PPI enables people with a health condition, their family members, carers and friends get involved in the research process. This is different from being a participant or subject of a research study. A good description is research is carried out with or by service users, rather than to or about them.
PPI provides opportunities for service users to have a say in the research that affects them. It also ensures that research is relevant, useful and to the benefit of service users.
Epilepsy Action has a network of research volunteers who help us decide which research we should fund and support. More recently, they have commented on proposals and funding bids for external researchers. Most funding bodies now require researchers to demonstrate how they have involved service users in developing their proposals and how they will be consulted during the life of the study.
Epilepsy Action has wide experience and acknowledged expertise in facilitating PPI. To discuss ways in which Epilepsy Action can help you contact Margaret Rawnsley +44 (0) 113 210 8800
In order to continue this important work, we need your help. Find out how you can make a regular or single donation to support research at Epilepsy Action
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