See our children's and young people's websites
-
Updated January 2010To be reviewed January 2012
Parents of children with epilepsy
We can provide references and information on the source material we use to write our epilepsy advice and information pages. Please contact our Epilepsy Helpline by email at helpline@epilepsy.org.uk.
Comments: read the 31 comments or add yours
Comments
my 4 year old little girl has for approx. 2 years been having these episoded at night only where she starts to be sick & appears to be choking, apart from the choking (sicking) sounds she will be completely silent (no crying) she is totally unresponsive. When the vomiting stops she still looks to be stuggling to breathe/holding her breath & repleatly swallows. Her eyes are wide open looking upwards or floating about, she will go very pale & limp & on a number of occasions i have had to call an ambulance as we thought we were going to lose her. I have had to call ambulances when she has done this in the night time as worse(because having a full stomach), if she does it late morning (having a empty stomach) episodes dont seem as strong & we can usally put her on her on her side and tell her to breath, she will respond by a gasp or speaks very slow & slurred.
These episopdes usally go on for approx. 3-5 mins then she will just fall back to sleep and wake up as if nothing ever happened. When going to hospital by the time we get there she will have snapped out of this and cannot remember a thing.
Its never down to illness why she is sick as she is fine every time after, if she is poorly with a stomach bug for example she will awake crying & being sick as a poorly child does. She has had eeg/ecg which were normal apart from slight brain asymetry (what ever that is they say its not connected). whilst trying to explain to doctors they look at me gone out. I have a baby monitor on constantly but i am so stressed and frightened & am now trying to film her so i can show whats happening to the doctors. Has anybody come across this themselves or can anyone tell me what they think shes doing because i do believe that its some kind of fit. (she does this every 2-3 months)
thanks lynsay
hi lynsay, that sounds exactly the same as happens/happened to my son from an early age. Your description is spot on, the gagging like choking... seeming as if they are struggling to breath. We took our son to A&E and he was immediatelly diagnosed with febrile convulsions. Cant understand why your A&E havnt suggested it?? Anyway, I hope you get it sorted, and just know your not alone.
kind regards Jan
My son is 2yrs 11months. After a weekend at the beach he began to have ticks. They are pretty regular throughout the day and increase to every couple of minutes as his activity level increases. I have been referred to a neurologists who cannot fit us in for another month, but comes highly recommended. I'm going crazy. Should I be prepared for a seizure? How do you take care of your child with this condition? Is there a cure/ treatment that works? Is there anyone here who also goes thru the entire day with their children twitching constantly, worried if there is a severe seizure lurking. What questions should I ask my pediatrician? Any advice that anyone can offer is GREATLY appreciated.
Hi,
My daughter who is now 5 had her first seizure in Oct 2008, then June 2010 and just recently 3 weeks ago. She underwent an MRI and several EEGs and was diagnosed in 2008 with epilepsy. The first 2 seizures were in the morning with no warning and started with her being unable to speak and masses of dribbling followed by right sided twitching, eye flickering and mouth chewing she was sick several times and all 3 seizures have lasted for over an hour. The seizure a few weeks ago started just as she had fallen asleep, the same happened dribbling and unable to speak followed by twitching and knocking movements. They have now diagnosed her with complex partial seizures, possibly benign rolandic epilepsy. My husband has epilepsy which is now very well controlled. We started her on carbamazepine 3 weeks ago. We are finding her mood changable and sometimes tantrums and horrendous temper but are carrying on to see how she goes with it. Trust your instincts as you know your child the best, we had a bit of a battle to get emergency medication prescibed which has now been done as we were so worried that the seizures were for so long
Hi Lucy,
Our daughter Amy is now 11 and we were in exactly the same position as you, questioning the consultant as to whether Amy's absence seizures were childhood absence epilepsy (which passes) or Juvenile absence or myoclonic epilepsy (which doesnt). Amy was diagnosed at 9, like your son. It was only because Amy had one convulsive seizure (and her age) that she seemed to have been put in that catagory. (She hasnt had another convulsive seizure since) Then she had a 24 hour EEG which showed a particular brainwave pattern which is characteristic of JME rather than CAE. We were very disappointed as you can imagine. I do really feel for you but just keep questioning until you get the answer. The not knowing was more difficult than the final diagnosis. Amy began with Ethosuximide (on which she had her convulsive seizure), then tried Lamotrigine (which didnt work at all), then Keppra (all the stories about Keppra Rage are true!) and she is now taking Sodium Valproate which works brilliantly. We are and are not thinking about the future too much. All I would say is that whilst Amy was taking Lamotrigine, we saw the effects of uncontrolled absence epilepsy and were horrified - from predicted Level 5's in her Year 6 Sats, she went down to Level 2/3.! With a change of medicine to Sodium Valproate, she achieved her Level 5s and we were overjoyed. I cannot understimate the importance of finding the right medicine to get the seizures under control. She is a very happy and intelligent girl who happens to have epilepsy. We do still get upset at times but have mostly accepted the situation. You will get there too.
My son (aged 8) was diagnosed with partial complex seizures in April 2010 after suffering 3 seizures whilst away on holiday abroad. We did not know what it was and initially thought he was dehydrated due to the intense heat. He started chewing with his mouth, with excessive dribbling, then he would sleep for a couple of hours. When we returned home, it continued. We had to phone an ambulance due to him being unconscious then vomiting after one really bad seizure. Hospital did EEG and diagnosed partial complex epilepsy, started him straight away on carbamazepine lowest dosage, gradually working its way up to his maximum dosage of 800mg a day. We are sticking with it, although in the first 3 months the mood swings were awful and he would get very tearful. Hospital were quite dimissive of these symptoms, but now we go to an epilepsy clinic who really understand and are now managing his treatment.
It does seem to block the full seizure, however he has regular 'interruptions' through the day, that last literally a couple of seconds, sometimes his face will twitch or he may stutter. He also has bad headaches which I think is the medication, but we do not know for sure. We just take each day as it comes.
Our little boy has just turned 9 and has been having absence seizure for at least a year now, possibly longer as we weren't aware at first, he recently had a EEG and we returned to see the consultant, who previously diagnosed this, only to find he'd retired and a locum doctor has took over his case. The problem being, they think it's more likely to be juvenile absence epilepsy because of his age. We are not convinced as the only symptom he has had are the few brief blank moments most days, and has been having them since probably about the age of 7. Juvenile absence epilepsy tend to start at puberty. But we are most concerned about the medication, if we decide to go down that route. Childhood absence epilepsy, treatment tends to be short term, a couple of years, juvenile epilepsy is lifelong treatment with what looks like many many side effects. We are totally confused and at a loss as what to do. Do we just accept what the new doctor is telling us or shall we decide to leave any treatment, as symptoms are minimal, and wait to see if condition worsens. As side effects seem huge and daunting. Has anyone had any similar experiences?
hi kay we are going through the same thing with my 12 year old son. can i just ask you is it as if he is on cloud 9 as mine sons are gettin alot more frequent now we are waiting to see a specialist. he cant remeber anythin that happened in that time yet he can walk from room to room. the school have also noticed it. we picked it up in his school reports as they all say he lacks concentration yet he is in all the top groups which we really cant understand. the doctor is also tryin to say its adhd whichwe know is not the case as he doesnt have behavioural problems. we really need to find out more about it but know who to ask or were to turn.
hi there my little girl is also 9, and has had fits since she was 6 months old. from then till she was five they said it was convulsions caused by high temp ?infection. which she always had sore throat at the times so they removed her tonsils, she then went a year without a fit. we thought great its worked. then when she was 5 and half shehad a big fit where she was blue lighted to the hospital and went straight into resus!!
they decided to do a eeg which is when they diagnosed epilepsy. they started her on sodium valprate syrup. which worked or 2 years, then i noticed she was having blank episodes, and scool reports said she lacked concentration. so the doctors upped her meds and but her on sodium valprate crono slow release tablets. over 3 weeks she became bad tempaerd and washaving rages. i was at the end of my tether!!
i decided to drop her meds back down to the min dose for her weight and age but kept her on the tablet slow release, all was going well untill 2 monthes ago nearly nine now , we are back to square one, they have put her meds back up as she was fitting and having blank episodes, two weeks later she is very tired and looks worn out, sleep walking in the night, rages are back, w are waiting for a ct scan which is in two weeks time,
i am at a loss not sure what to do, jus looking for answers, shall i change meds. its really hard as a parent
Hi Tracey
Thanks for your comments. This must be a very difficult time for you and your daughter.
It's interesting that a number of children who have febrile seizures go on to develop epilepsy. Some children with a predisposition to epilepsy also have convulsions when they are ill, so it's hard to know which children have clear cut febrile seizures, and which have epilepsy.
Sodium valproate can make people very tired when they first take it, or when the drug is increased. And, although many people tolerate it really well, it's not the best drug for everyone, as some people are sensitive to the drug and changes of dose.
You mention that your daughter is due to have a ct scan soon. It may be that her doctors will decide to change her sodium valproate to a different anti-epileptic drug when the ct results are back. This is particularly important if they think she has a kind of epilepsy that will stay with her when she is an adult, because sodium valproate needs to be used with caution in women of child bearing age.
If you would like to discuss any of this informtion with an epilepsy adviser, please feel free to contact the Epilepsy Helpline, freephone 0808 800 5050.
Kathy
Advice and Information Team
my son luke is 13 had a fit a year ago had test done told us be one off but 4 weeks ago he had another one we are waiting on an e e g i am really worried about him just want to know if this is normal . i dont know much about epilepsy or were to start to understand it , i thought would be good to talk to others who have been though the same .
I would like to know some information about about who is the right person to go and give some advice to a independant school as i have been asked by my boyfriends mum who is a music teacher as she was confused at 1st if this little boy in her class was having a seizure or if it was a astma attack , Anyhow the school pupils recently came back this term and during the summer term this little boy went for tests and he was diagnoised with having epilepsy so could you please send me any contact details of whats the best way to go about this .
As i myself has been living with epilepsy since birth and i know it must be hard for a little child to understand whats going on. As i was bullied right through my school yrs
Hi Lucy,
We have sent you an email about your question.
Andy
Epilepsy Action
hi there, i can completely relate to what you have posted. My son also Kieran Ironically started having seizures from age 8 months where he was having jerking episodes i to was fobbed off by my doctor saying it was his ears etc and gave him anti biotics, it was only on one monday when he would not stop crying etc that i went to a and e. But i do have to say i have had a very positive repsonse from the hospital and kieran was kept in almost 5 days doing eeg's etc.His eeg did show an initial abormality but they still thought he had infantile spasms.He had to have a repeat eeg and it clearly showed he had epilepsy and not infantile spasms which they first thought,
He is medicated, now on tegretol and keppra 2 times a day, he too had balance problems, goes very pale after his medicine and very tired for a couple of hours. SInce the start of his medicine his seizures changed to exactly what your saying he was stiffening his body this has decreased dramatically slowly...but he is still having lots of problems with his emotions.
are you under a consultant? I would demand to see a specialist, i have access to an epilspsy nurse who can increase meds etc i have had to speak to her several times. His seizures need to be controlled and 3 months just doesnt seem to be of any urgency and its not fair on your kieran or you as parents.
my son kieran is 18 months old and started having fits april this year, 10 days after his MMR jab. at first we didnt realise what they were as he looked to be just straining, but they soon started to develope further where his arms would outstretch and his body would go stiff, lasting for about 10 seconds.
we were turned away by our doctor on two occations before they took any notice and reffered us to hospital. here they kept him for a couple of days before putting it down as infantile spasms and sending us home.
after a week or so we realised they were getting worse so we called up the hospital and arranged to go back in. on this occasion they carried out an MRI and EEG, but after getting the results neither showed anything out of the ordinary despite kieran having a fit while on the EEG. once again we were sent away from the hospital but referred to great ormond street hospital.
kierans fits continued to get worse till the point where he was having 10 a day, after which he could not move the left side of his body for around 40 minutes. we had our appointment come through for great ormond street but that was almost 3 months away. Me and my wife having enough of this decided to call an ambulance, and after seeing a different doctor was finally given some treatment to help control the fits.
the drugs helped control the amount of fits he was having but it hasnt been without side affects, he has balance problems to the point where he cannot walk unaided when he could before and he has forgotten a number of words he used all the time.
we didnt worry too much because we at least had an appointment to look to and hopefully get the treatment my son needed. but this wasnt to be. we have been told he needs another EEG and just recieved an appointment almost another 3 months away. mean while my son is still having 5 fits a day, cant walk unaided and cant learn any new words or abilitys.
just really frustrated, that we cant get the help we need. just wanted to know if anyone had had the same kinds of problems.
many thanks daniel x
My Grandson Cameron was 7 months old and my daughter called me saying he started crying which was not his normal cry and his head went to the side,arms went back and were stiff and his legs..She handed him to his dad and went to call 911 he went limp and when he woke up he looked around in a dazed state.She thought maybe he hurt himself at first but she checked him and she didn't see no marks of any kind and she said he was just playing.She took him to the ER..They did not run no test at all and told her he had a double ear infection and he didn't believe he needed to be tested for a seizure.
She followed up with her regular doctor and her doctor was upset (No ear infection)and that he didnt test him and made a appointment for a eeg which was 2 weeks later.the results came in on Sept 16th 2010 (negative)and my little grandson died Sunday September 19th 2010.He was found face down with nothing around him and he crawled at some point in the night because he was above his fathers head.His pillow was way down in the bed.They did a re-in actmend of the scene and ruled out roll over, anything on him or around him....Waiting for the autopsy!My question is when you have a seizure is it possible he was to weak to move his head are was he unconscious and not able. I am just haunted that maybe if the doctor would of ran some test maybe he would still be here....They will most likely rule SIDS, He was almost 8 months and weighed 14lbs wondering if that was another factor we called him peanut.......He was healthy other than that seizure and since this was so close to his death I will not believe it is SIDS...I need some feed back and opinions...Thanks Grandma missing my baby Cameron......
Im so sorry to hear of your tragic loss. I have a 20month girl who now suffers from seizures since catchin the herpes virus which attacked her brain, herpes encephalitis this is called. Rachael has a few different types of seizure but more common than not after a severe seizure she is in a comatosed state and lies with face down either on couch/carpet/bed. I have been taught and told to always put her into the recovery position after her seizure and let her sleep it off. and usually she will lie motionless for about 3 hours. so I would think the answer to your question is yes, its a possiblity that he was too weak to move his head or more likely to have been in a comatosed state rather than weak, whichs is common after seizures. I hope this helps and if you need to ask anything else, please feel free, my thoughts to you and your family at this sad and tragic time,
laura
scotland
Hi,
My son is nearly 5 and has recently had a convulsion. He was well before the convulsion but upon being seen in hospital he did have a raised temp. but no underlying cause. This is the first convulsion in 2 years, after having 6 previous febrile convulsions from 6 months old. I am concerned as this fit was long and very different from the previous ones and after having a period of two years with no fits but high temps. we thought he'd grown out of them. Epilepsy does run in my family and I am now wondering if I should be asking for him to be assesed, or if it is too early. Many thanks.
Hi Stephanie
It must have been upsetting for you when your son had another convulsion after two years of not having any.
At the age of five, children can still have febrile convulsions. So, it doesn’t necessarily mean he has epilepsy. However, a child who has had febrile convulsions does have a slightly higher chance of developing epilepsy than children in general.
There’s no reason why you can’t talk to your son’s GP and ask if it’s the right time for him to be referred to a paediatrician for an assessment. The assessment could try to identify if the seizure he had was epilepsy, or a febrile convulsion. If it was an epileptic seizure the paediatrician can discuss if treatment is necessary. If it was a febrile convulsion the GP or paediatrician can give you advice on how to try and prevent a febrile seizure when your son is unwell.
Rosanna
Advice and Information Team
Oh bad luck for the little lad.. but could it be this????????? Autosomal Dominant Nocturnal Frontal Lobe Epilepsy
ADNFLE
Hi. My son is 10 and is severly autistic, he flaps his hands and makes sounds. From a baby he has had vacant moments and this was put down to his autisim. Summer 2010 he had a seizure where his eyes were rolling and his arms jerking and his body was floppy, he was taken to hospital in France where he was on holiday and a EEG was done, the results were clear. Four weeks later he was on the trampoline at home when he fell to one side, whole body was jerking, foaming at mouth and this lasted for 20 mins, he was taken by ambulance to hospital where he was referred to a consultant, he then had 2 more seizures exactly the same as before. Consultant said she wouldnt diagnose epilepsy. We had 3 months seizure free then 2 weeks ago he had another and I called 999, now been referred back to consultant but she feels he needs to see a specialist. I have the worry every time I take him out hes going to have another. People stare as it is and know more when he has a seizure. I feel like no one wants to act quickly.
Hi,
My son has just turned 7 years old, hes been really unlucky as a child, having blue baby syndrome when he was 8 weeks old, then breaking his thigh and being in traction for 6 weeks when he was just over 1. Since that trauma he developed seizures which only happen at night time or at a time when he is havng a nap when the brain seems to shut down to go to sleep.He was treated at the Sick Kids in Glasgow and given epilim and Lamotrogene which has helped in terms of the seizures. He has lapses every 6 - 9 months in which the doctors increase the medicine to go hand in hand with his weight. Recently 2 weeks before xmas he started taking fits again and he is still having them. He was taken off epilim and is being taken off Lamotrogene and now is starting Tobiramed/topomax and is now taking clobozam which is still niot helping. His fits are approx 40 - 60 per night in which me and my wife have to take in turns to be up with him. He has the crossbow stance when having a seizure , goes stiff, grinds teeth, holds breath, left eye flickers and now is hilusanating. Any one else have these symptoms that can help??
My beautiful son Sam is 9 and about 4 weeks ago started to have minor episodes where he struggled to catch his breathe, it looked similar to being winded during sport and accompanied by salivation on many occasions. These episodes have increased to the point where he has been having them up to 20+ times a day, hiding then from me and his mum and his school friends due to embarrassment. During these episodes Sam is conscious and very aware of what's going on but they culminated on Sunday just gone to a full seizure which ended in a 999 call and an emergency visit to the local casualty department. Prior to this we had visited our GP who dismissed these episodes as anxiety attacks. After the seizure my son was admitted to a ward and basically monitored for the day, examined by 3 doctors who were stumped. Eventually he was released even though we protested that it was a night that these episodes were untenable. We had taken to swapping Sam into our bed and in doing so realised these episodes were more sever at night. The night after being discharged from hospital Sam had another seizure, it was less sever and we then started researching private institutions where we could get some attention and a diagnosis. We are now at the stage after a week of tests MRI, EEG and a partial 48hour telemetry where Sam has be diagnosed with epilepsy. There was found to be abnormal activity in his right temporal lobe and today we begin medication to find an appropriate balance. They want to put Sam on Carbamazepine. My wife and I are very scared. The notice boards sometimes help but also show cases of horrible side effects. We know we need to get Sam treated but would appreciate any feedback that could help inform us more. Someone out there must have had similar right temporal lobe abnormalities and can give us some of their experience. Sam is handsome, popular, funny and amazingly sporty. All he wants to do is come home from hospital, play football for his team and be normal. This is all incredibly upsetting and moving so fast that help in making the right decisions would be a support. A worried, scared set of parents.
Hi Paul
I’m sorry that Sam has had to go through so much before finally getting the right diagnosis. Temporal lobe epilepsy can be difficult to diagnose because the symptoms can easily be mistaken for anxiety or panic attacks. If they are related to epilepsy, these events are partial seizures. Often, it’s only when someone has a recognisable seizure that the relationship between anxiety/panic attacks and epilepsy is considered. That’s why it’s really important that any child who has a possible seizure is referred to an epilepsy specialist.
It’s understandable that you are concerned about giving Sam the carbamazepine. However, it is a well respected first line drug for treating epilepsy. It does have a long list of potential side-effects, but then most medicines, including over the counter ones, do too. This doesn’t mean that everyone will have all the side-effects. From our experience of talking to people with epilepsy, the most common one is tiredness, particularly when it is first started. As your body gets used to the drug, the tiredness usually wears off. If it doesn’t, there’s a list of other anti-epileptic drugs that could be tried instead.
Although it’s difficult to start giving Sam drugs, it would be worth considering how he would feel if he carried on having seizures. As you say, he’s a very active boy, and wants to be just like his friends. The carbamazepine, or a similar drug, could help him to do that.
If you would like to talk to an adviser about your concerns, please feel free to call the Epilepsy Helpline freephone 0808 800 5050. Or, if you would prefer, email them on helpline@epilepsy.org.uk. You could also join our on-line community, to speak with other parents.
Kathy
Advice and Information Team.
Our 10 yr daughter has been diagnosed with c.a.e. (childhood absence epilepsy) since March 2011, she has had an eeg, she has been on medication and nothing is working , she started on Keppra , lamotrigine , had to wean her off keppra because it wasn't working and to start another medicine now she has just started epilim which is sodium valporate, the Dr said that i would see an improvement in 3 weeks , well she has been on this for 3 weeks and no change ! My daughter has 40+ seizures a day , i have asked is there any other test that could be done and i get no there is'nt. Hope there is another medicine out there which will stop her seizures , which we haven't been given yet for a trial .
Jenny,
Two of my 3 children have been diagnosed recently with absence seizures. My 8yr old daughter is medicated currently on ZARONTIN, otherwise known as ETHOSUXIMIDE. She has been on this medication for a little over 2 months. She started at half a tsp. in the am/pm and is now up to 2 tsp in am/pm. Overall, she is doing well with this medication. She does complain of some stomach pain, which can be a side effect. The medication has helped drastically, as I do not see any physical signs of her having any seizures since being on the full dosage. Perhaps this is a medication that you could talk to your doctor about. I can tell you that I have to call the pharmacy to have them order it in about a week before needing more. I had to go to 4 pharmacies to find one that finally had it without waiting several days. She started on the liquid form and since she does not like to take ANY meds, she has asked the doctor herself to give her the pill form. When we change this week, hopefully the pill will work just as well. My other child does not currently need to be medicated, as his 2 eeg's were abnormal, but is not showing any signs physically of seizures. I hope all goes well with you finding a medication that will be helpful. Best wishes-
Jennifer
Hi all,
My daughter was diagnosed with JAE and photosensitive epilepsy last may, she was 7, she has what i used to call "stop doing that funny thing with your eyes Louise" i had no idea it would turn out to be Epilepsy!!
she was having them since maybe the age of 4, we just didnt realise until we went to see headteacher cos she was so far behind with school work and her confidence hit rock bottom... she was having absences at least 5-40 times a day.
she has been on Epilim sodium valporate in last may and so far hasnt reduced them much cos we were having a real struggle of getting her to take it, i tried a bit on my finger and it is disgusting, we have recently changed to graules which we put into yoghurts.. so fingers crossed this starts to reduce her absences.
im not sure if anyone else has trouble getting their kids to take it? but just dip your finger in and understand why not haha... and maybe there is another solution.Take care :)
Hi, just wanted some advice! My little girl is 3mths old and was brought to hospital 2 weeks ago having fits - classic infintile spasms!
After having 3 EEG scans we have been told its not infintile spasms its epilepsy!
She is now being given phenobarbital twice a day, but the fits are still happening!
We have been told that each time the do an EEG the results are showing improvement, but do we continue to treat as epilepsy even though the fits look like classic infintile spasm?? Really need some advice!??
Hi Lisa
This must be a confusing time for you. I believe infantile spasms have a very specific EEG pattern called hypsarrhythmia. If your daughter’s EEG doesn’t show this pattern, it may be why her doctors are saying she doesn’t have infantile spasms. However, that doesn’t mean that she doesn’t have another form of epilepsy. Phenobarbital is often given to young babies with epilepsy. It is usually started at a very low dose, and then gradually increased until either the fits stop, or the baby can’t tolerate a higher dose. Then a different epilepsy medicine will be tried.
Seizures in newborn babies are often difficult to recognise. This is because their seizures may be very subtle, just being changes in breathing patterns, movements of the eyelids or lips, or bicycling movements of the legs. They may also be brief jerks, or episodes of stiffening of the body and limbs. The jerks are called myoclonic or clonic seizures and the episodes of stiffening are called tonic seizures, or, sometimes, spasms.
It’s very difficult to be able to offer any more specific advice through the website. If you would like to discuss your daughter’s situation with one of our trained advisers, please contact us again. You can do this by email: helpline@epilepsy.org.uk, or on the freephone Epilepsy Helpline (0808 800 5050).
Kathy
Advice and Information Team
Hi,
My son is going to be 1 next week, and he was diagnosed with epilepsy offically in December, when he was started on epilim.
When he was first born his limbs use to shake(jerk) the midwife told me that it was his nerve endings forming and that he would grow out of it. When the health visitor took over she reffered us immeidately to the peads consultant, who arranged an EEG which came back as normal. My son had his first fit in august last year, we were walking around boots and his head started going from left to right and his eyes just rolled around, he was unrepsonisve and his arms and legs were lifeless.... This carried on for several months until the treatment. He has generalised epilepsy, He had an MRI approx 5 weeks ago which was all clear thank god!! I am trying to find him a pillow which is safe enough for him to sleep with, if anyone can sugest anything! :) Many Thanks
Hi Bethan
Some people use Sleep Safe pillows. But research is mixed on whether they provide any extra level of safety. For general information on safety equipment, you could contact the Disabled Living Foundation.
Hope that helps.
Cherry
Advice and Information Team