Parents of children with epilepsy

These pages are about children with epilepsy in the UK. If you are looking for information about children with epilepsy in another country, please contact your local epilepsy organisation.

In the UK, around one in every 240 children under the age of 16 will be diagnosed with epilepsy. Some of them will be babies, and some will be teenagers, with many others in between.

If you are caring for a child with epilepsy, the information in this section is for you.

Visit our section for young people.


Epilepsy Action would like to thank Dr Amanda Freeman, consultant paediatrician at Queen Alexandra Hospital, Portsmouth, UK for her contribution to this information.

Dr Amanda Freeman has no conflict of interest to declare.

This information has been produced under the terms of Epilepsy Action's information quality standards.

  • Updated October 2019
    To be reviewed October 2022

Comments: read the 2 comments or add yours


My three year old grandson has been diagnosed with epilepsy.
I am worried about what to do if he has a seizure when looking after him. What sort of first aid should I give him.
He becomes unconscious and sometimes doesnt jerk,
I guess I call an ambulance, but what to do in the meantime,

Submitted by Vivien

Hi Vivien

You must be concerned for your young grandson and what you should do if he has a seizure. We have some first aid information here that explains how to help someone who is having a seizure:

We also have a video short online learning module called “What to do when someone has a seizure” here:

If you would like some copies of our first aid information or if it would help to talk through what to do please get in touch with the Helpline:



Epilepsy Action Helpline Team

Submitted by Mags-Epilepsy Action

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