Living with epilepsy

Stories shared by people affected by epilepsy

PIP reforms could cost 800,000 people thousands a year
PIP reforms could cost 800,000 people thousands a year
Kami Kountcheva | DWP estimates 800,000 current and future PIP claimants stand to lose around £4,500 a year by 2029/30 due to the reforms, including…
Exams and epilepsy – support from school
Exams and epilepsy – support from school
Kami Kountcheva | Sharing tips and information on exam support for children with epilepsy, and how to manage stress around exams
Ruby’s story: seizures, perceptions and challenging decisions
Ruby’s story: seizures, perceptions and challenging decisions
Ruby shares her experiences with seizures, challenging the decisions of medical professionals and being perceived as both able and disabled.
Faith, Ramadan and epilepsy
Faith, Ramadan and epilepsy
Kami Kountcheva | As Ramadan begins, Fathiya tells us how her faith keeps her strong, how she’s observing the holy month and why she wants…
Valentine’s Day: Epilepsy, partnerships and “the good in people”
Valentine’s Day: Epilepsy, partnerships and “the good in people”
Emily Stanley | Three couples share their good times and tough times navigating the challenges of epilepsy together.
Valproate: Families “can’t wait any longer” for redress
Valproate: Families “can’t wait any longer” for redress
Kami Kountcheva | Families harmed by exposure to valproate during pregnancy “can’t wait any longer”, says Epilepsy Action on the one-year anniversary of The Hughes…
Empowered to shine: medicine-resistant epilepsy, brain surgery and supporting others
Empowered to shine: medicine-resistant epilepsy, brain surgery and supporting others
Kami Kountcheva | Medicine-resistant epilepsy left Cassy frightened and isolated, but after successful surgery, she decided to change the narrative for others by writing a…
A Place I’m Meant To Know
A Place I’m Meant To Know
Epilepsy Action’s new short film aims to help people see through the eyes of someone having a seizure and really understand what epilepsy feels like.
Epilepsy and autism – what it’s like when conditions collide
Epilepsy and autism – what it’s like when conditions collide
Rebecca Lock & Kami Kountcheva | Claudia talks about living with epilepsy and autism – from dealing with public ignorance around seizures to navigating social…
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