Living with epilepsy

Stories shared by people affected by epilepsy

Festivals and epilepsy – top tips to keep safe
Festivals and epilepsy – top tips to keep safe
Kami Kountcheva | With festival season approaching, we share some tips to help people with epilepsy plan ahead, manage triggers and stay safe
‘If I told you…’ campaign launched to kickstart epilepsy conversations
‘If I told you…’ campaign launched to kickstart epilepsy conversations
Kami Kountcheva | Epilepsy Action’s new awareness campaign, focusing on friendships, relationships and work, aims to foster better understanding and empathy for people with epilepsy.
Brody’s seizure in tonight’s Corrie called “sad reality” for people
Brody’s seizure in tonight’s Corrie called “sad reality” for people
Kami Kountcheva | Epilepsy Action has called Brody’s seizure while detained in STC (the security training centre) in tonight’s Coronation Street episode a “sad reality”…
PIP reforms could cost 800,000 people thousands a year
PIP reforms could cost 800,000 people thousands a year
Kami Kountcheva | DWP estimates 800,000 current and future PIP claimants stand to lose around £4,500 a year by 2029/30 due to the reforms, including…
Exams and epilepsy – support from school
Exams and epilepsy – support from school
Kami Kountcheva | Sharing tips and information on exam support for children with epilepsy, and how to manage stress around exams
Ruby’s story: seizures, perceptions and challenging decisions
Ruby’s story: seizures, perceptions and challenging decisions
Ruby shares her experiences with seizures, challenging the decisions of medical professionals and being perceived as both able and disabled.
Faith, Ramadan and epilepsy
Faith, Ramadan and epilepsy
Kami Kountcheva | As Ramadan begins, Fathiya tells us how her faith keeps her strong, how she’s observing the holy month and why she wants…
Valentine’s Day: Epilepsy, partnerships and “the good in people”
Valentine’s Day: Epilepsy, partnerships and “the good in people”
Emily Stanley | Three couples share their good times and tough times navigating the challenges of epilepsy together.
Valproate: Families “can’t wait any longer” for redress
Valproate: Families “can’t wait any longer” for redress
Kami Kountcheva | Families harmed by exposure to valproate during pregnancy “can’t wait any longer”, says Epilepsy Action on the one-year anniversary of The Hughes…
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