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Information for parents of children with epilepsy

These pages are about children with epilepsy in the UK. If you are looking for information about children with epilepsy in another country, please contact your local epilepsy organisation.

In the UK, around one in every 240 children under the age of 16 will be diagnosed with epilepsy. Some of them will be babies, and some will be teenagers, with many others in between. And some children will have epilepsy as well as other conditions, including an epilepsy syndrome, learning disabilities, or an autistic spectrum disorder.

If you are caring for a child with epilepsy, the information in this section is for you.

Visit our section for young people.

Or visit our site for children with epilepsy:
Go to our website for kids with epilepsy

Code: 
B002.04

Epilepsy Action would like to thank Dr Amanda Freeman, consultant paediatrician at Queen Alexandra Hospital, Portsmouth, UK for her contribution to this information.

Dr Amanda Freeman has no conflict of interest to declare.

This information has been produced under the terms of The Information Standard.

  • Updated September 2016
    To be reviewed September 2019

Comments: read the 3 comments or add yours

Comments

A very useful page and lots of links for both children and parents. Many years' ago when we were children the information was not available! This is a great change for parents.

Submitted by Lesley Donnelly on

Good morning. I need help, information and assistance, it is regarding my daughter, she is 9 and has been diagnosed with Silent Seizures, she is on Epilim 200mg & she is on 3ml morning and afternoon. she has been really ill due to the side effects. Having an EEG done for her will it help? As her mom I am concerned about school and her everyday life. Please advise. Thank you

Submitted by Delene Govender on

Hi Delene

An EEG will help confirm a diagnosis. It may also show if your daughter’s symptoms could be related to seizure activity.

It may be possible to ease the side-effects.  This will depend on how long your daughter has been on the Epilim and how she has been increasing the dose. Sometimes a doctor may suggest increasing the dose of a medicine more slowly if they think someone’s side-effects are too severe.

If the doctor decides that Epilim is definitely not the right epilepsy medicine for your daughter then they are likely to suggest one of the other 20 or so epilepsy medicines. It is worth noting that, in Europe Epilim is no longer prescribed for girls and women of child bearing age because of the risks to the unborn baby.

I am not sure which country you’re in. If it’s America then you might find the American epilepsy organisation useful to contact. Meanwhile here are some other things that may help:

·         information about children with epilepsy

·         information for children with epilepsy

·         education

I hope this is useful for you.

Regards

Cherry  

Epilepsy Action Helpline Team

Submitted by rich on

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