Living with epilepsy

Stories shared by people affected by epilepsy

Empowered to shine: medicine-resistant epilepsy, brain surgery and supporting others
Empowered to shine: medicine-resistant epilepsy, brain surgery and supporting others
Kami Kountcheva | Medicine-resistant epilepsy left Cassy frightened and isolated, but after successful surgery, she decided to change the narrative for others by writing a…
A Place I’m Meant To Know
A Place I’m Meant To Know
Epilepsy Action’s new short film aims to help people see through the eyes of someone having a seizure and really understand what epilepsy feels like.
Epilepsy and autism – what it’s like when conditions collide
Epilepsy and autism – what it’s like when conditions collide
Rebecca Lock & Kami Kountcheva | Claudia talks about living with epilepsy and autism – from dealing with public ignorance around seizures to navigating social…
Epilepsy and menopause: answering your questions
Epilepsy and menopause: answering your questions
Menopause specialist Sian Rees answers some of the questions we’ve heard from people with epilepsy
SUDEP Awareness Day: Why we need to talk about SUDEP
SUDEP Awareness Day: Why we need to talk about SUDEP
Joanne Doody’s son Peter died from sudden unexpected death in epilepsy (SUDEP) in May 2019 at the age of 21. Joanne shares why SUDEP awareness…
Dennis Dares to Share – a new children’s book about epilepsy
Dennis Dares to Share – a new children’s book about epilepsy
Kami Kountcheva | Ibby met Ava and Laura after a Doodle Day virtual art class last year, and together they created a new children’s book…
‘No employer would consider me’ – work and epilepsy
‘No employer would consider me’ – work and epilepsy
Kami Kountcheva | Recent news stories have suggested that people who are out of work are to blame for the spate of riots across the…
Woman with epilepsy forced to sit on bus floor
Woman with epilepsy forced to sit on bus floor
Emily Stanley | Charlotte was forced to vacate her priority seat on the bus, and sit on the floor, despite having epilepsy. She shares her…
‘The Unicorn in Captivity’
‘The Unicorn in Captivity’
Kami Kountcheva | Writer and actor Angelika May shares the inspiration behind her new play featuring epilepsy
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