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Epilepsy surgery for adults

These pages are about epilepsy surgery for adults in the UK. If you are looking for information about epilepsy surgery for adults in another country, please contact your local epilepsy organisation.

There are several different types of epilepsy surgery. These include brain surgery, deep brain stimulation and vagus nerve stimulation.

Why is epilepsy brain surgery done?

Epilepsy surgery is done to:

  • Try to stop your seizures or
  • Reduce the number of seizures you have or
  • Make your seizures less severe

Overall, the aim is to improve your quality of life.

Will I benefit from brain surgery?

You might benefit from epilepsy surgery if you have tried a number of epilepsy medicines and are still having seizures. Your epilepsy will also have to be of a type that can be treated with surgery. Unfortunately, sometimes surgery is not possible.

Follow this link for a video on the benefits of epilepsy brain surgery for adults
touchneurology.com/gallery/neurosurgery-and-epilepsy

Types of epilepsy brain surgery

There are various different types of epilepsy brain surgery.

These are types where part of the brain is taken away, and are known as resection surgery:

  • Temporal lobectomy – in this type of surgery, brain tissue in the temporal lobes that has been causing seizures is cut away
  • Extratemporal resection – in this type of surgery, brain tissue in other parts of the brain that has been causing seizures is cut away
  • Lesionectomy – in this type of surgery, tumours, abscesses or other types of damage that have been causing seizures is cut away

If resection surgery isn’t possible for you, you might have a type of surgery where one part of the brain is disconnected from another part, such as:

  • Hemispherectomy – in this type of surgery, the outer layer of one half of the brain is removed
  • Corpus callosotomy – in this type of surgery, the connections between the 2 sides (hemispheres) of the brain are cut. This stops seizures spreading from one hemisphere to the other
  • Multiple subpial transection – in this type of surgery, the nerve fibres in the outer layers of the brain are cut. This stops the seizure activity spreading

Tests before epilepsy brain surgery

If you are being considered for epilepsy surgery, your doctors will talk to you about the tests and type of surgery you will have.

Electroencephalogram (EEG)/video-telemetry

The EEG machine records the electrical signals from the brain on a computer. During the EEG, a technician places harmless electrodes on your scalp, using a special glue or sticky tape. The electrodes are then connected to the EEG machine. 

In video telemetry, a video recording is done at the same time as the EEG. This means that if you have a seizure, doctors can see exactly what happens. It is important that everyone who may benefit from surgery has video telemetry. This is to find out exactly where in the brain your seizures are coming from. An EEG/video telemetry can be done while you are awake or asleep, or both.

Magnetic resonance imaging (MRI scan)

An MRI scan uses a strong magnetic field and radio waves to create pictures on a computer of tissues, organs and other structures inside the body. It can show if there’s a structural cause for your epilepsy.

Functional MRI scan (fMRI scan)

This is similar to the MRI scan but, during the scan, you will be asked to do something, such as:

  • Tap your thumb against your fingers or do other more difficult finger movements
  • Look at pictures
  • Answer questions on a computer screen

These activities increase the flow of oxygen-rich blood to a particular part of the brain. From these activities it will be possible to see which part of your brain manages important tasks such as thought, speech and language, movement and sensation.

Positron emission tomography (PET scan)

This scan uses a radioactive substance, called a tracer, to look for information about how the brain is working. It can also show if there’s a structural cause for the epilepsy.

Single-photon emission computed tomography (SPECT scan)

This scan shows different parts of the brain in different colours. You will be given an injection of a radioactive dye, which will go to your brain. The different colours show how much blood flow is in each part of the brain. Usually, blood flow is highest in the part of the brain where seizures start.

There are 2 sorts of SPECT scans: one is the inter-ictal and the other is the ictal. Ictal means seizure, so the ictal SPECT scan is done just after you have had a seizure.  ‘Inter’ means between, and so the inter-ictal SPECT scan is done between seizures.

Magnetoencephalography (MEG scan)

This is a newer type of scan, and is only available in very specialist centres. The scanner sits outside your head and measures your brain activity. It can tell which parts of your brain are active during a certain task.

Neuropsychology tests

These are tests that show if you have any memory or learning problems. They can take up to 6 or sometimes 8 hours, split into 2 or 3 different sessions, and involve a number of games and puzzles. The results of the tests may help the surgeon in planning the type of surgery you might need. The results can also show whether the part of your brain that will be operated on is responsible for any functions that other parts of your brain can’t take over. This is to try to make sure you will not have any problems after surgery that you didn’t have before.

Neuropsychiatry assessment

A psychiatrist with experience of assessing people for epilepsy brain surgery will see you as part of your initial assessment. They will see what other problems the epilepsy is causing. This is particularly important if you have a psychiatric illness as well as epilepsy.

Invasive EEG telemetry

In a very small number of situations, you might need to have more detailed EEG telemetry. This is called invasive EEG telemetry. The neurosurgeon will do an operation to place the EEG electrodes directly onto the surface of the brain or into the brain. The electrodes are called ‘strip’ or ‘grid’ or ‘stereo’ electrodes. The reason for invasive EEG telemetry is to find out where exactly your seizures are coming from. Another part of this test is called ‘cortical mapping’. This is to reduce the risk of any complications after surgery, when the neurosurgeon removes the part of the brain causing the seizures. These complications can include a loss of speech or paralysis down one side of the body. 

What happens during epilepsy brain surgery

What happens during surgery depends on the type of surgery you have. Usually you will have a general anaesthetic, to put you to sleep. The surgery involves making a small opening in your skull to get to your brain. Rarely, your surgeon may wake you up during part of the operation to help the operating team locate the part of your brain that controls language and movement. Your surgeon will be able to explain this to you. After the surgery, the bone is replaced, and fixed to your skull for healing. Epilepsy brain surgery usually takes several hours.

After epilepsy brain surgery

  • Your head will be swollen and painful
  • You will need to take painkillers for a few days. The pain and swelling will get less over the next few weeks 
  • You will need to rest and relax in the first few weeks and gradually become more active
  • If you work, you will need to stay off work for around 3 months
  • You will continue to take epilepsy medicines for a year or 2. But you may be able to reduce, or even stop them, after that, if you remain seizure-free

Will my seizures stop after surgery?

The chances of being seizure-free after surgery varies from person to person. Among other things, it depends on the type of epilepsy surgery, scan findings and whether all the information from tests fit together. Your doctors will be able to tell you more about the expected success rate of your surgery. They will also be able to tell you about any complications that could happen following your surgery.

What are the possible surgery outcomes?

Despite the tests before surgery, it’s not always possible to know exactly what the outcomes will be. However, following the tests before surgery, the doctors will have enough information to have a very good idea. And surgery will only be done if the benefits are greater than the risks. These are some possible outcomes related to specific types of surgery:

  • Temporal lobe surgery - Memory problems. The temporal lobes handle memory and language. This means that any surgery on these parts of the brain can cause difficulties in remembering, understanding and speaking. But, for some people, memory can improve
  • Corpus callosotomy – You may still have seizures, but they are likely to be less severe
  • Hemispherectomy - After this type of surgery a person’s area of vision may be reduced. Some people may have limited use of one side of their body

Other types of epilepsy surgery

As well as brain surgery, there are other types of surgery that can help some people with ongoing seizures.

Vagus nerve stimulation (VNS)

Vagus nerve stimulation (VNS) is a treatment where your vagus nerve is stimulated to stop your seizures. The surgery involves having a small generator that is implanted under the skin below the left collarbone. This is connected to a lead with 2 coils at one end. These coils are wrapped around the vagus nerve at the side of the neck, under the skin, during a small operation.

Deep brain stimulation (DBS)

Deep brain stimulation (DBS) is a treatment where a part of the brain is stimulated, to stop seizures. The surgery involves having a DBS system fitted.

The DBS system has 3 parts:
1. A lead – this is a thin, insulated wire. It is placed in the part of the brain where the seizure activity happens, through a small hole in the skull.
2.  A neurostimulator – this is a small device, similar to a heart pacemaker. It is usually placed under the skin near the left collarbone, lower in the chest, or under the skin of the stomach.
3.  An extension – this is an insulated wire that is passed under the skin of the head, neck, and shoulder. It connects the lead to the neurostimulator.

Further information and support

  • If you would like to find out if surgery could help you, please contact your epilepsy nurse or specialist.
  • If you have already been told that surgery could help your epilepsy, your surgeon will be able to tell you more. They will also be able to answer your questions.
  • For more, general, information about epilepsy surgery go to the Mayo Clinic website. Website: mayoclinic.com 
  • The Epilepsy Surgery Friends Facebook page is a network who share their experiences of surgery for epilepsy both before and after

If you would like to see this information with references, visit the Advice and Information references section of our website. See Epilepsy surgery for adults.

Code: 
F062.03

Epilepsy Action would like to thank consultant neurologist Dr Ramesh K Nekkare, of  Southern General Hospital Glasgow for their contributions to this information.

Dr Ramesh K Nekkare has declared no conflict of interest.

This information has been produced under the terms of The Information Standard.

  • Updated August 2016
    To be reviewed August 2019

Comments: read the 17 comments or add yours

Comments

It is all too easy for anyone with a disability to manage to be made to feel like a 'freak' in our media-driven society which demands all people to meet an artificially determined norm. Contrarily, is is not easy at all to get the appropriate medical care or information needed to manage epilepsy, which is a disability just like any other. This website is tremendously useful for both its information and its establishment of a community. We sufferers of epilepsy need this kind of support. Thank you.

Submitted by Jessie on

hello there

i have frontal lobe epilepsy which mainly affects me at nightime, i have dizzy spells during the day which are partial seizures. When asking my neurologist about surgery he just laughed at me, i thought this was more common and i have read articles that the sooner surgery was conducted the better the outcome to become seizure free, i think he just prefers to hand out medication to me. This has affected my life massively i have four young children cannot drive and feel useless, i just want my life back. Do doctors just fob you off as they dont really care, my medication makes me feel dizzy and sick all the time dealing with four kids this is not easy. just hope one day surgery will become a option and i will be happy, has anyone on here had surgery via the NHS or has it been private.
thanks nic x

Submitted by nicola kelly on

Hello Nicola

Thanks for your comment. I’m sorry to hear you feel your neurologist is not taking you seriously.

Surgery for epilepsy is quite complicated. There are several types of epilepsy surgery, and they are only suitable in specific circumstances. In most cases, the person would need to have tried a number of epilepsy medicines and still be having seizures, and have a type of epilepsy that would benefit from surgery. The treatment for most people with epilepsy is still epilepsy medicine.

It might be helpful if your talk to your neurologist or epilepsy nurse for more details about your epilepsy, and why it may or may not be suitable for epilepsy surgery. And, as you are taking epilepsy medicine, you could talk to them about the effect you feel it’s having on you. It might be that an adjustment or change to your treatment could help.

It’s undeniable that life with epilepsy, especially when you’re running a family, can be terribly difficult. In case you aren’t aware of the benefits, while you are not permitted to drive because of your epilepsy, you can get free bus travel and a disabled persons railcard. For some people this can help. You might also login to our online community for people with epilepsy, forum4e. On the forum it’s likely you could speak to other mothers with epilepsy. Often it’s guidance from people in similar situation that can really help.

I hope things start to get better soon.

Kind regards

Sacha
Epilepsy Action Advice and Information Team

Submitted by Sacha, Epilepsy... on

Nicola
Having had the same type of epilepsy as yourself i had brain surgery 3 years ago, it gave me back my life, i have no fits and i aaam almost off medication. i kept a diary of all the steps it took to get to having the surgery and the after effects, i will, willingly talk you through the process if you would like me to. good luck Michelle

Submitted by michelle chesters on

Looking for information about surgery for temporal lobe Epilepsy, on the left side (in case that matters). My specialist nurse has mentioned surgery and I'm excited but really anxious at the same time. I have two children to consider. Need to know more information on surgery options available. Can anyone relate? Been there/going through the same? Thanks :)

Submitted by Marlie Warrington on

i had my left temporal lobe and part gyrus removed on 30th May 1985 . No side effects and weened off medication . It was and still is 100% cure . It was at the old Radcliffe Infirmary in Oxford England . At the time the death rate was 30 % and heartbeat (life ) 70% , whether you had worse epilepsy, coma , loss of memory , vision ,paralysis etc etc . Today , 31 years later , there is a much higher chance of success and I would encourage you to go and get the answers from your neurologist . Not everyone qualifies due to the risks associated with the part(s) needed to be removed and their location . It is a life changer to the most extreme of positive .

Submitted by Michael Lawson on

Hi .
i am epilepsy patient.i have sizer after 17 years i am on madication its worked but i live in fear .now i am thinking about surgary any body can help about surgary ..
thanks all

Submitted by ali on

Hi Ali

That sounds really hard that you’re living in fear.

Here is our information about surgery. But it is only suitable for certain people. And if your seizures are controlled, it won’t be for you.

It can be a shock to be diagnosed with epilepsy. But as time passes there is every hope that you will feel less afraid of having a seizure.

You may want to see if there is a coffee and chat group in your area. It might help to talk to other people with epilepsy.

It might also be useful to look at our information on epilepsy and wellbeing.

I really hope things improve for you soon.

Cherry
Epilepsy Action Advice and Information Team

Submitted by Cherry@Epilepsy... on

Hi, my daughter Olivia is due for a left temporal lobe survey later this month. She has had partial seizures since she was 4 and she is now 16. She wants the surgery but as her mum, I am worried sick and would like anyone who has had the surgery to send me some reassurance. Thank you in advance. Gen

Submitted by Gen on

Hi Gen
It must be a very worrying time for you. It can help to talk to others so I hope you receive some positive contacts.

If you haven’t already, you could also ask your daughter’s epilepsy surgery nurse if they can put you in touch with other parents or carers.  You could also put your contact request on our facebook page and online community, forum4e.

I hope all goes well.

If we can be of any more help, please feel free to contact us again. You can contact us directly by email helpline@epilepsy.org.uk or the Epilepsy Action Helpline freephone 0808 800 5050. We are open Monday to Friday 8.30am until 5.30pm.

Regards

Diane Wallace
Advice and Information Team

Submitted by Diane, Epilepsy... on

I've been diagnosed with epilepsy for about 13 years now (currently 28). My seizures always happen when I'm sleeping or just waking up. There is one medication that I have been on for many years that works for the most part, but I still average about one seizure per year. I'm currently on 1000mg, and the problem is when I go up to 1500mg, I start having a tough time remembering to take my meds (and I've tried 1500mg of my main drug or 1000mg of the primary drug and 500mg of a secondary and had the same results of forgetting).

My neurologist wants to seriously consider starting to talk about brain surgery in 6 months. Would it be normal for someone like me who averages only about one seizure per year (admittedly they are Grand Mal and everybody who has seen them says they are very intense -- I've broken a finger, bit a chunk of my tongue out, broke some stuff while seizing, etc.) to consider brain surgery as a serious option or is it typically better to take on the risks of the seizures and continue to work on reducing them through other means? I don't know if it matters, but I live in the USA.

Submitted by Drew on

Hi Drew

I think it would be quite unusual in the UK for brain surgery to be suggested if the person only has one seizure a year. But the important thing is that, wherever you live, you have the right to the information about your choices and the right to make the final decision. You might find it useful to join our online community forum4e as there are regular conversations on there about surgery.

I guess you know about the American Epilepsy Foundation, but thought the link might be useful anyway.

Hope that helps.

Cherry
Advice and Information Team

Submitted by Jude@epilepsyaction on

Having brain surgery is a matter of weighing up the risks with the benefits if all goes well, as well as basing it on your current quality of life with epilepsy.

If life is unbearable and successful brain surgery meant a big difference then weigh up the risks. It cannot be advised simply as I went through this and all went well for me. But I didn't know if it was going to be successful beforehand and this was the biggest hurdle.

If all tests are in your favour and you feel you have the courage then I would go for it if the probability was in my favour (which it was back in 1996 when I had it).

If it was guaranteed to be successful then I would go ahead with it but due to uncertainties this is where we have to take a chance.

There is no obvious answer but I wish all success to everyone undergoing brain surgery.

Submitted by John R Jones on

I had temporal lobe epilepsy from the age of 13 and was under a super doctor at the National Hospital in London. As the years progressed the seizures worsened and i began having fits. I never knew when any of these were going to happen, unlike some people who did have a warning. In 1999 i was given the option of having the damaged part of my brain removed with a 40% of success. After lots of thought i felt it was my only option as i did not have a life. In January 2000 i underwent the surgery have never looked back. I highly recommend the National Hospital and all the staff. Having that operation changed my life totally.

Submitted by Cheryl Carter on

My sister and brother have had epilepsy from the age of three.It has affected them mentally.They have been taking some AEDs for years but they get seizures once or twice a month during their sleep. Do they quality for surgery

Submitted by Bester on
Hi Bester
 
It must be very difficult for you all. It’s understandable that living with seizures is having effect on your brother and sister.
 
It would be worth discussing their treatment options with their epilepsy specialist. They can review their treatment and look at other possible reasons for their seizures to still be happening.  If various types of epilepsy medicines have been tried, it may be that the specialist could look into other treatment options for them. We can’t say if they will be suitable for surgery or other options. But I hope our information will help them to talk to their epilepsy specialist about this.  https://www.epilepsy.org.uk/info/treatment/other-ways-treating-epilepsy
 
If they are not under a specialist, they will need to ask their family doctor to refer them. This would usually be to a neurologist. The ideal would be to someone with a specialist interest in epilepsy, as there are many different neurological conditions, and neurologists tend to specialise in different ones.
 
If their seizures are not controlled after they have tried two epilepsy medicines, or after two years, NICE (the National Institute for Health and Care Excellence) recommends that people are referred to an epilepsy specialist centre.
 
In the wellbeing section of our website we have information to help people look after their body and mind. We cover information on stress, anxiety, depression and general healthy living. It also includes mindfulness techniques to manage these situations. It may be that this approach could help your brother and sister.https://www.epilepsy.org.uk/info/wellbeing
 
I hope this is of help. If we can be of any more help, please feel free to contact us again, either by email or the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Friday, 8.30am until 5.30pm.
 
Regards
 
Diane
Epilepsy Action Advice and Information Team
Submitted by Diane@Epilepsy ... on

My 29 year old daughter just went through her second brain surgery at the Mayo Clinic in Rochester to hopefully help reduce her seizures. The operation that she has 8 years ago went well and she was seizure free for nearly a year. Until she got into a car accident and had a grade 4 concussion. Her recent surgery was about taking out some scar tissue. She has the grids put in and it showed 3 focal points. She just had her first seizure today after being out of the hospital for 3 weeks. My questions is: She doe not live near by, they moved about 18 miles away, making it impossible to be there all the time when her husband is at work. I am trying to get them to move back closer to family for safety reasons. Is there anything on the market that can alert us if she is having a seizure? Hopefully they move closer to us. There needs to be some kind of device that can alert a family member if she is alone and having a seizure. Her husband works from 11am to 10:30 pm. I am worried sick that something is going to happen and no one will be with her . She has a 3 year old adopted son that is a true blessing. IF anyone has any information or suggestions please email me at Jdjamk@msn.com. Thank you so much, Worried MOM

Submitted by Deb on