul Thirkettle was nominated for an award by his wife, Rachel.
Paul is carer to Rachel, their ten year old daughter, and his mother– all of whom have epilepsy. Rachel says they would not know what to do without his unwavering support.
Face coverings safe in people with epilepsy, experts say
Face coverings – such as non-medical cloth or fabric face masks – are safe for the majority of people with epilepsy, experts say.
Government urged to issue apology over sodium valproate, Primodos and pelvic mesh ‘public health scandals’ by safety review
UPDATE (9 July 2020): Since the original story, the government has issued an apology to families affected by the public health scandals around the medical products sodium valproate, Primodos and pelvic mesh. You can read the full government response on the UK Parliament website.